Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 01-19-2008, 06:07 AM #1
Peter B Peter B is offline
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Quote:
Originally Posted by Megan View Post
To Ron!

I have been reluctant to accept medication until most of my testing has been completed - so I am not on any conventional Peripheral Neuropathy medication at this stage nor have I even got a CFS/Fibro diagnosis.

During those five days, although the fatigue was 'gone' the PN and the aches, pains and stiffness were still there...but it is the general debilitating fatigue that has been overwhelmingly impacting so much on my well-being and ability to function. To be rid of that alone would be excellent!!!
Hi Megan, if you have severe fatique then it is unlikely that you have ME, as fatique is not a symptom, contrary to popular belief.
My adult daughter has severe ME has has spent a great deal of time and effort to research this illness, its diagnosis and treatments, as well as dispelling the myths.
I invite you to have a look at her much acclaimed website, where you can get the lowdown on ME.
Search for A Hummingbirds Guide. Hope it helps you.
Getting a correct diagnosis is vital, but you need to be well prepared to do battle with the medical profession.
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warbelsnap (01-02-2009)
Old 12-28-2008, 12:11 AM #2
soliloquise soliloquise is offline
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soliloquise soliloquise is offline
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Quote:
Originally Posted by Peter B View Post
Hi Megan, if you have severe fatique then it is unlikely that you have ME, as fatique is not a symptom, contrary to popular belief.
My adult daughter has severe ME has has spent a great deal of time and effort to research this illness, its diagnosis and treatments, as well as dispelling the myths.
I invite you to have a look at her much acclaimed website, where you can get the lowdown on ME.
Search for A Hummingbirds Guide. Hope it helps you.
Getting a correct diagnosis is vital, but you need to be well prepared to do battle with the medical profession.

peter thank you !

cfs and me are not the same... i have me

cheers
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warbelsnap (01-02-2009)
Old 12-30-2008, 05:37 AM #3
Peter B Peter B is offline
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Peter B Peter B is offline
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Originally Posted by soliloquise View Post
peter thank you !

cfs and me are not the same... i have me

cheers
Sorry to hear that, but at least with a diagnosis you will be able to learn more about your illness and possible treatments.
My daughter has done a huge amount of research, and keeps up to date with all developments.
She has had some success with her enormous trials of medications and supplements over the years.
Ignore advice from well meaning friends/ family, and try only those treatments that have a solid basis in results.
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Last edited by Curious; 12-30-2008 at 10:54 AM. Reason: per nt guidelines
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Old 01-02-2009, 11:46 AM #4
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Fibro = Fatigue is definitely me! Besides the ache and pain from the fibro, I find the fatigue the most debilitating. The chronic myofascia pain is very debilitating as well. You can touch me anywhere on my body and it hurts.

I hope you find your answers!
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