NeuroTalk Support Groups - Big Shock to me! Warning re: Lyrica, Neurontin , etc.

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Fibromyalgia and Chronic Fatigue (https://www.neurotalk.org/fibromyalgia-and-chronic-fatigue/)

- - Big Shock to me! Warning re: Lyrica, Neurontin , etc. (https://www.neurotalk.org/fibromyalgia-and-chronic-fatigue/40484-shock-warning-re-lyrica-neurontin-etc.html)

froglady

04-04-2008 09:51 AM

I thought my depression that was increading daily was coming from my post concussion syndrome(mild brain damadge) and the whole time it was from Lyrica. went off it due to eye problems and the biggest problem was my swelling legs. After going off the L I was soon NOT depressed at all. NEVER will take that stuff again!

uncomfortable one

04-22-2008 12:04 PM

Quote:

Originally Posted by KatieG (Post 245011)

I'm new to this site and hope this is where I'm supposed to respond. I too have Fibro and find it hard to sleep. I take Advil PM ONLY when I know that I need to have a good nights sleep. I take only one pill. I take it around 8:30 - 9:00 p.m. I have it TOTALLY dark in the bedroom. I sleep pretty well. Only wake up once or twice and can fall back asleeep. Still have some side effects in the morning. Cannot handle meds well. Katie

Try asking your doc about cyclobenzaprine. It relaxes muscles, and helps you get to REM sleep. People with FMS have poor sleep because they are unable to get to REM sleep, and you may experience sudden jerks trying to fall asleep, or multiple wake ups during the night. Our body naturally produces melatonin, but as we grow older, the amount of melatonin we produces decreases. There are melatonin supplements on the market, and my doc says it is ok. Talk to you doctor. She/He can help with meds/supp., and may bring up water therapy. I hate taking prescription drugs, but until I am able to control my fibro, I have to.

coyote

05-10-2008 08:18 PM

My doctor recently went on a rant about Lyrica being marketed as a drug for Fibromyalgia. It is a treatment for nerve pain, and fibromyalgia pain is in the muscles and connective tissue, not nerves.
It was just prescribed for my dad for pain he gets in his feet from neuropathy. I'll have to let him know about the other side effects.

zappadip

05-18-2008 02:16 AM

I have been on lyrica for a while and didn't realize how much it was helping me till I had to go off of it because it has not arrived yet from the patient assistance program. So I have been with out it for 3 days, and I can definitly feel my pain worsening with out it. I never had any of the side effect that it said you could.

But I have had others give me bad side effects. :D:D;)

hurtsobad73

05-18-2008 07:56 PM

Quote:

Originally Posted by zappadip (Post 281620)

I am really happy for you, happy that you have found something to work well with your pain. If I only can ask you to please make sure you pay attention to any (even if it seems small) detail that could be caused by the side effects. Particularly depression increases, thoughts of suicide, and (one thing I experienced) a layer of my taste buds went missing off of my tongue. All I could say is what looked like the shape of a penny flattened out into those oval shapes. (you know the ones, we put a penny in a machine and they flatten them in an oval shape) That is what my tongue looked like, had no idea it was connected to the Lyrica until I came off of it due to serious depresssion and suicidal thoughts. After some days of being off of it, my tongue healed itself. Thankfully.

But we all know that meds work differently for different people. So if this works great for you, then congrats. Hopefully you will be able to have some painfree days in your life. That is great.

M

zappadip

05-19-2008 03:02 PM

Thanks - I have noticed a difference

I have noticed since I have went off, that I DO have more depression. Is that what you are saying you had as well when you went off? Or is that what you experienced when you were on Lyrica? I would love to be able to stay off of it, one less pain pill I have to take, but we will see. I have had muscle pains in my legs and arms that were gone when I was taking it, but maybe that will pass. Thanks for your reply! :winky::winky:

hurtsobad73

05-20-2008 07:04 AM

Well I am glad it is working for you. I had been MORE depressed while taking the medication and thoughts of suicide were terrible.

I hear what you are saying about one less pill to have to take. Sometimes I feel like I could open up my own pharmacy...:Sigh:

Hopefully soon we all will be able to be pain free w/o taking many medications at one time.

Well wishes to you and all who are able to experience the least bit of good life with this terrible disease.

M

braingonebad

06-16-2008 09:29 PM

The only problem I had with lyrica was it stopped working. At too high a dose, I did have very minor swelling.

I only ever have had suicidal thoughts on ADs and verapamil. I cannot take any ADs except elavil, which is NOT an SSRI.

And my docs have prescribed several ADs for my pain, which is how I found out (the hard way).

Oddly, neurontin was one I could not take - go figure, it is very similar to lyrica but I reponded so differently to the two meds.

Still, I can believe any med could have that effect on a person.

rhauptman

06-25-2008 11:05 AM

yikes!

Quote:

Originally Posted by Av8rgirl (Post 232980)

You all make good points about medications.

Things to keep in mind:

Interactions between meds you are already on
Not everyone reacts the same way to every medications
Some medications may need to be dosed differently for some people

I've had some pretty bizarre reactions to medications that have been "the safest" medications on the market. For instance, Zantac almost killed me. I had a severe anaphylactic reaction to it and the drug company, along with my doc and the ER, were totally shocked. In fact, the FDA and the drug company did a complete work up on me b/c no one had ever had a reaction to this drug during all the trials. I was the first. Lucky me...NOT!

I am also severely allergic to iodine. Not just a little bit, but a lot.

I have to take smaller than usual doses of a lot of the meds I take to treat my MS...b/c I am so med sensitive. We don't try new stuff on me. :eek:

So why am I in a clinical trial? Well, it's an autologous vaccine. They use my own blood to make the vaccine. Pretty safe, no side effects. ;)

Being careful is a good idea.
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Wow! This is crazy! I am sorry that you had to go through so much pain. I don't understand how someone can be allergic to iodine, which is a necessary component that our bodies need. I wonder if it is the type of iodine? Are you able to eat seaweed/kelp or other foods that have iodine in them? or is it just iodine supplements?

Can you put iodine on your skin?

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