Hi Denise!
My name is Lisa and I am 41. I have been dx. with RSD in my hand and Fibro.also. I could really use a friend who knows the pain of both. Sorry it took so long but I just recently joined. Thanks, I look forward to talking to you more!

Hi Lisa,
I am so sorry that you also have both of these monsters.
I often wonder if RSD causes Fibro
What came first for you ?
For me it was the RSD. I got it after I dislocated the top of my foot, when I tripped over a child safety gate. Don't laugh it's true.
Oh go ahead it's been 9 years and even I find it funny & ironic it was a safety gate after all LOL
What happened to your hand?
How long ago was it when you were dxed with RSD?
Did you get nerve blocks for it?
Do you visit the NeuroTalk RSD forum ?
Sorry for all the questions
but I am also interested in talking to someone with both RSD and Fibro

I know how it feels for me some days it feels like a truck ran over me in my sleep,some days it feels like I am the rusty tin woman of Las Vegas.
How does it feel for you?I hope you are not in a lot of pain but if ever you need to tell someone this is a great place and you can count on me responding but sometimes it's a few days between my log ons. I like the phone better typing is not my strong point.
I am and artist not a writer so I never learned to type fast I just hunt & peck

I have only just accepted the fibro dx even though my Rheumatologist told me 2 years ago I had it. I just wanted to blame it all on RSD and still want too. Why........ well I put the RSD into remission for a while by giving my sympathetic system a chance to heal, BUT I don't know how to put fibro into remission.
The search is on.My husband bought me 2 books on fibro.I would put up the names of the books but can't remember if that goes against any Neurotalk posting rules.Mostly I have learned I have to move every hour for at least 5-10 min. So I have been setting the oven timer and then, I have to get up and stretch even though my body wants to just sit and try to not feel any pain.I just started this week and am in a lot of pain now, but it's supposed to help bring back muscle tone before you start walking or exercising.I have no muscles left they have shrunk along with my weight before all this I weighed 125-130 now I struggle to keep my weight above 100 for my health I force myself to eat as well as drink a rice protein drink but with no appetite it's hard.
The author of one of the books (a DR with Fibro herself) says you should be getting 8 hrs of good sleep before starting an exercising plan or even changing your activity level.She sounds on track to me so I will give it a try as all the meds especially Soma have me really thinking I am becoming an addict.
I wonder if there is something about muscle relaxers that perpetuate the condition??????????????
Any thoughts about this anyone?
Well this was a lot of typing for me I like to talk a lot if you do maybe we can call each other I have vonage so long distance is free if I call you.
Have A Pain Free Day & Thanks for taking the time to read this long post.
Denise R

Hello Denise~ Nice to meet you. Boy, where do I start?? I have Fibro, Dermatographism, Polymyalgia, Osteoporosis, arthritis, hemangioma on my spine, L5-S1 spinal disc fusion, neuropathy and on top of that~~ A Neuro from Mayo said yes to MS, but wait till the brain MRI shows active lesions. Whew! Guess you can see that your'e not alone in having troubles.

I have a chronic backache every day and it's getting to be the norm. I sleep w/a contour leg pillow between my knees and w/the Fibro, I toss and turn all night.
Glad you found NT, as this place is so informative and everyone here is so helpful.

Make sure you take a look around at the other forum's too, and make yourself at home.

*also a game forum*

Gee, after reading all my complaints, I think I need to lie down.. take care Denise and welcome again.

LOL DM! I think I need to lay down as well after reading that!

Yeah, kind of pitiful, aren't I Dood???? Geez, no wonder I hate my Rheumy!! ha! He keeps giving me new initials to put behind my name. *grin*

I think I have a headache after reading that. hahaha...hehehehe...naw just kidding. But sometime laughter is the only thing that can get us through. Thanks....I did need a laugh.

I just wanted to give all my fellow fibro friends a big hug!!!

Thank you tamiloo...it means the world to us.

hugs right back at you my friend.

I Too Have Fibro , I understand your pain, I feel Your Pain, And I am Sorry For Your Pain. Hugssssssssssss Nice too Meet YOu

Welcome abroad the fibro room. Let us know if we can help.

I'm Donna.

I have a question for anyone around. Not sure if its fibro or one of
my other problems. But I've been having massage therapy, and my
muscles are so tight that its leaving bad bruising.

Any one else bruise really fast and bad.

And what do you use.

Besides ice.

Donna