FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
Reply |
|
Thread Tools | Display Modes |
02-06-2009, 07:21 PM | #41 | ||
|
|||
New Member
|
Hello Denise,
Nice to meet you. So sorry to meet you like this! Well at least we will have alot to talk about. Well have to laugh about something My Name is Charmaine. I live in Sioux City, Iowa. Iam 46 yrs young. I have fibromyalgia. I have had this thing for 5 years.:mad : I have been on Lyricia for 2 years. I've gained 35 pounds(hate my self and all mirror's). because of the lyricia . I have had alot of side affects from this drug, like the weight gain, my tounge swells up(alot) my vision , nerves on top of head, so tired. And on and on. So my problem is I have tried twice in a year to stop taking Lyricia. Oh man, I get like really sick, ichy ,cant eat, really tired. First time I lasted 22 days second time I lasted 9 days. I feel like a 80 yr old .By the way my husband is very , very supportive. He helps me out as much as he can. Could not have asked for a better man! I Tell My husband " I hate to go to bed cause in the morning the pain starts all over again" Not that it ever goes away but at least I got thur the day |
||
Reply With Quote |
"Thanks for this!" says: | tamiloo (02-13-2009) |
02-09-2009, 02:22 AM | #42 | ||
|
|||
Junior Member
|
Hi I'm Crystal, New drug called Savella comes out in March specifically designed for Fibro and fibro only. FDA approved. Make an appointment with your Rheumatologist now, look at the FMA website or google SAvella. Get ready to try something different. Reports show mild side effects and relief as early as one week. I"ve been trying to start a local support group, looks like it's going to be big, I"m in upstate NY, I also do basset hound rescue so I have lot of connections there. Lyrical made me sick as a dog, I hated it.
Start weaning off the Lyrica now. The day is here to try the new one. Have you tried trigger point injections? My rheumatologist is the bomb and they work great. I'm surprised my husband hasn't screamed and ran, especially after my back surgery in November, I can barely do anything yet. I'm so excited about trying Savella and maybe being able to drop a couple pills and have it replace them it's not funny and the time will fly and it'll be on the shelves in no time. I have signed up for email notification for when it becomes available. I'm just tired of having to bring my cane in order for people to realize I'm disabled. What the back brace doesn't speak for itself?? Duh. I"m 34. Just cause I'm moderately attractive doesn't mean I'm not in enough pain to want to beat the next person that crosses my path. LOL. I hope this helps. Just remember, you're beautiful, inside and out, and hope is on the way. |
||
Reply With Quote |
"Thanks for this!" says: | tamiloo (02-13-2009) |
02-09-2009, 01:10 PM | #43 | |||
|
||||
Magnate
|
Hello, hello,
My name is Majo (well, Maria Jose, lol), Im 26, Im from Mexico city... Have fibro... Just got diagnosed last april, and doc gave me lyrica... It worked, except it made my skin incredibly dry, along with my eyes, my mouth and nose. Also, my vision was "funny" I just had to stop taking it because I got sort of "poisoned", my fingers started to burn like hell and I had like little crystals under my skin After 4 days, Im back in pain I miss my lyrica actually !!!! I still need to go and talk with doc to see what I can do... Aw. All my body hurts today. I cant type much in the computer.... ouch, ouch, ouch. Anyway, glad to meet you !!!!! |
|||
Reply With Quote |
"Thanks for this!" says: | tamiloo (02-13-2009) |
02-09-2009, 02:44 PM | #44 | |||
|
||||
Grand Magnate
|
I'm with you on the pain thing. Had back surgery...my 5th last October and it kicked me into a fibro flare that I have never had before.
I do need to go to see my doc, he has to have something that will help. Hugs to all you fellow fibro's!!
__________________
My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
|||
Reply With Quote |
02-09-2009, 07:11 PM | #45 | |||
|
||||
Magnate
|
aw, today has been a bad day... too painful ! My hands, my feet and my knees are KI-LLING-ME ! Ouch...
Im taking B complex to see if it helps... I wonder... |
|||
Reply With Quote |
"Thanks for this!" says: | tamiloo (02-13-2009) |
02-13-2009, 05:33 AM | #46 | |||
|
||||
Magnate
|
Uff.... once again I can not sleep !!!!!!!!!!!
|
|||
Reply With Quote |
"Thanks for this!" says: | tamiloo (02-13-2009) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Secondary Fibro? Fibro-like Symptoms? | Fibromyalgia and Chronic Fatigue | |||
New Med for Fibro? | Fibromyalgia and Chronic Fatigue | |||
Friends turn out to help artist Chun Photo gallery: Friends help ailing artist Peggy | ALS News & Research | |||
Fibro is RSD ??? | Fibromyalgia and Chronic Fatigue | |||
Hello Fibro friends! | Fibromyalgia and Chronic Fatigue |