Any Fibro folks out there?

would love to hear from old or new friends

love,
Linda25

hi Linda

How are you doing?

Hi!

I was diagnosed about 3 years ago-no drugs ever and only one appt. The pain is so bad in my arms right now I can hardly stand it. My GP seems to think fibro's a mental thing and the specialist he sent me to was totally weird & rude. He almost seemed disappointed that I didn't have something more interesting for him to diagnose and treat.

I live in the Milwaukee area, is anyone else near me? I really need to find a new/better rheumatologist and don't know who to see. The pain is not getting easier and the fibro itself is obviously not going away.

Hi Wittsea - very good to see your name again. How are you???

I'm having trouble with migraines, but my fibro isn't too bad (other than fatigue ) seems like I can never get enough sleep. But I've been working out a lot and exercising and that helps me a lot as long as I don't overdo it and hurt myself

Elizabeth - I'm sorry you've had such a terrible experience with doctors. If possible, I would get a new GP. See if there is a Fibromyalgia support group in your area - the local Arthritis foundation can probably refer you to one - then ask folks in the group who the good docs are - I think that is the best way to find a good Rheumatologist. Good luck, it sounds like you really need to find someone who will take you seriously.

nice to see you ladies, have a great day

Hi fellow fibros!

Elisabeth, that's really sad about your doctors there. There are a lot of good fibro support groups on the internet.

I like this one, but there are many.

http://www.fibrohugs.com/

And another: http://groups.msn.com/FIBROWHAT/welcome.msnw

For a long time I waited for Cymbalta (an antidepressant) to come out on the market. I remember a Braintalk member who was part of their trials. Anyway, it's touted to help Fibro and other physical problems.

So I started on it and went up to 90 mg. My doc told me that he had gotten information that for pain Cymbalta wasn't effective enough at 30 or 60 mg, but that 90 was the magic point. I told him I wasn't all that sure that it was helping my fibro, but that I hadn't had any major flares.

Well recently, a month ago, I went down to 60 mg because I didn't think that it was helping my depression enough and thought about going off. I was absolutely flabbergasted at what happened.

I awoke one morning with this familiar pain. My feet hurt, my hands and arms ached, etc., etc. And I thought to myself, oh my god, it has been helping my pain. I had forgotten how it felt to be like that on a daily basis.

Fibro is not in your head! Have you been to an arthritis specialist? I forgot what they call those doctors. (Hey! I didn't say that Cymbalta has improved my memory problems!) I hope you are able to get in touch with some good doctors.

Hi Folks,
I wanted to add that cymbalta has helped me with so many areas, I also was on 90mg a day and had to go back down to 60 because of my ins. and couldn't afford it and 60 helps but it doesn't do what 90mgs did for me.

LindaM

Yes! The difference between 60 mg and 90 really surprised me!

Although I think I'm experiencing a fall fibro flare. Wish I had stayed with the 90 now but I had to find out for myself. I thought it might be responsible for 'suicidal ideation' I was experiencing frequently in the last year which wasn't normal for me.

I think it was probably just life stressors workin at me.

Hi there. I'm new and glad to know y'all.

I live with fibro and trigeminal neuraligia.

It's good to be here.

KD

Hi KD and Welcome to the BT2 forums

Thank you, Wittesea.

KD