I was diagnosed with fibromyalgia in 2006. At first I was being tested and treated for possible MS. I'm still not sure that there's not more to this ms thing. They are treating me for neuropathy in my legs, but I don't understand how fibro can cause neuropathy. Does anyone else with fibro feel like they are vibrating inside?

Hi Leslie! You are in the right place. I saw your intro earlier, but just want to tell you again, that you are NOT alone. FM is painful and downright miserable. Do you see a Rheumatologist or a PCP??

I have a Rheumy and he is wonderful at treating my sx's. Unfortunately, there isn't a pill to take away the agony of FM, but there are meds to help w/the sx's. Hang in there and welcome again.

Hi! I'm new-ish myself. You're in the right place.

I've been tested for MS on three separate occasions but am now reasonably positive my screwy symptoms are caused by a combo of Sjogren's and fibro. The problem with MS is that the symptoms can resemble many ailments, including fibromyalgia, and the onset of your symptoms can precede positive results on a test by years. So you could have just fibro, fibro and MS, or something else causing your neuropathy.

Fibromyalgia can cause some really weird sensations. I haven't experienced the vibrating feeling, but I do have lots of uncontrollable muscle twitching (which probably isn't the same thing at all).

Hope you have found a rheumatologist who will help you out. I moved recently and am searching for a new doc, not fun at all.

fanfaire

Yup you are in the right place alright!
I used to get the all over vibrations...very uncomfortable. Now I am on medications to help with that.
FM can cause neuropathy because the muscles will compress the nerves causing things like sciatica, piriformis syndrome and peripheral neuropathy.
Unfortunately its symptoms like this that causes doctors to poke and prod for MS and other illnesses.
You are not alone in this and welcome.

Its good to talk to people who know what I'm going through. I'm seeing a neurologist for my fm. He keeps trying to control my pain, but I know that there is nothing that will cure it. I've read where some meds help people, but they haven't done much for me. I just keep hoping some day that one will work. My best friend has ms and our symptoms are the same, except she can't walk without assistance. I can walk on my own even though my legs get weak and heavy.They did find one scar on my brain mri, and I have optic neuritis in my right eye. I am thankful that I wasn't dx with ms, but it's always in the back of my mind,what if it is?

you said "They are treating me for neuropathy in my legs, but I don't understand how fibro can cause neuropathy. Does anyone else with fibro feel like they are vibrating inside?"
I always have felt this way and wonder if i didnt always have neuropathy instead. i had foot surgeries on my nerves and that is what started my buzzin in my legs. then i had prolotherpy shots and they inflamed my nerves even more and crippled me.
you ask a very good question. i am being treated for neuropathy now too, and yet some docs say it is fibro. i would rather it were fibro as i think we will eventually find a way to cure the fibro.
how and when did your legs start buzzing?
steff

Hi Daisy,

It was really good to read your thread? I am new at this and don't understand how to use this site yet. Yes, Fibro certainly does cause some strange sensatons and things. It was really good to read what you had to say. I would like to talk with you. I am a51 yr old female. It is listed on how to contact me. I would like to know what your doctors are saying and may have something that can help with a couple of other things you mentioned. Take care and God bless. Bridget

Hello Fanfaire,

I really liked what you had to say, would be interested in talking with you about what you said more. it is listed on how to contact me. I have had several sensations myself and was told for years before it was diagnosed that it was all in my head.

My mother is 88 and has had fibro since she was 21 and thrown from a car-landed on her head. I am a 51 yr old female. Don't know if we are suppose to put our email address on here or not.

I may have something that can help a couple of things you mentioned.
Take care and God bless. Bridget

Hi Leslie,

This is the first time I have been on this site still don't know how to use it. I was diagnosed with fibromyalgia 11 yrs ago. I was 40. I understand how you are feeling, I went to alot of doctors over the yrs and none could find what was wrong with me- it causes fear and depression not knowing what it wrong. I was told for yrs it was all in my head.

I have non diabetic related neuropathy that happened after I had heart surgery in 03. One of the doctors I saw also said the thought I had MS, he said I had all the symptoms but that he wasn't sure that is what it was. I saw a specialist for Chronic Fatigue once too and he was of little help. My mother is 88 and was in a car accident at 21, she landed on her head and has problems since- then doctors kept saying she had fibrocytis and other things that are now known to be the fibromyalgia. It causes pain and concern but thankfully it is not crippling, won't kill us so on that we are alot luckier than some other people. A good site to visit is the NFA they have alot of info that is helpful too.

It is really good to have people that know and love you for support. Feel free to contact me anytime. There is hope for us.

This is also considered one of the invisiable diseases meaning that when people look at us they can't see anything wrong. I have had some trouble from people parking in the handicap parking or using the eletronic carts when shopping don't let it bother you- if you need them use them and hold your head high!