I take asacol too. And then with heartburn and things I take nexium.

Donna

(((Dmom)))...I am sorry you are having to go through this. My mother has UC. I know it is quite painful. I hope you get it figured out and get some relief.

(((Doody)))...I am thinking about you today. And I hope g doody is getting better. Those canker sores are very painful. I have had to deal with them since I was a teen. Eating is almost impossible because they are so very painful. I hope they heal quickly.

I decided to take your advice and take some meds for sleep last night. It was getting to be too much and affecting my mental/emotional health (for me very dangerous). Of course, as you know, it increases pain level as well.

When you can, let us know how you and lil g-ddody fared today....:hug::hug::grouphug:

Thanks ((Mistiis)). We did fine, he was a good little boy but obviously not well. He didn't play like he normally does, just very quietly. Then he'd take a break and just sit by me on the couch and watch his sesame street and cartoons.

I noticed right away he'd lost a lot of weight just since I saw him Sunday. Very pale and dark circles under his eyes. Still running a low-grade fever. I'll be so glad when that magic day comes that it doesn't hurt him anymore which supposedly is about the 10th day.

:hug:

((Dmom)) I hope you are feeling some better. I forgot to mention that I also had to add another med for the UC, Colestid. He said I'm dumping too much...I forgot. Oh yeah, bile acid and it's causing more problems. The Colestid helps but what a hassle. One of thos emeds you have to take a couple hours before or 4 hours after taking a different med.

Sorry for the add of a med. Hoping its helping at least.

I'd have trouble remembering the time frame.

Donna

So how's your UC doing ((Dmom)). Settled down any? I have my annual colonoscopy on the 31st. Yippee! :p :rolleyes: Can hardly wait.

I think I have finally discovered that the weather changes do play a big part in my fibro. Took me long enough to figure that out!

I feel like crap. Been going home and wrapping up in hot blankets from the dryer and when I go to bed. :rolleyes:

(((Doody)))...you have been under a lot of stress, and then the weather changes too...I'm sorry you are feeling so bad. I haven't thought about cold weather making it worse, but that would make sense. I have found myself trying to put my heating pad first one place, and then another. I never thought about putting blankets in the dryer, and then wrapping up in them. That is a good idea. Now if I can bring me to pamper myself that way. I have decided to call my new doc today, and ask for pain medicine. I just can't go on like this. There is too much to do, and its too hard to concentrate with pain constantly nagging at you, and keeping you from getting more than one night in a row of decent sleep. I came here to comfort you, and all I do is complain...aacckkkkkk....try to get some rest. I am praying for you and your family...I hope the med helps g-daughter, and that g-doody is healing, and getting better.

Aw ((Mistiis)) you are such a sweetie. I just came in here to complain for sure. Lord love a duck! I hurt! My doc has surprised me by keeping me on a tight string with pain meds and ticks me off, so I have to supplement with ibuprofen. He'll only let me have 30 vicodin every 30 days, period. :p What would REALLY do the trick is some dang percocet!

Yes, when it's this bad, I just walk in the door after work and throw a couple blankets in my dryer. Change into my scrubby clothes and roll up in the blankets on the couch for awhile.

But my sacrum and sacro joints have been in an uproar for about a month now. Get a little better, get worse, get a little better, get a LOT worse, and the LOTS worse is the last few days, on top of the pain. You know the kind...you can push your finger gently anywhere on your body and it hurts!? :p

And YES! go to your doc for help! How many times I gotta tell you that, woman!? :D

(((Doody)))..I hope you are sleeping..yes Lord love us ducks!:D I hear you on pain meds. Its a real quandary for docs :rolleyes:..and, unfortunately, leaves us hurting, unable to sleep, losing patience...blah blah blah, on, and on, :o..I can hardly stand to put this body anywhere right now. Everything seems to hurt it. The nurse called me back and said to come in for lab...to which I promptly reminded him that I already was...they stick me tomorrow:eek:...and then make an appt. to see the doc. ~sigh :( ...maybe its just the change in weather, and it will get better...this too shall pass...at least, I hope so. Those lower back problems are a drag. Maybe you over did it. I hope it gets better. Maybe I will try your blanket idea. It sure sounds nice, and I don't feel like drawing a tub. :hug:

Oh I'm tellin ya Mistiis! I remember so well what took me to the doctor when the fibro first reared its ugly head in a head to toe fashion! They diagnosed me with a 'viral problem' that had spread (stemmed) from some virus and got into my system. Okay, whatever.

I continued to suffer and a few weeks later ended up at my doc again sobbing, telling him how excruiciating my pain was! When would the virus end? He made another referral back to the whatever the specialist is. But, he sent me home with percodan.

I could have friggin kissed the ground he walked on. It took away all of that pain except for the tips of my knees, LOL.

prior to that I went home every night, laid on my couch just huddled in blankets as hot as I could get them...and cried a lot. :rolleyes:

I do think if I went to him right now and told him I am in a terrible flare, he would probably be okay with giving me more or something stronger, but...that would require me to take action and get the appt, LOLOL!

Hope the hot blankets work for you for awhile at least! :hug:

Thanks (((Doody)))...My Neurontin has been increased. And it makes me feel sick, but it does help the pain. I use to have a pain doc who had me on some high gun opiates. It helped the pain but I had no life. So I got off of them. I would like to have something though when I am going through a bad flare. I use to take Bextra when it was still on the market, and it worked so well that I cried when they pulled it from the shelves. Well, onward we march, doing our best...and, yes, warm blankets are nice. :hug:

((Mistiis)) I've thought about asking for Neurontin but the side effecs of it worry me. Have you had any problem with hair loss on it? I highly recommend Nioxin hair products if you do.

:hug:

Hi All of My Friends,

Hi all of my friends,
I hit a wrong button earlier. Don't know what happend. I haven't been on the board in a several weeks. Been really rough. More pain, aching, etc. than normal. Could be all the stress. I now have an attorney that is working my disability claim trying to get the money owed to me. We'll see on that one. Also at my request, my company let me go so I could collect unemployment for at least 6 months. I hoping this gives the DR ample time to narrow down what else is wrong. I have a urologist appt this Friday, 31 Oct for some major bladder issues I've been having. I've been doing some research and that is why I wanted to go to the urologist. I believe I have Interstitial Cystitis (Irritable Bladder Symdrom). I should know something in the next couple of weeks. Just wanted to let you guys know that even when I'm not on the board, I am thinking of each and everyone of you hoping and praying ya'll are getting along well with no major issues. Hugs and kisses to all of my fellow FMS survivors. That is what we are each and everyday that we wake up, get up, etc.

Hi (((Doody))), and (((warblesnap)))...yeah, you're right, I like to think of it that way...surviviors!!! YEA!!! I am sorry you think you might have Interstitial cystitis. I have been tested for that twice. Fortunately my biopsy was negative. I find that I can control the symptoms with diet, and increased water consumption. My brother-in-law has it, and I have watched him struggle with it. Sending you lots of :hug::hug::hug:
Doody, the Neurontin does not make me gain weight, or lose any hair. I take a small dose though, most of the time. I would normally take 400 to 600mg at night only. It really does help. It does tend to make me feel kind of hung over, but not too much when I stay at the lower dose. But lately I have had to increase it to 900 to 1200mg a day, and I don't like the effect at all. I seem to be getting use to it. As soon as the flare dies down, I will reduce the dose again. I think what I need is a good muscle relaxer. The Skelaxin and Mobic make me sick too. I am afraid my doc didn't quite get that message, but I am working on it. Take care, and btw, be sure you do get the proper thyroid test. Not everybody knows about that. I have learned the hard way and have lived to tell others. And believe me, I will tell!!!!!! And I feel sorry for any doc who tries to say otherwise, because more than one has gotten a good piece of my mind. And they can't refute it either..:hug:

(((Betty))) it's good to see you again and what nice things to say! I've been wondering how you were doing.

I hope your tests are negative and you find out what is going on!

You're absolutely right about the getting up every day and I JUST THOUGHT about that early this morning! I woke up hurting and thought, good lord, how do I even make it to work, I hurt everywhere. Usually I don't let myself think about how my body is really feeling.

I SO want to retire but alas it just isn't in the immediate future. Scares me to think about putting in for disability rather than trudging on. I often wonder about how it affects me to keep trudging. :rolleyes:

((Mistiis)) I'm very glad to hear the neurontin works for you! Those meds that make you so sleepy are such a problem for me with getting up in the morning and struggling to think when I arrive at work at 8 am! Talk about brainfog overload.

:hug:

Hi all

I've been off visiting my family for the fall break here. So I've not been
checking in. I also have no answers from the surgeon, she wants to
see the CT scan to see if the hernia has to come out before the gall bladder.

Hmmm, just keep on trucking Donna.

Just wanted to cry my pain is so bad some days. It was bad that day.

I just move and wait. And hope to get answers.

Donna

I agree on the thyroid. I have a low one and they have me on medicine also. I first noticed the weight and then hair loss. After some tests, they told me my thyroid was low. More meds. I just take what I have to when. Thanks for all the replies, hugs and prayers. One day at a time is all any of us can do.

(((Dmom))) Yes, some days you do just want to cry from the all-over pain. At least we are here with people who understand. :hug:

I agree...there are some days that I do actually cry cause I hurt so bad nothing seems to ease it off. I feel for everyone on this board. But when it does get too tough sometimes, it is nice to know we are not alone. Doody is correct in that we are here and we do understand.

:grouphug:..to everyone...it really does help to know you are not alone. Fibro is so mis-understood, and often undertreated. I sit here hurting, and awake, and I am thinking about all of you, and hope you are getting some much needed rest. Earlier in the night I just felt like I had had enough, already:eek:...but we manage to trudge on, somehow...:o :grouphug:

(((Mistiis))) you are up again!? I was sleeping. :o

Last night I crawled into bed with 2 heated blankets from the dryer. Lordy they felt good. I think it's about time I invest in an electric blanket or mattress pad, whichever! Cuddling into that heat feels good most especially on a chilly night. I don't like to sleep with the thermostat too high because then I get too hot and sweat. I prefer the heaviness of the blankies.

Do I need to bring my Trazadone over, hold your nose, and make you take some ((Mistiis))???? :D

((Donna)) I hope you had a nice visit. And yes, fasten your seatbelt and keep on trucking.

I find the extreme fatigue debiltating as well.

I had a massage appointment today. Man I love going. But my
shoulder has been really bad, and its been in my muscles I guess.

And its so bad that I can't hardly move it most of the time. So I
just do what I can. But she did a lot of work trying to get the
soft tissue to release so that it wouldn't get worse.

And my legs were worse than they have been in a long time.
She did a great job as usual. But its going to take a while
to get my muscles to agree.

Donna

Hi Donna. Yes I love my massage therapy as well. I used to go once a month and now go every 3 weeks. She's a treasure. But I'm sure it would do me a lot more good to be able to go 1x a week, but I can't afford that.

That's interesting about your legs. Mine have been bothering me as well.

But do you guys hurt just to be touched? You can touch virtually anywhere on my body and it hurts. Even shaking hands with people. Urg.

Doody...I don't have the all over touch hurting. However, I do have several spots...my lower back, middle back, hips and butt area. When my husband rubs icy hot on me sometimes, I just don't know if it is worth it because of the pain of his touch. I really wish for all of our sakes they could come up with something better that would help.

I use to go get the massages done and they were wonderful. Since I am currently not working, and my husband is carrying all of the bills, etc., we really can't afford it plus I just don't want him to worry about anything more that he has to. My insurance company use to cover it, but now they only cover if all the proper codes, etc are entered on the claim form. The last time I tried, they sent it back almost a dozen times each time wanting more info than the last. It is just a pain. I may ask for a gift certificate for my b-day, christmas, etc. We'll see. Hugs to all.

Okay. I've had my doctor tell me SO many times that FMS and CMP are the same thing. NO they are not. Are they? heh :o They often co-exist. Why does my doctor keep insisting that they are not separate problems?

I'm convinced my primary problem is the chronic myofascia pain. That is why it hurts to touch me any place on my body, and I can sense the all over fascia pain all the time (if I let myself).

I think Starlanyl explains it really well. http://www.sover.net/~devstar/define.htm

I hate this stuff.

What's funny (well not really) is that when I'm being examined by a doctor for whatever reason...and they touch an area and say, "Does this hurt? Does that hurt? Does this hurt?" My answers are always, "Yes. Yes. Yes." no matter where they touch me, LOL!

Doody....sorry for the problems with your DR. Some DRs don't even believe that Firbro is real. They think it is in our heads. I have seen 2 that feel that way and I only went to them once. The link was awesome and explained it perfectly. I am so glad I don't have the all over touch problem. Just the areas are do have are a pain (no pun intended). I feel so bad for you. I sure wish there was something I could do....snap my fingers, etc to make it all go away.

Thanks Betty. No, my doctor totally believes in FM, there's no questioning that. But he keeps insisting that there is no difference between FM and MP. The more I read and hear, the more I believe that the myofascia is a larger problem for me than just the fibro. I can really tell when I have a fibro flare. The pain is ... larger? Deeper? Oh :p I can't explain it.I feel like everything under my skin hurts, LOL. But, maybe it is all encompassed with the fibro.

Where is wendy when we need her to answer something??? :)

AH HAH!!!

Maybe she's talking about my doctor??? LOL :o

http://www.sover.net/~devstar/myopain.htm

Well, tomorrow at 9 am is my annual colonoscopy appointment for the ulcerative colitis.

:yikes: :thud:

:p :p :p

Ugh. It's weird how when you know you can't have food you really, really want it. :p

Brought jello to work today. Oh joy. Get to drink glasses upon glasses of YUCK later and then have oh so much fun for hours on end. :p

:p :p :p

Doc changed the prep on me this year and I am NOT a happy camper!!!!

(((Doody)))...just dropping in real quick to let you know you are on my mind, and in my prayers. I totally relate to that colonoscopy prep...YUCK!!! :o:p...I hope everything goes well tomorrow, and I hope you have some help. I remember how sick I got during the prep. The procedure itself was not a picnic either. :hug:

Well I'm home and started drinking the 64 oz of pure yuck! :( :p

The procedure for me is the easy part! I've been doing this every year since my late 20s because of my ulcerative colitis, and I've hated every single prep.

The 64 oz of stuff is so hard on my stomach. Tummy gets so distended by the end of the stuff. Ick.

Thanks ((Mistiis)). This time tomorrow it'll be allllll over!

Doody...I am so sorry for you. Anytime I have to do the prep stuff it ends up coming out of both ends. That stuff makes me throw up so bad and of course all the hours of fun in the bathroom. Good Luck.

Thanks ((Betty)). Prep was rough. Made it through yesterday but was very weak and my gut hurt when the anesthetic wore off. Slept for about 4 hours when I got home.

He said the ulcerative colitis appeared to be 'non-active' at this time which is good! He did find a big polyp but I won't know about that til later this week.

:hug: