Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 04-16-2014, 06:13 PM #11
Tipp's Avatar
Tipp Tipp is offline
Junior Member
 
Join Date: Mar 2014
Posts: 19
10 yr Member
Tipp Tipp is offline
Junior Member
Tipp's Avatar
 
Join Date: Mar 2014
Posts: 19
10 yr Member
Default

Quote:
Originally Posted by uncomfortable one View Post
Yes, I have both. I have to tell you, it took going to at least 11 doctors to find someone who understood what was going on. I had the Ebstein Barr virus in my teens, and was in a car accident two years ago. I have had so many symptoms: ringing in ears (checked for menere disease, negative), peri.neuro (unknown cause although symptoms started post MVA) fibro, mfs, 2 herniated discs in neck, one in lower back, awful depression/anxiety, and unbearable pain. I am on numerous meds, and none of which are narcotics. Sometimes I may reduce amt of the tramadol, gabapentin, or meloxicam just to see where my pain level is. Of course, it is horrible, but I start to wonder if I am having withdrawl symptoms too. I have tried PT, chiro, water aerobics, shots into trgger pts, stretching....... I yet to have it under control. Would prefer holistic treatment, since I strongly believe pharm co R just getting richer. And if the meds can only control the pain level, who in the h--- wants to take those 4ever? I am only 31, and because of all of this (trying diff treatmnt) I ended up missing work, and starting back to school. I don't complain to family, they just don't get it. I have children, and I force myself 2engage in school activites, and find things 2 keep them active. People don't see the prob because we look "normal" on the outside. The few things that have helped are: my relationship with God (4 those who don't believe, it probably produces the same effect as deep meditation.) Also going to a therapist has helped. Sorry for such a long reply, but don't give up, and I hope U find relief soon. Take care!
Hi. I am as uncomfortable as you Uncomfortable One. Ha Ha I have a lot of the same symptoms as you and had a car accident 2 years ago have ringing in ears, am diagnosed with myofascial pain, occipital neuralgia, have bulging discs in neck and lumbar, numbness, pain, tingling, itching, spasms, cramps, did I say PAIN and exhaustion, tightness, stiffness, clicking, TMJ, etc. etc. Nobody realises because we look ok on the outside. It is true. And it is depressing to find yourself in this state. I am in my 50s.
Tipp is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PamelaJune (04-16-2014)

advertisement
Old 05-01-2014, 12:37 PM #12
Tipp's Avatar
Tipp Tipp is offline
Junior Member
 
Join Date: Mar 2014
Posts: 19
10 yr Member
Tipp Tipp is offline
Junior Member
Tipp's Avatar
 
Join Date: Mar 2014
Posts: 19
10 yr Member
Default

Quote:
Originally Posted by Lilith View Post
I am still new here...Hello everyone! I have Fibromyalgia and newly diagnosed with Myofascial Syndrome. Pain Pain and more Pain Lilith

I do! It is awful.
Tipp is offline   Reply With QuoteReply With Quote
Old 07-07-2014, 11:26 PM #13
kalli kalli is offline
New Member
 
Join Date: Jul 2014
Posts: 4
8 yr Member
kalli kalli is offline
New Member
 
Join Date: Jul 2014
Posts: 4
8 yr Member
Poll

Quote:
Originally Posted by uncomfortable one View Post
Yes, I have both. I have to tell you, it took going to at least 11 doctors to find someone who understood what was going on. I had the Ebstein Barr virus in my teens, and was in a car accident two years ago. I have had so many symptoms: ringing in ears (checked for menere disease, negative), peri.neuro (unknown cause although symptoms started post MVA) fibro, mfs, 2 herniated discs in neck, one in lower back, awful depression/anxiety, and unbearable pain. I am on numerous meds, and none of which are narcotics. Sometimes I may reduce amt of the tramadol, gabapentin, or meloxicam just to see where my pain level is. Of course, it is horrible, but I start to wonder if I am having withdrawl symptoms too. I have tried PT, chiro, water aerobics, shots into trgger pts, stretching....... I yet to have it under control. Would prefer holistic treatment, since I strongly believe pharm co R just getting richer. And if the meds can only control the pain level, who in the h--- wants to take those 4ever? I am only 31, and because of all of this (trying diff treatmnt) I ended up missing work, and starting back to school. I don't complain to family, they just don't get it. I have children, and I force myself 2engage in school activites, and find things 2 keep them active. People don't see the prob because we look "normal" on the outside. The few things that have helped are: my relationship with God (4 those who don't believe, it probably produces the same effect as deep meditation.) Also going to a therapist has helped. Sorry for such a long reply, but don't give up, and I hope U find relief soon. Take care!
WOW me and you read about the same! I can't take tramadol or gabapentin! I had epstein barr virus after coming off a bad case of mono, in the same month and I too was in my teens. I didn't have any "problems" until I was about 25 (I"m 28 now). Now I have myofascial (which I think is worse in me than my fibro); DDD, stenosis, 3 herniations of my lumbar (L2 (with a bone spur & Pinched nerve), L3, L5) Guess my L4 got lucky. Neuropathy (due to said pinched nerve and bone spur). I was on Cymbalta and gained ALOT of weight and side effects and didn't help any (except for the neuropathy I now see). I wasn't in a car wreck but had numerous ATV wrecks (raced semi-professionally). THIS STUFF SUCKS. Some days I'm 70%, some days I'm 30%. UGH. Blessings
kalli is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Anyone with myofascial pain syndrome? slogo Fibromyalgia and Chronic Fatigue 21 08-08-2007 04:43 AM
TOS 101 - It's a SYNDROME beth Thoracic Outlet Syndrome 11 07-28-2007 03:28 PM
Headaches and Myofascial Trigger Points painfree Headache 2 06-02-2007 06:12 PM
Postconcussion syndrome Jim Gallaher New Member Introductions 2 04-16-2007 07:13 AM
Fasciculations & widespread myofascial trigger points SDE7 General Health Conditions & Rare Disorders 1 03-26-2007 02:19 AM


All times are GMT -5. The time now is 10:04 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.