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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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05-23-2008, 04:31 PM | #1 | |||
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Elder
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Welcome to the Fibromyalgia and Chronic Fatigue Forum!
I wondered if you might like to have a daily/weekly check in thread to see how everyone is doing? If so, let's start one. I myself haven't been dx'd with either but I do have MS so I do have chronic fatigue associated with MS. How is everyone? I would like to get to know you!
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford Last edited by Chemar; 07-05-2008 at 07:07 PM. |
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05-24-2008, 12:56 AM | #2 | |||
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In Remembrance
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Hey, Cheryl! I have a half-sister by that name. Very pretty. I'm sorry that you are feeling sick right now. I have very little knowledge of MS, but I am quite familiar with CFS and FMS. Both conditions are secondary ones for me, sort of like for you. My primary illness still hasn't been diagnosed, even after six years, twenty-seven doctor and specialists, and seven different hospitals. Right now there are two theories about my condition. One is that I suffer from a rare muscle disease, and the other is that I'm a victim of spreading nerve damage.
I think a weekly check-in is a good idea, especially if enough people get involved. It promotes a sense of comraderie and caring. I really do hope that everyone is having a good week this week, because we all know how these things come and go. Good luck and best wishes to you all! Idealist |
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"Thanks for this!" says: | Curious (05-26-2008), tovaxin_lab_rat (05-25-2008) |
05-26-2008, 09:52 PM | #3 | |||
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Senior Member
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Hi Cheryl!!! Fancy meeting you here! Yes, it probably would be a good idea to have a check-in as this board can be really slow. Thanks for trying and taking the time!
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_____________________________________________ .....Judy SPMS -- FIBROMYALGIA -- Ouch! and Ouch! . |
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"Thanks for this!" says: | Curious (05-26-2008) |
05-28-2008, 02:36 PM | #4 | |||
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Legendary
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CHERYL!! Or Flygirl (FG) as those who know her, like to call her. Great idea. Sorry I'm a lil late at seeing this thread, but I was away last wkend.
My FM has been acting up alot lately, but the weather has been flip flopping from damp and cool to sunny and warm. Nothing consisitant, so my body is not amused. Hope others will check in too. Have a good day everyone!!
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DM . |
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06-25-2008, 11:08 AM | #5 | |||
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Elder
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Well, I see this check in idea is real popular! Come on you guys....let's get going! It's been almost a month since any of you checked in!
Do I have to crack the whip!!! How are you all doing?
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | Doody (08-20-2008) |
06-25-2008, 09:46 PM | #6 | |||
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Member
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Hi. I've been on the board for about 1 week. I'm a 36 year old wife and mother. I have a wonder husband and an awesome daughter. They are my rock..my life raft. Also, look forward to reading the board at night for new posts, etc.
Betty |
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07-01-2008, 05:33 PM | #7 | |||
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Elder
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Quote:
Check in when you can!
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | tamiloo (07-18-2008), warbelsnap (07-01-2008) |
07-05-2008, 01:04 AM | #8 | |||
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In Remembrance
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Ooops! I'm way late, aren't I? I have a terrible time with schedules and remembering to do things on the right day. (Or week. Or month)
I've been doing fairly well, except for a really big flare-up I had last week. But it's pretty much over for now, so I'm mostly back to just the regular stuff. I'm glad to hear that everyone else seems okay! Good luck to all you guys, and I will try to remember to make this a weekly habit! Idealist |
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"Thanks for this!" says: | tamiloo (07-18-2008) |
07-07-2008, 08:19 PM | #9 | ||
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Hi all. I am new to this particular group though I have been a member of NT for over a year. I tend to lurk more than I post, guess I have a hard time meeting people.
My diagnosis of fibro is new er I should say though I have been having some trigger point problems and some other pain issues for years it didn't become really severe until an accident I had in Aug. 2006. They tell me it isn't progressive but you couldn't prove it by me. Then again maybe my diagnosis is wrong all I know is I hurt, all the time. I just finally got a pain management doc this May and he has started me on Nortriptyline daily and Zanaflex which I don't like to take cause it just makes me sleep so I have no idea how well it works. I have only taken it maybe 4 times. The other is doing nothing for me, I go back in August and we try the next thing. I also have osteoarthritis, widespread inflammation (cannot figure cause of this yet), migraines and a couple of other minor things. I am a recovering addict, clean and sober for almost 9 years so in a way I am afraid to stress the need for pain medication. To be labeled as drug seeking. I have never gone to the ER for pain though I have wanted to. Well except for a migraine that scared the beejesus out of me. I put up with the pain instead of demanding a need for relief. My rheumie has flat out stated that the only relief I will get is with medication. I have done everything else. I put up with the injections because the ESIs occasionally turn off the fire that is my pelvis and I pray that eventually this wonderful man that is my new PM doc will catch up with my need for relief. I have a wonderful fiance (please don't ask a date, I am the hold out) who works 10 to 12 hours a day and comes home and takes care of us. I have 2 wonderful boys. One almost 16 who is Bipolar (me too only I am type 2) also ADHD and has Anger and Anxiety issues, is funny, smart, loving, still likes to hug and is not afraid to let his friends know just how much he loves his mom, some days I am cool, some days I am a dork lol. My other is 7 and my love bunny though he unfortunately is reaching an age where he doesn't want lovins as often but will still curl up on my lap and watch a movie with me. I have given up a lot within the last few years that I use to love to do. Cut back on a lot of things. Learning to roll with the punches. Most days I am really tired of living like this. But I go on. Smiles on my childrens faces make it worth it.
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07-18-2008, 01:42 AM | #10 | |||
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Grand Magnate
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OMG...I am so blonde, didn't see this one. I'm am having one of those days where I feel like I'm on fire...one of those days that I have had for over a week of days together. Time to break out the drugs!! As I tell my honey...I hurt so bad my skin hurts. Other than that life is great!!!
Hello all!! Hope we can make a go of this one...good to know that there are others that are hanging out in the fibrozone with me. When I was diagnosed a few decades ago I had never heard of it much less knew how to spell it. Back then you didn't really talk about it....hussssh...now they consider it a disabling disease...who would have thounk it...
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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"Thanks for this!" says: | Doody (08-20-2008) |
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