Thanks (((Doody)))...My Neurontin has been increased. And it makes me feel sick, but it does help the pain. I use to have a pain doc who had me on some high gun opiates. It helped the pain but I had no life. So I got off of them. I would like to have something though when I am going through a bad flare. I use to take Bextra when it was still on the market, and it worked so well that I cried when they pulled it from the shelves. Well, onward we march, doing our best...and, yes, warm blankets are nice.

((Mistiis)) I've thought about asking for Neurontin but the side effecs of it worry me. Have you had any problem with hair loss on it? I highly recommend Nioxin hair products if you do.

Hi All of My Friends,

Hi all of my friends,
I hit a wrong button earlier. Don't know what happend. I haven't been on the board in a several weeks. Been really rough. More pain, aching, etc. than normal. Could be all the stress. I now have an attorney that is working my disability claim trying to get the money owed to me. We'll see on that one. Also at my request, my company let me go so I could collect unemployment for at least 6 months. I hoping this gives the DR ample time to narrow down what else is wrong. I have a urologist appt this Friday, 31 Oct for some major bladder issues I've been having. I've been doing some research and that is why I wanted to go to the urologist. I believe I have Interstitial Cystitis (Irritable Bladder Symdrom). I should know something in the next couple of weeks. Just wanted to let you guys know that even when I'm not on the board, I am thinking of each and everyone of you hoping and praying ya'll are getting along well with no major issues. Hugs and kisses to all of my fellow FMS survivors. That is what we are each and everyday that we wake up, get up, etc.

Hi (((Doody))), and (((warblesnap)))...yeah, you're right, I like to think of it that way...surviviors!!! YEA!!! I am sorry you think you might have Interstitial cystitis. I have been tested for that twice. Fortunately my biopsy was negative. I find that I can control the symptoms with diet, and increased water consumption. My brother-in-law has it, and I have watched him struggle with it. Sending you lots of
Doody, the Neurontin does not make me gain weight, or lose any hair. I take a small dose though, most of the time. I would normally take 400 to 600mg at night only. It really does help. It does tend to make me feel kind of hung over, but not too much when I stay at the lower dose. But lately I have had to increase it to 900 to 1200mg a day, and I don't like the effect at all. I seem to be getting use to it. As soon as the flare dies down, I will reduce the dose again. I think what I need is a good muscle relaxer. The Skelaxin and Mobic make me sick too. I am afraid my doc didn't quite get that message, but I am working on it. Take care, and btw, be sure you do get the proper thyroid test. Not everybody knows about that. I have learned the hard way and have lived to tell others. And believe me, I will tell!!!!!! And I feel sorry for any doc who tries to say otherwise, because more than one has gotten a good piece of my mind. And they can't refute it either..

(((Betty))) it's good to see you again and what nice things to say! I've been wondering how you were doing.

I hope your tests are negative and you find out what is going on!

You're absolutely right about the getting up every day and I JUST THOUGHT about that early this morning! I woke up hurting and thought, good lord, how do I even make it to work, I hurt everywhere. Usually I don't let myself think about how my body is really feeling.

I SO want to retire but alas it just isn't in the immediate future. Scares me to think about putting in for disability rather than trudging on. I often wonder about how it affects me to keep trudging.

((Mistiis)) I'm very glad to hear the neurontin works for you! Those meds that make you so sleepy are such a problem for me with getting up in the morning and struggling to think when I arrive at work at 8 am! Talk about brainfog overload.

Hi all

I've been off visiting my family for the fall break here. So I've not been
checking in. I also have no answers from the surgeon, she wants to
see the CT scan to see if the hernia has to come out before the gall bladder.

Hmmm, just keep on trucking Donna.

Just wanted to cry my pain is so bad some days. It was bad that day.

I just move and wait. And hope to get answers.

Donna

I agree on the thyroid. I have a low one and they have me on medicine also. I first noticed the weight and then hair loss. After some tests, they told me my thyroid was low. More meds. I just take what I have to when. Thanks for all the replies, hugs and prayers. One day at a time is all any of us can do.

(((Dmom))) Yes, some days you do just want to cry from the all-over pain. At least we are here with people who understand.

I agree...there are some days that I do actually cry cause I hurt so bad nothing seems to ease it off. I feel for everyone on this board. But when it does get too tough sometimes, it is nice to know we are not alone. Doody is correct in that we are here and we do understand.