Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 07-29-2008, 01:02 PM #11
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Hi, I'm new to this site. Love it. Hope everyone is having a better week. I'm trying to file for disability thru my employer, at their suggestion, due to injury from work & fibro preventing me from being able to work. problem is my dr doesn't want to deal with it, so info she submitted was very limited & resulted in denial which I am appealing, at the suggestion of the case manager. All very frustrating, which doesn't help us, we know.
I'm going in armed with info tomorrow to see the dr & hopefully will be able to open their eyes about this. They have been my dr for 4 yrs, you'd think they'd have a clue!

anyway have a good week, all. Judy
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Old 07-29-2008, 02:18 PM #12
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I've been lurking for days...hurts to much to sit...I'm having a horrible time right now. I know it will get better, always does...Hugs to you all
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Old 08-12-2008, 09:32 PM #13
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I have both fms and cfids. I'm currently in a flare of symptoms that include migraines also. Weather changes and unusual stress probably triggers this time.

Hugs to us all that deal with this.
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Old 08-12-2008, 11:01 PM #14
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I have also kinda been hiding for days. My level is so not being nice right now that I have been shaking and my muscles feel like they are very weak and wanna give out. I've been having a hard time just walking. Just 1 more weak this I go to the Neurologist. Yahoo....May their can help.
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Old 08-19-2008, 03:43 PM #15
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I was wondering if anyone has a problem with sleeping...not in going to sleep but with going to sleep at the drop of a hat...or shoe...or whatever. I sleep at least 10 a night and then get up and if I sit down to watch TV I will fall asleep. I try to do something with my hands while watching TV, like knitting or folding cloths.

I know it is a blessing to be able to sleep but not this much. Of course I do have my nights where I don't sleep but not very often...
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Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain

“Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo


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Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004

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Watch my Olhipie Skiing....

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Old 08-19-2008, 03:48 PM #16
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Quote:
Originally Posted by Epiphany View Post
I have both fms and cfids. I'm currently in a flare of symptoms that include migraines also. Weather changes and unusual stress probably triggers this time.

Hugs to us all that deal with this.
Epiphany...stress is like throwing gas on a fire to those who have fibro...and I also have problems with weather changes...some clouds can blow through the valley and I'm in a world of pain...hugs to you!!

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Originally Posted by warbelsnap View Post
I have also kinda been hiding for days. My level is so not being nice right now that I have been shaking and my muscles feel like they are very weak and wanna give out. I've been having a hard time just walking. Just 1 more weak this I go to the Neurologist. Yahoo....May their can help.
Warbelsnap...I call them my cave days...pull the blinds and leave me alone.
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Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain

“Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo


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Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004

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Watch my Olhipie Skiing....

.
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Old 08-20-2008, 06:32 PM #17
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Well I certainly missed seeing this thread!

Thank you Flygirl!!!!

I've hardly posted in fibro because it is so slow. So is the arthritis forum so I don't post there much either. But I have both and lordy...well, y'all know what it's like.

Last week was a really bad one for me. Have no idea why, but it was. I finally stayed home from work on both Thursday afternoon and Friday and slept really late on Friday!

I just hate the fatigue, hate it! And so stiff and hurting in the morning.

Anyway, glad to see this thread. Hope it works out.

Hugs and love to all the fibro peeps here. (I'm sure glad there are people who understand this stuff!)
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Old 08-21-2008, 10:36 AM #18
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I am feeling much better today however last night was one of those nights where deep sleep wasn’t going to happen. My pain was like having a non-stop nightmare. I hope that tonight will be better.

Judy…how is your appeal for disability going? Do you have an attorney? The best part of having an attorney was that he did most all of the leg work and knew how to present my case so that I would win. He also didn’t charge me for all he did for the three years he worked for me. I was turned down my fist try as most are. My appeal was a completely different picture. My attorney asked me what was really ailing me….first applied for just my back…then added my fibro, chronic pain and PTSD. When we finally got to the hearing, there present at the hearing was a psychologist and an Employment Specialist. They looked at my fibro and the PTSD as being more debilitating than just my back problems. I guess the combination of all was seriously looked at in making their decision to grant me with disability.

I hope things go well for you and don’t give up….

Oh, hello Doody so good to hear from you...hopefully we can get this thread to go...have a good one!!
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Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain

“Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo


.
Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004

.
Watch my Olhipie Skiing....

.
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Old 08-24-2008, 11:31 AM #19
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Hi Tammi!!!

I'm wondering about redheadjudy as well.

Yeah, those sleep problems. Ugh. I've tried everything for sleep except trying to sleep without an aid! I've finally settled on (for now) Trazadone. I was worried about it being effective, but it has worked! Plus, the extra added benefit of a bit of antidepressant being added to my Prozac routine. It takes about an hour for it to really help, but it does.

My major complaint continues to be the intense stiffness in the morning and that damnable fatigue. I HATE that part!

I mowed my lawn yesterday and that kills me. I have been taking my Bruna for walks each day. Plus, I've been walking on my break every morning and afternoon at work. It's helping the strength in my legs. When winter hits, I'll just start walking around the building I work in unless it isn't too bad outside.

ACK!!!! Fall and winter coming! I don't want summer to go away this year! Usually I like the 'cozy' feeling of being inside and staying warm when it is snowing....but I have really been liking the weather this summer here. Very unlike a normal Iowa summer.

Oh, redheadjudy, my sister was a redhead. She had gorgeous red hair. Well, she was gorgeous inside and out. (She died Dec. 15, 1986 from metastatic breast cancer.)

Hugs to all.
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Old 09-04-2008, 10:34 PM #20
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Ooops! I think I'm kinda late checking in. My fibro has actually not bothered me too bad over the past few weeks. In fact, other than the ever-present pain in my left side and abdomen, I'd say I've felt much better than usual. I hope that everyone else is getting a break, or will get a break real soon. good luck to you all, and all my best wishes!
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