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-   -   Downhill slide with fibro (https://www.neurotalk.org/fibromyalgia-and-chronic-fatigue/73574-downhill-slide-fibro.html)

piperswife 04-11-2009 09:12 AM

thanks..
 
I have a prescription for Cymbalta. Just have not filed it yet.
I am afraid to. I was on Paxil once and it was a nightmare to get off of, not to mention the amount of weight I gained.
I have tried Lyrica, Tryptophan, ... you name it... nothing has worked.

Right now I am working through throbbing hands and feet, a very very tight chest, shortness of breath and audible wheezing. Does anyone else have this symptom? because I am "labelled" a fibro patient it is near impossible to get any tests or any sort of compassion. How on earth are we to know that EVERY symptom is fibro related??? ...

It just seems like one symptom eases off only to be replaced by another !!

Thank you for taking the time to respond.
I am thinking about getting a hot tub......just for some immediate relief.
I am also thinking of quitting work. :( -- I have a lot of decisions to make. My health is not getting any better. After I post this I actually am going right straight back to bed. My quality of life just sucks.










Quote:

Originally Posted by Fly_Girl (Post 490835)
Hello Piperswife. . . I just found this site today and it is nice to see there are so many people out there dealing with FM. I hate mentioning FM at work becuase I feel that they are just humoring me. By the time I get off work, my hands, arms, shoulders and neck are in so much pain, it hurts to drive.

One thing that has done a lot of good for me was anti-depressants. After the doc dx me, he sent me to a neurologist for confirmation. The neurologist prescribed the anti-depressant. Reading what you have written, sounds like it would be a good start. The anti-depressants also have a nerve blocker in them that assists with the pain. When I worked a consistant schedule, it was like I was a new person.

Also, instead of blankets from the dryer, get you an electric blanket (and an electric wrap for the couch). On days when I hurt real bad, I turn my blanket on high about 15 minutes before I go to bed. When I climb in and feel the heat all around me, my body starts to relax and unknot.


Thumper2 04-12-2009 08:47 AM

I'm sorry you're not getting any relief from the meds and, more importantly, no compassion from your doctor. :mad:

You've been given good advice here but the one thing I can say is that I know that light stretching and exercise do help. They are the last thing I feel like doing but I do know that they help. And when I am having a bad day... I just need to make sure I take a nap on my heating pad. :D

Sorry I am not of more help...I hope others have more ideas. I asked on another thread about SAMe for fibro. I guess no one has tried it. I'm going to buy it today and see if it helps. I heard it helps with aches and pains and also depression.

I wish you all the best and I hope you can get some relief :hug:

mrsD 04-12-2009 09:47 AM

SAMe was mentioned at the pain conference I attended two Springs ago. It was classed as a "mildly effective" thing to try.

We have a SAMe thread going on Vitamin forum right now. I think you could benefit from reading it.

SAMe raises synthesis of neurotransmitters in the brain. One of those is serotonin, which is the major one, along with norepi, a minor one, that are both useful for reducing the pain loop in the brain that Fibro is caught up in. There is a complex pain loop that I can't begin to explain here... they showed it to us, at the seminar. It is way beyond me and others here.
But suffice it to say, it does exist!

I have a thread here from that seminar:
http://neurotalk.psychcentral.com/sh...highlight=mrsd

I am going to see if I can get this stickied...so I don't have to keep searching for it. At the end of May this spring is another conference...which I plan to attend. They will be having another Fibro portion. (This is connected to the University of Michigan and a tertiary specialty pain group that works there).

Sorry to be late to this thread.


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