Hello, not so new here. I was a member on the old braintalk community forum but cannot remember my log on id...soo....

Quick question, is there anyone out there who experiences really bad muscle spasms. For the past 3 days I have been having really bad spasms on the left side of my back, my diaphram (spelling) and then it's hard to breath, as well as my lungs... Went to the Dr who chalked it up to my fibro..

Many thanks
Lisa

Hello Lisa, and Welcome to the NeuroTalk community

I have experienced a lot of very bad muscle spasms. I currently have a muscle that has been in a spasm for months and is causing me a lot of pain and discomfort, but I can not get it to stop despite many efforts.

There is a discussion about muscle spasms on the Thoracic Outlet Symdrome forum here at Neurotalk, and many of the members of that forum have offered a lot of helpful information on that thread, so I am going to give you the link to that discussion thread -
http://neurotalk.psychcentral.com/showthread.php?t=4200


You mentioned that your doctor said the muscle spasms were a part of the fibro... but did the doctor offer any type of treatment for the spasms? Medications? Physical therapy? anything?

Muscle spasms are horrible and painful, so I hope you are able to find some relief soon.

Take care,
Liz

Hi Lisa and welcome ,
Liz gave you the link I was going to give - LOL.

anyway -do some more reading on the TOS forum and check the stickys on both of these forums.
Many Tos'sers get a nerve irritated or muscle spasms that affects our breathing and sometimes will even feel like a heart attack.

we have anatomy links in our stickys too {TOS forum} so you can find where your problem area is and link it in a post if you want.

Hope to see you there
JO

Thanks so much for the responses.

I checked out the links and read all the info there, printed out the FM and MPS Worksheet, which will be a big help when going to the Dr. I really hate keeping journals and this just looks like a much easier way of keeping track of things.

My Dr prescibed some medication in hopes that it will help. Flexeril (spelling??) I already take baclofen so I am really hoping it will help.

My lower back is in constant spasm but lately it has gotten worse. Could be the weather here, as I live very close to the bay and it has been damp.

My groin muscle also spasm, god that hurts so bad, and when my chest starts along with the lower back I sometimes wonder if I will be able to breath at all. I guess this is normal for us, as in not an unusual array of sx's.

I can't go for any type of massage because as soon as someone touched me I would jump right off the table (it just hurts to even be touched) not just the muscles, but my skin as well.

Anyway...thanks for listening to me whine today, it has been a hard couple of weeks, but I keep hanging in there.

Lisa

[weird eye problems (not sure what) and other mysterious occurances that are being investigated.]

I thought I saw eye problems somehwere- like what ?
mine water a lot-esp the right eye
I get weird blurry vision spells- more of those in 03-05 not many now
anything else? dizziness/ odd spacey feelings- foggy brain, memory, speaking prioblems??

my eye problems started a few years ago..03/04...It started with a slowing of pupil response in left eye when going from a lit room to a dark room causing momentary (well would last anywhere from 10 min to 1-2 hours) of partial to complete blindness in one eye..this slowing has since monved into my right eye.

I also have slight double vision and have small prisms in my eye glasses. The latest, which started last winter was a problem with my peripheral vision. Started in left eye, far bottom right corner and had now moved along the lower half outer rim of my left eye, along with pain behind the left eye..esp. with movement of the eye itself. Blurred vision on the lower part of my vision field.

I see a neuro in a couple weeks...

I do have foggy brain memory and sometimes forget things all together....or misshear things...little dizziness but not a lot. When I get really fatigued my speach will sometimes slur...

I can say with certainty that I have not been having strokes though. I have been checked for that.

Any ideas would be welcome.

Cheers
Lisa

I get those spasms too. I just got one a few days ago right under my boob! It was a muscle spasm because I was trying gentle yoga streches for the first time in a long time and I over did it. So for me, it is part FM and part overstressing the muscle. I see that you are on Baclofen, when this happens I take an extra dose with some ibuprofen to help with the pain and spasm. Just make sure you aren't going anywhere for a while when you do this. I did this just on Tuesday and that muscle still hurts like the dickens!

Hi Lisa and everyone else who may be reading
I have'nt really posted much here but i also have been diagnosed with fibro .
I get some pretty severe muslce spasm in my back too!
Mine are mostly around the left upper side near my shoulder and go up to my neck.
However ,they dont ever cause me to have problems breathing.I know everyone is different as to how the fibro affects them.
I hope you can get some relief with the meds your doc prescribed and possibly from the TOS forum.
Take care.
~Kell~

Maybe you should post here more, Kell...

I have the muscle spasms too, from time to time. They seem to come in cycles, and once they start they can last from a week to a month or so. I've used the Flexeril, and it helped some, but was no great relief for me. I hope it works better for you, Lisa. The only thing I've found that really works for me were certain deep-relaxation techniques I've picked up from all over the internet.

Hope you feel better soon...
Idealist

So none of you have tried botox for your spasms? - - - well I am giving it a try tomorrow..... wish me luck.