NeuroTalk Support Groups - Could this be fibromyalgia?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Fibromyalgia and Chronic Fatigue (https://www.neurotalk.org/fibromyalgia-and-chronic-fatigue/)

- - Could this be fibromyalgia? (https://www.neurotalk.org/fibromyalgia-and-chronic-fatigue/79098-fibromyalgia.html)

Quote:

Originally Posted by sunnydee (Post 543254)

Now, 6 months later, my symptoms are worse and I have extreme fatigue and sleep disorders. I can fall asleep, but can't stay asleep. I remember my dreams, and that makes it harder to get back to sleep. My periods are absolute hell. I went to the gyny a few months ago, and he put me on the pill. But the symptoms during the period thing are so intense.
......

Have you been checked for B12/ B6 deficiency?

Some of your symptoms sound familiar to me... I don't think I even mention it, but I used to have many migrating joint and other musculoskeletal pains. PN is certainly seen in B12 deficiency.
http://jccglutenfree.googlepages.com...ciencysymptoms

B6 deficiency can cause many menstrual symptoms. You can google that, but here is one resource on menstrual symptoms:
http://www.drkaslow.com/html/premens...syndromes.html

R.A. has been associated with food sensitivity as well, and nutritional deficiency and food sensitivity often go together. If you haven't pursued this avenue, you have more to consider. Scan down the page until you see Rheumatoid Arthritis:
http://jccglutenfree.googlepages.com...oimmunedisease

Quote:

Originally Posted by sunnydee (Post 472159)

Hi everyone:

I've been diagnosed with peripheal neuropathy and bilateral thoracic outlet syndrome. But I'm wondering if I could possibly have fibromyalgia since I don't seem to be getting much relief from the meds for peripheal neuropathy.

Here's my story:

I'm a 47 year old female, not overweight, in fact most people call me thin. About a year ago, my TOS was so bad in my hands and arms and shoulder that I had to stop working. About six months later, I started having symptoms in my feet, mostly numbness. This later turned into pain and moved up my shins, into my knees and the thigh muscle immediately above the knee. Whenever I had my period, the pain is magnified and also in my hips.

Recently I started having stiffness in my feet, heels, and back of the calf in the morning after waking up. The stiffness doesn't last very long. I'm getting tremoundous headaches in the front of my head that ibuprofin can't fix. I'm also waken in the middle of the night by headaches.

I work out 5 days a week, and this does help. The gym has a machine that allows me to stretch my neck, shoulders, legs, etc. Mostly my pain is in my knees and shin area. I've seen many doctors and have had many tests, but they all come back normal.

Since the onset, I've had two surgeries for TOS (with some relief), but whenever I sit at a desk to work or get in a car to drive, the symptoms are much more intense.

I don't have extreme fatigue which seems to be a symptom of fibromyalgia, but I'm wondering if my other symptoms sound like I could have it.

Any suggestions are welcome.

Thanks,

Sunny

i was recently diagnosed with fibro. i have had Myasthenia gravis for 8 years. i have terrible fatigue. i absolutely feel that i cannot make myself do anything at times. i also have terrible headaches which i have never had until recently. i read somewhere that fibro is considered a sleep disorder because ppl can not sleep well or much at all. also if they do sleep they do not feel rested. i can say that is true in my case. i feel so worthless sometimes. i worked as a psychiatric nurse for almost 30 years and i was very much type A. also in reading i have read that fibromyalgia generally strikes ppl who are type A personalities. hope this helps. i fight depression all the time because of the drastic life changes in the past 3 or 4 years.
kater

Quote:

Originally Posted by sunnydee (Post 472159)

Hi everyone:

I've been diagnosed with peripheal neuropathy and bilateral thoracic outlet syndrome. But I'm wondering if I could possibly have fibromyalgia since I don't seem to be getting much relief from the meds for peripheal neuropathy.

Here's my story:

I'm a 47 year old female, not overweight, in fact most people call me thin. About a year ago, my TOS was so bad in my hands and arms and shoulder that I had to stop working. About six months later, I started having symptoms in my feet, mostly numbness. This later turned into pain and moved up my shins, into my knees and the thigh muscle immediately above the knee. Whenever I had my period, the pain is magnified and also in my hips.

I am wondering

Recently I started having stiffness in my feet, heels, and back of the calf in the morning after waking up. The stiffness doesn't last very long. I'm getting tremoundous headaches in the front of my head that ibuprofin can't fix. I'm also waken in the middle of the night by headaches.

I work out 5 days a week, and this does help. The gym has a machine that allows me to stretch my neck, shoulders, legs, etc. Mostly my pain is in my knees and shin area. I've seen many doctors and have had many tests, but they all come back normal.

Since the onset, I've had two surgeries for TOS (with some relief), but whenever I sit at a desk to work or get in a car to drive, the symptoms are much more intense.

I don't have extreme fatigue which seems to be a symptom of fibromyalgia, but I'm wondering if my other symptoms sound like I could have it.

Any suggestions are welcome.

Thanks,

Sunny

What sort of foot symptoms are you having? I have fibro. and recently started having pain, and burning in my feet, and numbing in my legs. My podiatrist started me on neurontin a few weeks ago because he thought I might have some sort of nerve problem, although the nerve test they gave me yesterday came back negative.

im new to the forums and i kinda wish i had read this before i posted mine. mine is very similar to yours on a bad day. everything you listed and the docs cant decide what i have. please read my post and maybe we can swap advice :)

This post is from 2009.

Quote:

Originally Posted by sunnydee (Post 472159)

Hi everyone:

I've been diagnosed with peripheal neuropathy and bilateral thoracic outlet syndrome. But I'm wondering if I could possibly have fibromyalgia since I don't seem to be getting much relief from the meds for peripheal neuropathy.

Here's my story:

I'm a 47 year old female, not overweight, in fact most people call me thin. About a year ago, my TOS was so bad in my hands and arms and shoulder that I had to stop working. About six months later, I started having symptoms in my feet, mostly numbness. This later turned into pain and moved up my shins, into my knees and the thigh muscle immediately above the knee. Whenever I had my period, the pain is magnified and also in my hips.
Recently I started having stiffness in my feet, heels, and back of the calf in the morning after waking up. The stiffness doesn't last very long. I'm getting tremoundous headaches in the front of my head that ibuprofin can't fix. I'm also waken in the middle of the night by headaches.

I work out 5 days a week, and this does help. The gym has a machine that allows me to stretch my neck, shoulders, legs, etc. Mostly my pain is in my knees and shin area. I've seen many doctors and have had many tests, but they all come back normal.

Since the onset, I've had two surgeries for TOS (with some relief), but whenever I sit at a desk to work or get in a car to drive, the symptoms are much more intense.

I don't have extreme fatigue which seems to be a symptom of fibromyalgia, but I'm wondering if my other symptoms sound like I could have it.

Any suggestions are welcome.

Thanks,

Sunny

Sunny there are so many symptoms that go with having fibro. There is a blood test, amoung others, that you can get now. Look up the symptoms of fibro online and check out the pain points that people have that have the disease. Check them out on your body. Each one will feel like a bad bruise.
If you have these bruise like points on your body, I would find a Dr. that knows and works with fibro patients. Good luck to you. Blossom25