Hi I really don't know what I'm doing this week but I've just made an appt with my Doc for next week.I've had Fibro and Arachnoiditis now since 91,well I was diagnosed then but started with it in 86.This last few months have been just awful and my Fibro is getting me so down.I can't sleep (I know thats a main problem with Fibro)but if I move onto my side the pins and needles and pain in my hips and knees drive me up the wall.I'm getting those awful headaches from first thing in the morning.This week I've dropped things and just fallen over for no reason and am soooo tired and just bursting into tears all the time.You'd think that having Fibro all this time I should be used to it,thats what my Doc thinks too.I've just realised that all the medication I'm having is for High Blood Pressure and my Heart (Arythmia).I have Tramadol for pain relief but thats it.My friend pointed out to me that I 've never seen anyone about the Fibro except my GP and that he says all that can be done about that is to keep a possitive attitude!My Hubby is worried because he can see that I'm getting very down which is so unlike me really,I've always tried to keep going.When I had my stroke in 2000,I managed to get my speech etc back and make myself get on with it.I just don't know what to say to the Doc next week.One thing I have is a bad big toe on my left foot!it's very very sore even the sheet touching it makes me jump and it has skin peeling and blister type lumps .My toes and feet have been numb for a while now but boy can I feel this big toe if touched!I've mentioned it before at the Docs but he hasn't even offered to look at it he just says it's probably "part of the symptoms of the Fibro or Arach".I'm sorry to rant on but I'm on my own all day till hubby comes home at night and just feel as if I'm going mad and like I said before am in tears all the time,partly with the pain and partly with frustration.A lot of people have said change Doctors but in the UK we're tied to a catchment area of so many miles of where we live.I sometimes wish if I could just see a specialist who could reasure me that the things that are happening to me are part of the Fibro etc,I think I'd accept that ok,I just don't know.Well I'm going to get a cup of tea,I'm really off food too but with meds I know that won't mean I'll lose weight lol,we just can't win can we.Thanks for letting me go on and I really would be grateful for any suggestions,especiallyas to what I'm going to say to the Doc,I know I'm going to worry about that too!!Take care,Ginnie

[Megan]

Hi Ginnie,

This board seems really slow. I haven't been diagnosed with ME/CFIDS or Fibro but I strongly suspect that is what I may have so I'm not any use to you other than to say 'hello'.

I have a million questions (well not quite) I'd like to ask about ME but I don't think many people come here.

Interesting I grew up in Blackburn, Victoria, Australia. I'm sure the Aussie Blackburn was named after the British one - quite a nice treed suburb in Melbourne.

Hope you get some useful responses!

Megan

[froglady]

Hi Ginnie, you need to see a Rheumatologist for a diagnosis. I went last month and am waithing to see what my trigger points are all about. They are the very best ones to handle fibro and other simular problems. I will be glad when my appointment comes to find out what she thinks of my rib pain and lots of joint pain. Good luck, Gaye

[Lady Veteran]

For your toes, have you tried wintergreen alcohol or regular alcohol? I am diabetic and I find that alcohol stops pain in my feeta and toes. Have you been tested to see if you are allegic to any medications or have diabetes. The numbness and sensitivity to anything touching your feet makes me wonder. I had an allergic reaction to some medication and could not stand anything to touch me anywhere. I find that meditation and chanting will often help me sleep as does soft music. For problems with eye pain I've learned to put dark fabric over my eyes at night. I wonder are Fibro patients more sensitive to light at night? Some of your symptoms could be complications from the stroke or Diabetes. Have you been tested for Diabetes? I also found that eating a lot of chicken helps with Fibro. Well good luck and wish I lived where you live. It seems like it is always cold here in Michigan. Maybe it's just me.
this week but I've just made an appt with my Doc for next week.I've had Fibro and Arachnoiditis now since 91,well I was diagnosed then but started with it in 86.This last few months have been just awful and my Fibro is getting me so down.I can't sleep (I know thats a main problem with Fibro)but if I move onto my side the pins and needles and pain in my hips and knees drive me up the wall.I'm getting those awful headaches from first thing in the morning.This week I've dropped things and just fallen over for no reason and am soooo tired and just bursting into tears all the time.You'd think that having Fibro all this time I should be used to it,thats what my Doc thinks too.I've just realised that all the medication I'm having is for High Blood Pressure and my Heart (Arythmia).I have Tramadol for pain relief but thats it.My friend pointed out to me that I 've never seen anyone about the Fibro except my GP and that he says all that can be done about that is to keep a possitive attitude!My Hubby is worried because he can see that I'm getting very down which is so unlike me really,I've always tried to keep going.When I had my stroke in 2000,I managed to get my speech etc back and make myself get on with it.I just don't know what to say to the Doc next week.One thing I have is a bad big toe on my left foot!it's very very sore even the sheet touching it makes me jump and it has skin peeling and blister type lumps .My toes and feet have been numb for a while now but boy can I feel this big toe if touched!I've mentioned it before at the Docs but he hasn't even offered to look at it he just says it's probably "part of the symptoms of the Fibro or Arach".I'm sorry to rant on but I'm on my own all day till hubby comes home at night and just feel as if I'm going mad and like I said before am in tears all the time,partly with the pain and partly with frustration.A lot of people have said change Doctors but in the UK we're tied to a catchment area of so many miles of where we live.I sometimes wish if I could just see a specialist who could reasure me that the things that are happening to me are part of the Fibro etc,I think I'd accept that ok,I just don't know.Well I'm going to get a cup of tea,I'm really off food too but with meds I know that won't mean I'll lose weight lol,we just can't win can we.Thanks for letting me go on and I really would be grateful for any suggestions,especiallyas to what I'm going to say to the Doc,I know I'm going to worry about that too!!Take care,Ginnie [/SIZE][/QUOTE]