[Happygeek]

I was diagnosed with CRPS 3 years ago and now my PM doctor is thinking it could be fibromyalgia...anyone else have this happen? I am so confused, in so much pain, and just plain tired of not feeling good and not knowing definitively what is wrong with me....
Any input would be appreciated
Lisa (trying to be the "happygeek"!!)

[Doody]

That is confusing. And frustrating! Before I was finally diagnosed with FMS, I was told twice in a couple of months that I had a bad, full body virus and had to wait it out. I was given pain meds, which I was very grateful for!

Went back the 3rd month, crying with pain and was finally sent to a rheumatologist. He diagnosed the fibromyalgia.

Not sure what kind of insurance you have, or how easy your primary doctor is to work with. I would suggest asking for a referral to a rheumy.

Maybe you will see yourself in one of the following links.

This link describes CRPS.
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0004456/

This link describes fibromyalgia.
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001463/

[Jomar]

Sometimes it is possible to have both conditions, if there isn't a clear distinction of one or the other.

[Happygeek]

Yes...I am seeing a rheumatologist but can't get in till June 14th....my pain management doctor is great he is just as confused as I am but more than willing to keep me on my prescribed course of meds so there is no concern there. I have seen this rheumatologist at the beginning of my CP journey and since I tested negative for the RA factor she sent me on my way...but now after 3 years of CP and tons of RA and fibro symptoms I am being sent back...the yo yo-ing begins...
On a somewhat happy note...my insurance finally approved Botox for my migraines...and I am getting it done today. So maybe I will have less headaches and look younger for my daughter's wedding in October, lol!
Lisa

[Doody]

That's awesome Lisa! Glad you have an appt with the rheumy and hope you check back with the results of the visit. Wonderful on the Botox. Until I hit menopause, I had horrible migraines since my 20s. The emergency room type migraines. I didn't know Botox could be used for those.

For the migraines I get now on occasion, I try plain aspirin first and when that doesn't work, get out my trusty Imitrex nasal spray.

Anyway, congrats!

[Happygeek]

I saw my rheumatologist today and she believes that I do have fibromyalgia. I am getting a full blood workup to check for other autoimmune issues. She said I seemed to have a lot of inflamation and she wanted to see what that was all about...anyone else have a problem with imflamation?
THanks for any help
L