Oh Cherie !!!

Maybe she will start to feel better soon !!! :) You know, 1/2 day ar school is too good :)

My prayers are for her recovering soon.

Keep us posted ! :hug:

I looked up SERC for you. I didn't see anything alarming about it.
It has virtually no side effects and does not interfere with the brain's ability to recompensate for the vertigo.
Things like meclizine interfere with this process.

Recompensation is similar to what happens with the eyes with new glasses, etc. It is important with vertigo.

I'd ask if the vertigo is better if she lies on one side or the other? I have had 3 severe vertigos, all in left ear, so when I would lie down I could lie on my right at least.

Thanks, ladies. :hug:

I have positional vertigo too, MrsD, due to the MS . . . so that was my first thing to try with her. For me, I have to lay POKER straight, with my neck/head/back aligned perfectly, on my side . . . or I get vertigo. It used to be that I could only lay on my right side, cause I never really had too much of a problem that way . . . but now that I figured out it is "positional" on my left side, I can lay that way so long as everything is perfectly aligned.

I put her through those hoops from the get-go; lowering the pillows, stacking them, no pillow, right side, left side, on the back, on the tummy, poker straight, with a pillow between the legs, fetal position . . . Unfortunately it doesn't seem to matter which way she is "laying" (she's much better standing/sitting up, most of the time), but the vertigo is still too much.

I have avoided the SERC so far only because they said it must be taken with food, and she doesn't need a MORE upset or hurting tummy than what she is already experiencing. BUT, I have put it out on the counter now, and I will give it to her with a late night snack, at least one hour before bed . . . whether she "seems" to need it at the time or not.

I SURE hope it works!!!

I got "the" phone call, and she is sick at school. She said that all she has is a movie for the next 2 1/2 hours though (no concentration required), so she's going to try to do it. If not, I guess she'll be coming home today too. :(

Thank goodness for Friday's.

Cherie

Lyme?
 

I'm so sorry that your daughter is ill, I know how horrible it is to see your child suffer.

4 years ago my daughter was mis-diagnosed with "Fibro/CFS", After doing a lot of research, I realized that Fibro/CFS is really a diagnosis of exclusion, which the doctors label those who they cannot find actual diagnoses for.

My daughter ended up testing positive for Lyme disease and Babesiosis- which are tick borne infections. She has done well with treatment, long term courses of antibiotics.

Along our journey, we have learned that the routine lab tests used for Lyme disease are not 100% accurate, if is wise to send out for more specific testing at one of the following labs:

Igenex-*
Clongen Lab
Stonybrook Lab

--------------

Diagnosed as a child.
 

Hi! I was diagnosed with fibro when I was 16 or 17. My doctor and I traced the begining of my symptoms back to about 6th grade. My doctor was amazed at how early my symptoms started. I was also diagnosed with depression in my teens and tried many meds (effexor xr-which was horrible, cymbalta-I pretty much went psychotic, and paxil-I was on for many yrs) I was taken off my paxil just over a year ago and am completely depression free. My parents feel I was miss diagnosed with depression, and it was actually blues from the fibro and/or just being a teenager. I did have problems in school (mainly from the tiredness and not being able to wake up). I had to go on home tutoring in 11th grade bc I couldn't wake up in time for school, and bc of the home tutoring (the school took a long time to find a tutor, and the tutor wasn't picking up my work regularly from the school, and my teachers weren't handing my work into the office for my tutor) I graduated from high school 1yr late. I have since graduated from college with my BS in Psych. I did have problems with college due to the memory loss and brain fog, but it was nice bc I could tailor my schedule to my sleeping habits.
My fibro is in now way undercontrol. I take no meds for it, I just deal with it and live day by day. I have tried Lyrica and would love to go back on it, but it is just way too expensive.
My mine problem in everything that I have gone through was the fact that no one knew what fibro was or they thought it was no a "real medical problem". I found this a lot in my high school. College was much easier, and I made sure at the begining of each semester I would tell my teachers "If it looks like I'm falling asleep it's not you, and I can't help it bc I have fibro"...I didn't run into any teacher that was rude to me about it, they all understood.
The main thing that has helped me is working with my body and understanding it. AKA, knowing when I need to rest, sleep, am able to push myself, etc.

Good luck to you and your daughter.