Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 02-25-2009, 07:57 AM #1
Megan Megan is offline
Member
 
Join Date: Aug 2007
Location: Melbourne, Australia
Posts: 284
15 yr Member
Megan Megan is offline
Member
 
Join Date: Aug 2007
Location: Melbourne, Australia
Posts: 284
15 yr Member
Default Neuropathic aspects of Fibromyagia????

I am wondering how many people with Fibromyalgia and all it's usual symptoms, also have neuropathic symptoms, either sensory, motor or autonomic?

Sensory neuropathy tends to be burning of the skin and other strange skin sensations (parasthaesias) like buzzing, dripping water sensation, electrical currents!

Motor neuropathy can be muscle twitches called fasciculations or more gross abnormal movements like jerks etc.

Autonomic neuropathy can be IBS, postural hypotension, anhidrosis (lack of or abnormal sweating), Cardiac issues like long QT interval, Gastroparesis (paralysed stomach) etc?

I am particularly interested in hearing of others who may have Gastroparesis and to know how prevalent this is in Fibromyalgia. In the Fibro literature I have read to date, there is not a lot mentioned about it but more about IBS (irritable bowel syndrome). However I came across this very interesting link the other day which quite clearly states that many people are mistakenly given the diagnosis of IBS when they really may have Gastroparesis. The link is: http://www.digestivedistress.com/files/pdf/ibs.pdf

I'd appreciate any feeedback on this!

Megan
Megan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
warbelsnap (02-28-2009)
Old 02-25-2009, 06:33 PM #2
BlueMajo's Avatar
BlueMajo BlueMajo is offline
Magnate
 
Join Date: Feb 2009
Location: Mexico City
Posts: 2,708
15 yr Member
BlueMajo BlueMajo is offline
Magnate
BlueMajo's Avatar
 
Join Date: Feb 2009
Location: Mexico City
Posts: 2,708
15 yr Member
Default

Hello Megan !

Well, I will tell you the symptoms I have from the ones you mentioned:

Sensory neuropathy: I have burning of the skin sensation, electrical currents and, I feel like I had thousands of little nails in my fingers and toes !

Motor neuropathy: Yep, I have those too... My arms and legs can "jump" involuntarily and wake me up if sleeping !!! And when awake, my head could move from one side involuntarily too...

Autonomic neuropathy: Abonormal sweating all my life... plus problems with my stomach...

Plus tons of other "weird" symptoms.... Aw, I love fibro !
BlueMajo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GmaSue (03-17-2009), Megan (02-25-2009), warbelsnap (02-28-2009)
Old 02-25-2009, 08:49 PM #3
Megan Megan is offline
Member
 
Join Date: Aug 2007
Location: Melbourne, Australia
Posts: 284
15 yr Member
Megan Megan is offline
Member
 
Join Date: Aug 2007
Location: Melbourne, Australia
Posts: 284
15 yr Member
Default

Hi BlueMajo,

Have the problems with your stomach ever been diagnosed as anything specific? Have you had a Gastric Emptying Study done?

Also have you had your Vit B 12 tested and do you have a good high number? The thousands of little nails in fingers and toes can be due to B12 deficiency.

When you say you have had abnormal sweating "all your life", did that preceed all your other Fibro symptoms? It is interesting, but perhaps we do have some aspects of this condition in a mild form for years before the actual onset of the full blown symptoms. As I look back over my life I am wondering about that!

Sorry about all the questions!

Megan
Megan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GmaSue (03-17-2009), warbelsnap (02-28-2009)
Old 02-25-2009, 10:28 PM #4
BlueMajo's Avatar
BlueMajo BlueMajo is offline
Magnate
 
Join Date: Feb 2009
Location: Mexico City
Posts: 2,708
15 yr Member
BlueMajo BlueMajo is offline
Magnate
BlueMajo's Avatar
 
Join Date: Feb 2009
Location: Mexico City
Posts: 2,708
15 yr Member
Default

Quote:
Originally Posted by Megan View Post
Hi BlueMajo,

Have the problems with your stomach ever been diagnosed as anything specific? Have you had a Gastric Emptying Study done?

Also have you had your Vit B 12 tested and do you have a good high number? The thousands of little nails in fingers and toes can be due to B12 deficiency.

When you say you have had abnormal sweating "all your life", did that preceed all your other Fibro symptoms? It is interesting, but perhaps we do have some aspects of this condition in a mild form for years before the actual onset of the full blown symptoms. As I look back over my life I am wondering about that!

Sorry about all the questions!

Megan
Hey Megan !!!

Well, about my stomach, I used to suffer of constipation... After 25 years, when I was diagnosed with fibro and was given Lyrica and Omegas 3 and 6, my constipation problems have been solved
Also, I suffer of bad gasthritis since I was like 16, so... hum, my stomach hurts badly some days...
I have never had the Gastric Emptying Study you mentioned... I actually doesnt know what is it about... hehe

Im taking B complex pills right now actually and they have helped A LOT with all my neuropathy matters... just my burning feet bothering these days My doctor never checked my B12 levels, but after listening to all my symptoms, aches, pain and complains he gave me vitamin B and Zinc immediately.

Yeah... the sweating (with the constipation) seem to be my first fibro symptoms... since I was born probably... Im sure we have some minor symptoms nobody (not even us realise) since we are born and later on is when we "dicover" we have fibro...
I remember when I started reading about fibro... I was like "I have that sympton, and that one... and that one... plus that one too.. etc, etc..." LOL It was like I never realised my weird symptons were actually symptons... !!! if you know what I mean... I was used to sleep badly... waking up every 2 hours.. and never having a deep sleep, etc... and as I was so used to that, I almost thought it was normal, until I read it was part of my fibro...

BlueMajo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GmaSue (03-17-2009), warbelsnap (02-28-2009)
Old 02-28-2009, 08:24 PM #5
warbelsnap's Avatar
warbelsnap warbelsnap is offline
Member
 
Join Date: Jun 2008
Location: Bonaire, Georgia, USA
Posts: 181
15 yr Member
warbelsnap warbelsnap is offline
Member
warbelsnap's Avatar
 
Join Date: Jun 2008
Location: Bonaire, Georgia, USA
Posts: 181
15 yr Member
Default

Megan,
Thanks for the link. Interesting. I read the info and reread it. I will also be taking it to the doctor with me. I had all but 2 of the symptoms. I also have the neuropathies in various ways. Gotta love it...Not.
__________________
Betty

Everything has beauty but not everyone sees it


.
warbelsnap is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Megan (03-13-2009)
Old 03-12-2009, 09:26 AM #6
DM's Avatar
DM DM is offline
Legendary
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
DM DM is offline
Legendary
DM's Avatar
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
Default

That was interesting, Megan~ Thank you!

Yes, I suffer w/neurology problems as well as FM. It's hard at times to distinguish what is neurological and what the FM contributes to my sx's, and I'm somewhat bull headed when it comes to taking my pain meds to keep it at bay. I heard there is a new drug out for FM, but can't remember the name, but it wasn't Lyrica.

Take care and thanks for the link...
__________________
DM




.
DM is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GmaSue (03-17-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Pain syndromes in tick-borne neuroborreliosis. Clinical aspects and differential diag buckwheat Reflex Sympathetic Dystrophy (RSD and CRPS) 0 02-24-2009 12:23 PM
Neuropathic Pain josephine2007 New Member Introductions 5 02-02-2008 11:06 AM
PSYCHOLOGICAL ASPECTS OF RSD.. article Sandel Reflex Sympathetic Dystrophy (RSD and CRPS) 6 01-09-2007 02:34 PM


All times are GMT -5. The time now is 06:22 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.