Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 09-19-2007, 11:55 PM #11
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I use natural / homeopathic medicine... and some oriental

right now Pinnapple juice , Arnica montana and stop pain spray,...
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Old 09-19-2007, 11:56 PM #12
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opps and epsom salt baths with aromatherepy
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Old 12-18-2007, 04:53 PM #13
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Decongestant + Guaifenesin (expectorant) to clear bodywide congestion.

Treat drinking water by adding alkali solution (comp pharm makes it for me) to keep it neutral - 7.4 ph.

Test and monitor saliva pH to keep it as close as possible to 7.0.

Paxil - at night. Have serotonin problems - depression, panic/anxiety, obsessive/compulsive and procrastination - and they came with the Fibro.

Don't eat any acid food or drink. From grapefruit to even raisins.
No soft drinks.
No tomatoes in any form.

Eat a small amount of protein (cheese works) before bed to eliminate night sweats.

Wear eye mask and ear plugs to block out all light and all sound at the head for deep restorative sleep.

Annie
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Old 01-20-2008, 04:21 PM #14
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Question My meds and conditions

I have fibromyalgia, bipolar disorder with anxiety, degenerative disk disease, sciatica, arthritis, high blood pressure, and high cholesterol. For those, I take Lyrica, Lamictal, Celexa, Trazadone, Klonopin, Procardia XL, Univasc, Potassium, and Hydrodiuril. I just started on the Lyrica a few days ago and notice only slight relief. Hopefully, it will become more effective. Except for the sciatica and disk disease, everything is controlled well by my meds. However, the pain from the sciatica and fibro is debilitating at times. Do you have any tips for pain control/management? I've read a lot of stuff but never communicated with anyone about it. Does the depo-medrol help? I had one trigger point injection that helped for a week. Should I ask my doctor to give my the bi-weekly ones that you take? I am in agony. Thanks for any info.
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Old 01-22-2008, 02:50 PM #15
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Quote:
Originally Posted by hurtsobad73 View Post
I think it is really important to see what works for other people. I haven't really found a medicine that works for me continually. I really like the idea of the depo-medrol shots. My rheumy has never suggested this.

Currently I am taking Lyrica 200mg x 2 times daily...so in all 400mg. For muscle relaxants I have been given tizavidine...generic for Zanaflex...4mg tablets.
No one else has mentioned this drug. Has anyone else had experience with it and if so how has it worked/not worked for you. I received this medication when my whole body was in a spasm. I was literally lifted off the bed about an inch. It hurt so bad. Has anyone had that happen as well?

Any input/advice/experiences are greatly appreciated and a sincere thanks to you.

M
Zanaflex did nothing for me.....which lead me to the Robaxin!
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Enjoy when you can, and endure when you must. -- Goethe

Diagnoses: FM, Sciatica, Rosacea, Piriformis Syndrome, SI joint disfunction, Joint Facet Syndrome L3-L5, Pinched Nerve (somewhere on the left side), Depression, Anxiety and Bipolar II

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Old 01-22-2008, 02:52 PM #16
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Quote:
Originally Posted by ppinkow View Post
I have fibromyalgia, bipolar disorder with anxiety, degenerative disk disease, sciatica, arthritis, high blood pressure, and high cholesterol. For those, I take Lyrica, Lamictal, Celexa, Trazadone, Klonopin, Procardia XL, Univasc, Potassium, and Hydrodiuril. I just started on the Lyrica a few days ago and notice only slight relief. Hopefully, it will become more effective. Except for the sciatica and disk disease, everything is controlled well by my meds. However, the pain from the sciatica and fibro is debilitating at times. Do you have any tips for pain control/management? I've read a lot of stuff but never communicated with anyone about it. Does the depo-medrol help? I had one trigger point injection that helped for a week. Should I ask my doctor to give my the bi-weekly ones that you take? I am in agony. Thanks for any info.
If you tell the doc that they only last for a week....then she/he should be able to help you. I think that steroids can only be given every 2 weeks though. Something about brittle bones.
I tell you if I didn't go every 2 weeks I would be a hurting soldier.
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Enjoy when you can, and endure when you must. -- Goethe

Diagnoses: FM, Sciatica, Rosacea, Piriformis Syndrome, SI joint disfunction, Joint Facet Syndrome L3-L5, Pinched Nerve (somewhere on the left side), Depression, Anxiety and Bipolar II

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Old 06-28-2012, 07:24 PM #17
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Confused topamax

Quote:
Originally Posted by fanfaire View Post
I have an assortment of ailments in addition to the fibro, so I'll just list the most fibro-specific meds:

1. Zolpidem 10mg (generic Ambien) for sleep. I had much better success with Lunesta and Sonata, but my new insurance won't cover them.

2. Skelaxin 800mg as needed. It's a non-sedating muscle relaxant, but it upsets my stomach, so I only take it prior to a massage or dental appointment where I need to be alert enough to drive.

3. Diazepam 5mg as needed as a muscle relaxant. It isn't terribly sedating, but I avoid taking it when I'm going to be driving just to be safe.

4. Baclofen 20mg as needed for muscle stiffness and spasms. I only take this at bedtime, and only when I have nothing important to do the next day as it gives me a terrible hangover.

Unfortunately, I cannot tolerate any narcotics, Ultram, any anti-depressants, Flexeril, Trazodone or Klonopin. I had limited success with Lyrica, Neurontin and Topamax; all three worked for a few months and then suddenly didn't help at all at any dose, like I had suddenly developed an immunity to them. I take my muscle relaxants very sparingly as I'm afraid they'll stop working too, and then I'll have nothing to help me with muscle pain/spasms.

Good topic.

fanfaire
Did you take the Topamax for your fibro pain? I take it for migraine prevention...I am up to 200mg a day and it is not helping head or fibro pain...so thinking about changing to another med just for the fibro pain...thoughts?
Lisa
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Old 06-29-2012, 11:06 PM #18
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Hi Happygeek,

This thread is 4 years old (the other one you bumped was about 2 years old). Oftentimes, posters move on from the forum and won't see your replies.

While there is a lot of sage advice in old threads, if you have current questions, you'll usually get more responses by starting a new thread about the issue.

Sorry, I have no experience with Topamax. Good luck !
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Old 07-05-2012, 03:57 PM #19
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Quote:
Originally Posted by Happygeek View Post
Did you take the Topamax for your fibro pain? I take it for migraine prevention...I am up to 200mg a day and it is not helping head or fibro pain...so thinking about changing to another med just for the fibro pain...thoughts?
Lisa
I seem to have my FM pain and sleep problems under control witn zanax and vicodin (now oxycodone). Before I got on this combination my sleep deprivation was extreme. It was so bad one of my employees asked me to accompany her to her neurologist's appointment and explain what I had found on her (I am a chiropractor). When we got in the room the neuro (a good friend of mine) turned to me and said this appointment is for you. Your staff is having a hard time working with you due to your severe sleep disorder and unsociable behavior.

We tried vicodin and zanax and it worked. I went fron several years of one to four hours sleep a night to a restful all night sleep on the first day.

Since I first started this we have made minor increases in strength and now ten years later I am still sleeping through the night almost every night 95%+.

Before trying this my GP (also a godd friend of mine) had put me on every thing he could think of to stop restless legs (except any narcotic pain reliever. I don't know if I would still be alive if the neurologist had not been brave enough to step up and try this even though it is definitely not considered an appropriate treatment for restless legs.

I am now taking 1mg of zanax and 1 oxycodone-acetaminophen (7.5-3.25) about 30 minutes before I want to go to sleep. I would suggest trying this if you are also suffering from restless leg (mine was very severe).
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Old 11-19-2012, 03:47 PM #20
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I take topomax and lamictil both for bipolar disorder but topomaxhas been known to help fibro
I take tinazadine 1 Mg a muscle relaxer cymbalta60 mg just started 2 weeks ago.
Nambutone 750 Mg antiflammatory. Oxycontin20 Mg twice daily Percocet 10 Mg twicedaily
With all these Meds I am still in pain.
Do yoga 3 times week pool. Aerobics twice a week
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