Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 09-23-2016, 05:08 PM #1
DaveSP DaveSP is offline
Junior Member
 
Join Date: Sep 2016
Posts: 12
5 yr Member
DaveSP DaveSP is offline
Junior Member
 
Join Date: Sep 2016
Posts: 12
5 yr Member
Default I was diagnosed with fibro but I don't have tender points. Am confused.

As the title says. Neurologist diagnosed based on my other symptoms--dull aches, tiredness, brain fog, small fiber neuropathy, depression.

I am confused because I just read the Oxford Press Fibromyalgia Clinician's Guide from 2009 and it says that 100% of fibro sufferers have tender points. But on the Mayo Clinic fibro page, it says that doctors no longer use tender points as a criteria. It says that tender points can come and go so they are not a good criteria. This implies that they are still a main feature of the disease and that fibro patients will have them at some point, but maybe not all the time.

But what about if you never have tender points like me?
DaveSP is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tamiloo (03-30-2017)

advertisement
Old 09-23-2016, 05:14 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,673
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,673
15 yr Member
Default

Some years back , it came out that the tender points are not a solid /reliable indicator.
There is a post or thread about that here.

If you use the search tool - http://www.neurotalk.org/search.php
and tender points as keyword , it should find it ..
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tamiloo (03-30-2017)
Old 09-23-2016, 06:52 PM #3
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I have attended 2 chronic pain medical seminars in the past 5 yrs, that lasted a whole day. Fibro was included in both.

Dr. Clauw, MD is a national expert on the subject and I learned much from his presentations.

Here is a link to a Q & A interview with him. In it is an explanation as to his opinion that tender points are not really very significant clinically.

This Month’s Expert: Daniel J. Clauw, M.D. Diagnosis and Non-Drug Management of Fibromyalgia | Psych Central Professional

I suggest you read the whole article. I was very impressed with him...he is an empathetic doctor and brilliant as well IMO. You can also Google him, and find more information. He is a very generous man and gives lots of interviews and shares newest research.

Dr. Clauw mentioned in our seminar that normal people who don't have fibro also have tender points. Because of this he suggested that this criteria be discontinued as necessary for a fibro diagnosis.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Last edited by mrsD; 09-23-2016 at 07:10 PM.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (11-17-2022)
Old 09-23-2016, 07:36 PM #4
DaveSP DaveSP is offline
Junior Member
 
Join Date: Sep 2016
Posts: 12
5 yr Member
DaveSP DaveSP is offline
Junior Member
 
Join Date: Sep 2016
Posts: 12
5 yr Member
Default

Quote:
Originally Posted by Jo*mar View Post
Some years back , it came out that the tender points are not a solid /reliable indicator.
There is a post or thread about that here.

If you use the search tool - http://www.neurotalk.org/search.php
and tender points as keyword , it should find it ..
Thank you I will search for it.
DaveSP is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tamiloo (03-30-2017)
Old 09-23-2016, 07:57 PM #5
DaveSP DaveSP is offline
Junior Member
 
Join Date: Sep 2016
Posts: 12
5 yr Member
DaveSP DaveSP is offline
Junior Member
 
Join Date: Sep 2016
Posts: 12
5 yr Member
Default

Quote:
Originally Posted by mrsD View Post
I have attended 2 chronic pain medical seminars in the past 5 yrs, that lasted a whole day. Fibro was included in both.

Dr. Clauw, MD is a national expert on the subject and I learned much from his presentations.

Here is a link to a Q & A interview with him. In it is an explanation as to his opinion that tender points are not really very significant clinically.

This Month’s Expert: Daniel J. Clauw, M.D. Diagnosis and Non-Drug Management of Fibromyalgia | Psych Central Professional

I suggest you read the whole article. I was very impressed with him...he is an empathetic doctor and brilliant as well IMO. You can also Google him, and find more information. He is a very generous man and gives lots of interviews and shares newest research.

Dr. Clauw mentioned in our seminar that normal people who don't have fibro also have tender points. Because of this he suggested that this criteria be discontinued as necessary for a fibro diagnosis.
Thank you for clarifying. That confirms the diagnosis.

It's funny because earlier today I came across one of Dr Clauw's talks on youtube while on a major google binge. Chronic Pain - Is it All in Their Head

I haven't watched it yet but will. Thank you for the article. His statement that "exercise is the best drug for fibro" is so true for me. It has a huge effect on the way I feel.
DaveSP is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (09-23-2016), tamiloo (03-30-2017)
Old 05-19-2017, 01:16 PM #6
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

Don't know if OP is around but I was given the Fibro dx in 1999 while searching for thyroid support and NOT getting it from endo and internal med docs...but my gut was telling me sluggish thyroid. Thyroid dsyfunction is huge and MANY are not getting help or NOT getting the best support.

I didn't have the tender points and then one MD I got to know, said everyone has tender spots on their bodies. He said he did. Some doctors don't know what to do with patients, so hand out the Fibro dx. It's many things go wrong in the body, I believe. Headed into my 79th year, I have a lot of aches and pains, but bodywide OA too.

I never took the hardcore drugs for this fibro dx.
caroline2 is offline   Reply With QuoteReply With Quote
Reply

Tags
confused, criteria, diagnosed, fibro, tender

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
fibro without points amandajayne Fibromyalgia and Chronic Fatigue 2 11-07-2013 06:57 AM
Trigger points vs tender points - the differences Jomar Thoracic Outlet Syndrome 2 03-25-2011 01:08 PM
Fibro without the tender points? sunnydee Fibromyalgia and Chronic Fatigue 22 08-12-2009 04:56 PM
Diagnosed... then undiagnosed... now confused susanjpullen General Health Conditions & Rare Disorders 10 02-11-2009 09:24 AM
I'm new; recently diagnosed; and so so confused! legzzalot Multiple Sclerosis 22 11-04-2008 12:25 AM


All times are GMT -5. The time now is 06:52 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.