Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 06-28-2012, 07:24 PM #1
Happygeek Happygeek is offline
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Happygeek Happygeek is offline
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Confused topamax

Quote:
Originally Posted by fanfaire View Post
I have an assortment of ailments in addition to the fibro, so I'll just list the most fibro-specific meds:

1. Zolpidem 10mg (generic Ambien) for sleep. I had much better success with Lunesta and Sonata, but my new insurance won't cover them.

2. Skelaxin 800mg as needed. It's a non-sedating muscle relaxant, but it upsets my stomach, so I only take it prior to a massage or dental appointment where I need to be alert enough to drive.

3. Diazepam 5mg as needed as a muscle relaxant. It isn't terribly sedating, but I avoid taking it when I'm going to be driving just to be safe.

4. Baclofen 20mg as needed for muscle stiffness and spasms. I only take this at bedtime, and only when I have nothing important to do the next day as it gives me a terrible hangover.

Unfortunately, I cannot tolerate any narcotics, Ultram, any anti-depressants, Flexeril, Trazodone or Klonopin. I had limited success with Lyrica, Neurontin and Topamax; all three worked for a few months and then suddenly didn't help at all at any dose, like I had suddenly developed an immunity to them. I take my muscle relaxants very sparingly as I'm afraid they'll stop working too, and then I'll have nothing to help me with muscle pain/spasms.

Good topic.

fanfaire
Did you take the Topamax for your fibro pain? I take it for migraine prevention...I am up to 200mg a day and it is not helping head or fibro pain...so thinking about changing to another med just for the fibro pain...thoughts?
Lisa
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Old 06-29-2012, 11:06 PM #2
finz finz is offline
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finz finz is offline
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Hi Happygeek,

This thread is 4 years old (the other one you bumped was about 2 years old). Oftentimes, posters move on from the forum and won't see your replies.

While there is a lot of sage advice in old threads, if you have current questions, you'll usually get more responses by starting a new thread about the issue.

Sorry, I have no experience with Topamax. Good luck !
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Old 07-05-2012, 03:57 PM #3
-JR- -JR- is offline
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Quote:
Originally Posted by Happygeek View Post
Did you take the Topamax for your fibro pain? I take it for migraine prevention...I am up to 200mg a day and it is not helping head or fibro pain...so thinking about changing to another med just for the fibro pain...thoughts?
Lisa
I seem to have my FM pain and sleep problems under control witn zanax and vicodin (now oxycodone). Before I got on this combination my sleep deprivation was extreme. It was so bad one of my employees asked me to accompany her to her neurologist's appointment and explain what I had found on her (I am a chiropractor). When we got in the room the neuro (a good friend of mine) turned to me and said this appointment is for you. Your staff is having a hard time working with you due to your severe sleep disorder and unsociable behavior.

We tried vicodin and zanax and it worked. I went fron several years of one to four hours sleep a night to a restful all night sleep on the first day.

Since I first started this we have made minor increases in strength and now ten years later I am still sleeping through the night almost every night 95%+.

Before trying this my GP (also a godd friend of mine) had put me on every thing he could think of to stop restless legs (except any narcotic pain reliever. I don't know if I would still be alive if the neurologist had not been brave enough to step up and try this even though it is definitely not considered an appropriate treatment for restless legs.

I am now taking 1mg of zanax and 1 oxycodone-acetaminophen (7.5-3.25) about 30 minutes before I want to go to sleep. I would suggest trying this if you are also suffering from restless leg (mine was very severe).
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