Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 09-18-2007, 10:18 AM #1
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Oh no problem. The shots are my saving grace as I may have said before. I would not be able to work without them.
Anne, the shot is a injectable steroid called depo-medrol and it helps breakup the stiffness in my shoulder/back. When I am really bad you can actually her my muscle crackle like rice krispies. Unfortunately it only lasts 2 weeks for me and its back to the doc for more shots.
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Enjoy when you can, and endure when you must. -- Goethe

Diagnoses: FM, Sciatica, Rosacea, Piriformis Syndrome, SI joint disfunction, Joint Facet Syndrome L3-L5, Pinched Nerve (somewhere on the left side), Depression, Anxiety and Bipolar II

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Old 09-19-2007, 10:50 PM #2
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I did try Zanaflex five years ago, but I had what would be considered a paradoxical reaction to it. Instead of relaxing my muscles, it caused them to twitch violently. Probably something that only happens in one percent or less of patients.

Hope you have better luck with it. Most people tolerate it much better than I did.

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Old 09-19-2007, 11:55 PM #3
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I use natural / homeopathic medicine... and some oriental

right now Pinnapple juice , Arnica montana and stop pain spray,...
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Old 09-19-2007, 11:56 PM #4
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opps and epsom salt baths with aromatherepy
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Old 11-19-2012, 03:47 PM #5
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I take topomax and lamictil both for bipolar disorder but topomaxhas been known to help fibro
I take tinazadine 1 Mg a muscle relaxer cymbalta60 mg just started 2 weeks ago.
Nambutone 750 Mg antiflammatory. Oxycontin20 Mg twice daily Percocet 10 Mg twicedaily
With all these Meds I am still in pain.
Do yoga 3 times week pool. Aerobics twice a week
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Old 12-18-2007, 04:53 PM #6
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Decongestant + Guaifenesin (expectorant) to clear bodywide congestion.

Treat drinking water by adding alkali solution (comp pharm makes it for me) to keep it neutral - 7.4 ph.

Test and monitor saliva pH to keep it as close as possible to 7.0.

Paxil - at night. Have serotonin problems - depression, panic/anxiety, obsessive/compulsive and procrastination - and they came with the Fibro.

Don't eat any acid food or drink. From grapefruit to even raisins.
No soft drinks.
No tomatoes in any form.

Eat a small amount of protein (cheese works) before bed to eliminate night sweats.

Wear eye mask and ear plugs to block out all light and all sound at the head for deep restorative sleep.

Annie
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Old 01-20-2008, 04:21 PM #7
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Question My meds and conditions

I have fibromyalgia, bipolar disorder with anxiety, degenerative disk disease, sciatica, arthritis, high blood pressure, and high cholesterol. For those, I take Lyrica, Lamictal, Celexa, Trazadone, Klonopin, Procardia XL, Univasc, Potassium, and Hydrodiuril. I just started on the Lyrica a few days ago and notice only slight relief. Hopefully, it will become more effective. Except for the sciatica and disk disease, everything is controlled well by my meds. However, the pain from the sciatica and fibro is debilitating at times. Do you have any tips for pain control/management? I've read a lot of stuff but never communicated with anyone about it. Does the depo-medrol help? I had one trigger point injection that helped for a week. Should I ask my doctor to give my the bi-weekly ones that you take? I am in agony. Thanks for any info.
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Old 01-22-2008, 02:52 PM #8
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Quote:
Originally Posted by ppinkow View Post
I have fibromyalgia, bipolar disorder with anxiety, degenerative disk disease, sciatica, arthritis, high blood pressure, and high cholesterol. For those, I take Lyrica, Lamictal, Celexa, Trazadone, Klonopin, Procardia XL, Univasc, Potassium, and Hydrodiuril. I just started on the Lyrica a few days ago and notice only slight relief. Hopefully, it will become more effective. Except for the sciatica and disk disease, everything is controlled well by my meds. However, the pain from the sciatica and fibro is debilitating at times. Do you have any tips for pain control/management? I've read a lot of stuff but never communicated with anyone about it. Does the depo-medrol help? I had one trigger point injection that helped for a week. Should I ask my doctor to give my the bi-weekly ones that you take? I am in agony. Thanks for any info.
If you tell the doc that they only last for a week....then she/he should be able to help you. I think that steroids can only be given every 2 weeks though. Something about brittle bones.
I tell you if I didn't go every 2 weeks I would be a hurting soldier.
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Enjoy when you can, and endure when you must. -- Goethe

Diagnoses: FM, Sciatica, Rosacea, Piriformis Syndrome, SI joint disfunction, Joint Facet Syndrome L3-L5, Pinched Nerve (somewhere on the left side), Depression, Anxiety and Bipolar II

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Old 12-11-2012, 06:06 AM #9
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Quote:
Originally Posted by fiberowendy2000 View Post
I realized we haven't talked about this yet but since we are all different and dealing with different aspects of FM what meds help you with your particular symptoms?
For me, its bi-weekly shots of depo-medrol in my shoulder and back, 750mg of robaxin x 6 a day, and Trazodone.
So what are you on?
If you are looking to treat your symptoms, you are doing that but if you want to "treat" the potential, underlying cause of fibromyalgia, then seek a biomedical doctor and be evaluated for yeast(typically candida albicans).


Yours in health,

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Old 12-11-2012, 12:04 PM #10
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Quote:
Originally Posted by fiberowendy2000 View Post
I realized we haven't talked about this yet but since we are all different and dealing with different aspects of FM what meds help you with your particular symptoms?
For me, its bi-weekly shots of depo-medrol in my shoulder and back, 750mg of robaxin x 6 a day, and Trazodone.
So what are you on?
New to this site, great info. I've had fibro for about 25 years. I'm very sensitive to meds. I am on Lunesta 3mg and Ultram 25mg both at night for sleep. This has been my cocktail for the last year or so and usually helps me sleep. During acute pain episodes, I can take a whole ultram 50mg, but it makes my brain fog so bad that I can't function and have to wait until I'm home from work.

Lately the muscle twitches, tremors have been much worse, constant. I have tried Lyrica and Cymbalta in the past but could not tolerate the side effects. Am looking into Neurontin, looks like a lot of you have had success with it. Also am going to try Amitriptyline low dose for the chronic headaches that have begun.

So thankful for this thread and to see what works and what doesn't. I do know it is not a one size fits all disease so we each may have our own formula for what works, but thankful for everyone sharing their victories as well as their failures so we can learn of the possibilities.
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