Since she had a lump for a long time, implies to me a reaction.

Here is a site, which is very controversial but interesting:
http://www.whale.to/vaccine/point.html

Timing...
http://qjmed.oxfordjournals.org/cgi/.../full/96/8/611
I think people vary in the timing to reactions. To assume that they have to be immediate does not take into account that all people ARE different.

http://www.thenhf.com/vaccinations_25.htm

Adults get viruses in the ear fairly often. When vertigo cannot be identified, virus is often the suggested diagnosis.
These tend to resolve over time (can be months).

I hate to bring this subject up: huffing.
Kids that age will experiment with it secretly...since it is easy to get stuff to inhale.
A professional colleague of mine's daughter was doing this!
Freaked my friend out, majorly!
Good kids can get induced by peer pressure to "try" something.
So keep this in mind...and think about the kids she hangs with, etc.
http://www.usdoj.gov/ndic/pubs07/708/index.htm
And this is difficult for a parent and/or doctor to discover.

Also I'd investigate what is going on in Art Class or shop etc.
Solvents like xylol are used in silk screen printing and have neuro effects when used without a protective hood/exhaust system.

Also I'd look for heavy metals. Lead, mercury, cadmium, and arsenic may be found in
some paints/art supplies. Testing for these is fairly straightforward.

I'd also ask your daughter if there is anyone hostile to her, bullying her, competing with her?
Mean girls or boys can spike a water bottle with a drug, like LSD and cause terrible
reactions.
A gal at my old job who was order entry, had her water bottle spiked at work, and
she ended up in the hospital! A police investigation failed to find the person, and
the victim quit the job. Also a teacher in a school near us had his coffee drugged as a
prank/dare by a boy, and this teacher ended up in the psyche ward (reacting since he
was grieving his wife's recent sudden death). Mean things like this happen, and it
is not typically one's first thought.

Cherie - I am so sorry to hear your DD has been sick. As a mom, we always worry. My DD17 went through something similar. The vertigo was so bad she was completely immobile. Like you, I thought oh no, I hope it's not the beginning of MS. I brought her to the ER and they treated her with Antivert and Valium. Of course, this added to the fatigue but it really helped her out a lot. Valium works directly on the vestibular nerve to help relieve vertigo.

She has had 1 other bad attack since that time. It has now been 5 months and she is doing better. She still has some of the aches and pains that you are describing and you now have me wondering. I assumed it was just a virus.

Additionally, when you are checking the trigger points on DD are you pressing on areas that are not trigger points? This would be a great way to figure out if it she is all over achy or only achy at the trigger points.

I think it is great that you got her in to counseling. Whether something is going on that you are not aware (socially) or she is just down from being sick, it is great that you considered this option. You are a good mom who is very thoughtful and conscientious of your DD.

Anyhow, I don't know much about fb but just wanted to let you know that I will be praying for your DD and hope they can get to the bottom of this soon.

Wow, Cherie, I do hope your DD's are both okay. We're just not used to our kids being fatigued, and that immediately gets our attention. Your daughters are blessed to have a concerned and proactive mother.

I hope you get some answers quickly for your 13 yo. Hugs to all!

Thanks MrsD. Phew, what a lot to think about.

Our school system in Canada a fair bit different than the USA, and 13 yr olds are still in the elementary system (like most Gr 5's in the US). They aren't even allowed to wear spagetti strapped tops, or short-shorts or anything revealing. Our schools are also quite small (300 - 400 each) so EVERYONE knows everything about each other. We don't really have poverty/inner-city school issues, guns, drugs, or anything like that. In many ways, they really don't get any exposure to these kinds of things (chemicals, solvents, drugs, etc.). . . at least until next year.

There are the EXTREME few elementary kids that get into trouble like you've indicated, and there is definitely bullying, etc. that goes on . . . but at 13, it's still mostly harmless antics, like sending "secret Valentines". Next year is a whole new kettle of fish though . . . and I know that based on my own personal experience, as well as my eldest's who is almost 17 now.

She is very "developed" for her age, and gets plenty of attention because of that. That brings some obstacles, but she really does not have a lot of freedom to get herself in much trouble. I am home all day, drive her to school and back, and am very up on the friends she keeps. Most times they all spend their time here anyway.

The pediatrician neuro did test her for some things, including drugs and sexual activity, and she confirmed that she has not been up to anything. We have a very open relationship too, and I am fairly open-minded and liberal, so my kids have been straight-up with me for the most part. Some things I don't want to know, but they have an open-door to their family doctor too . . . and any of that conversation is (believed to be, at least in their eyes ) confidential.

I think the immunizations is something to consider, and I will be following up on those links, thanks.

My doctor has always been very frank with me, and yesterday he said "don't go digging around the internet for a dx, Cherie". He said "you know these things take time .... hopefully a LONG time".

I appreciate all the thought you put into coming up with so many ideas, MrsD. I understand all of the things you mention are REAL concerns, no matter where we live, and I have considered them even if it perhaps "sounds" like I am being naive.

Cherie

Hi Trish . . . fancy seeing you here.

Yeah, it's a pretty scary time, all right. She is not getting any better, and in fact the numbness and burning has spread to her legs and feet now. She said today that "in the heat (like shower, under the blankets), I feel more numb, but in the cold, my skin burns more". Sound familiar (to someone who has spinal lesions too)?

I honestly never thought this one might end up with something. She is SOoooo.... much like her Dad in every way, yet my eldest is the spitting image of me. Somehow I thought the eldest would have to be the worry, if either of them. (Not that that would be any better, but at least I 1/2 expected it with her.)

I don't really know anything about fb either, and her doc is not open to that suggestion at all.

I hope your daughter (and mine) are ok . . . and this is just a phase for them.

Thanks for popping by.

Cherie

Hi TT,

It's mostly the numbness and burning skin that has me worried, but I admit yesterday's level of fatigue was a worry too. She probably slept 20/24 hours, and the 4 hrs she was awake, were with her swaying in the wind, with her eyes rolling around in her head, basically. That must be what I look like when I am feeling that way.

I didn't like that he found nystgamus either.

I gave her a naturalpathic vertigo treatment last night (reserving the medicine for "if all else fails"), and she said she still didn't feel good. I happen to have vertigo at the moment too, and it worked great for me. She was able to go to sleep without complaining too much though, so it must have helped enough.

She hasn't complained about vertigo today . . . but that's the way it's been going. That was something the doctor asked too . . . I guess cause it would make sense that it would be more constant if it was the inner ear or a virus of some sort. Her worst time is when she lays down though.

She's home from school again today, since the class went skiing for the day. She really wasn't up for that.

Hopefully things will start getting better soon.

Thanks for stopping in too.

Cherie

Hello Cherie !

I remember I was 16 yo when I started to feel extremely tired... all I wanted was to sleep...
One day, I started to have a terrible ache in my left arm, plus my mood was very irritating... I couldnt give one single step without feeling exhausted, terribly tired and soffocated.... No kidding... I thought something was wrong with my heart, so I ran to my doctor... He examined me and according to him, my problem was gasthritis... I couldnt beleive it at first... I mean, I feel too bad that "only" gasthritis sounded silly to me...
He gave me doloneurobion (dont know its equivalent in U.S or canada) for my aches and something for my poor stomach...
I started to feel normal again in 3 weeks... I didnt feel tired anymore ! So yeah, a simply gastro was causing me ALL those problems....

Now I have fibro anyway so...

Well, just wanted to share the above in case....

Good luck to you and your daughter. Keep us posted !!!

Cherie - Just checking in to see how your DD is doing. I hope all is well and she feels somewhat better. Keeping you all in my prayers.

Hi Trish,

She's a little better in some ways, and slightly worse in others. Without going back and reading all I wrote, the numbness spread this week to include her legs and feet, although it is patchy. The skin sensitivity is on her entire body too.

The vertigo is still really bad, when she lays down especially . . . but she hasn't tried the rx her doctor gave us yet either. I tried the naturopathic stuff and it didn't work, so she has been using 3/4 of a Gravol after laying awake feeling sick for several hours.

(She needs to take the rx with food, so I am going to have to try to remember to give it to her with a snack at night.)

She wakes up nightly with a killer "pulsing" (as she describes it) headache too, so she's been using Advil in the night. Her neck and back are still sore, especially when she lays down (I think she doesn't notice it as much when she is up and about).

I sent an email to her peditrician neurologist last night, but I haven't heard back yet. I know the MRI is going to take time (unless I want to pay, which I am getting tempted to do), but I am concerned about a tumor, spinal injury or ...? Yeah, it could be MS, and I understand that will take time to figure that out if that is what it is . . . but they haven't even tested for much else so I'd like to rule other things out quickly first.

She ended up with a slight cold too, so that probably exacerbated things a bit.

She went to school a 1/2 a day yesterday, and so far a 1/2 day today (haven't got the phone call .... yet).

So, no news at this point, really.

Thanks for your concern and prayers.

Cherie

Thank you bluemajo.

I have always had bowel/tummy issues, and was finally dx with Ulcerative Colitis in the mid 80's, after a colonoscopy. I was treated for that for years, and then I started getting another problem, which was dx as gallstones. We hope the "Ulcerative Colitis symptoms" might magically disappear when I got my gallbladder out . . . but it didn't happen.

Most of my daughters issues are neurological, it seems; tingling, burning, numbness, eye nystagmus, vertigo . . . although all those things do leave her feeling very sick and nauseous too.

I just wish they'd do the testing to rule out everything else.

Cherie