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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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04-11-2009, 07:02 AM | #1 | |||
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How do you get through your worst "most painful" and "most draining" days with Fibromyalgia?
I think things get worse when the pain gets so out of control, that I cannot rest well trying to sleep, like last night. I almost feel like I have the flu today. It's UHHHHHHHHHHHHHHHH. Makes me want to scream! Has anyone tried SAMe for fibro? I heard that it helps with the aches and pains and also helps with depression. With all the MS drugs I'm on I hate to add another drug to my arsenal
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04-20-2009, 04:50 PM | #2 | |||
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Thumper -- I wish I had the answer to your question, especially today! With all the rain, the pain is horrible. Nothing seems to help except just sitting still, staring off into space "vegging out". Sure wish they would come up with something safe for us to take having MS too. Here's hoping for more pain-free days!!!!
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_____________________________________________ .....Judy SPMS -- FIBROMYALGIA -- Ouch! and Ouch! . |
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04-21-2009, 03:01 PM | #3 | |||
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Legendary
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Hey Thumper and Judy! I know exactly what you both are saying. We have had rain since I got home from NC and yest I could hardly get out of bed. I had to wake my DH in the middle of the night to get me pain meds, as I couldn't get up and I hated waking him, b/c he had worked 12 hrs. But, I didn't have a choice, as the pain was unbearable.
I hate FM!! I hate FM!!! I see the musculoskeleral Dr on Thurs and I am going to beg her to help me. I do see a Rheumy for my FM, but I need another opinion on how to stablize this disease. I have not taken SamE, Thumps~ so would be curious to see if anyone has any knowledge of it. I'm at a point where I would try just about anything. I do take Tramadol, but it just takes the edge off. Lyrica is a no go for me as tried it a few yrs ago. Just know that you are not suffering alone~ Did I mention I HATE FM???? Hope you *and the rest of us* get some relief soon. Take care. Oh and my Fibro Fog has been raging lately and it kind of freaks me out.
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05-01-2009, 05:15 AM | #4 | ||
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hey all,
i have come to the conclusion that this recent flare i am in is caused by the tos...........they found that along the way to my ms dxs. the pain was unreal. i wil be seeing a rhemy soon and hope to find soom answers, have skalaxon for which seems to help however he gave me lunesta and here i set with another sleepless night sigh how can you sleep in pain???????? |
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05-02-2009, 01:04 AM | #5 | |||
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Grand Magnate
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I need to be in bed but I decided to see what you all were doing. I am feeling every bit of what you all are going though. I didn't sleep Tuesday and Wednesday night. Last night I got a few hours. But how restful are they. Everytime I sat down to watch tv with my honey I dozed off and then woke up in more pain...feels like my skin is on fire...flu is a great discription.....the weather has been windy and is brewing for about four days of rain. I have too much to do...dishes that are so bad that no one wants to do them...so they sit there and grow...
I'm going to try to get some rest...don't know how successfull I will be... If I could just catch up.....
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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05-02-2009, 03:59 AM | #6 | ||
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Junior Member
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Don't they give antidepressants for FM anymore? I was diagnosed with it in the 80's and the antidepressants worked pretty well for me because I got good sleep. Now I'm on a combination of low dose prednisone, Trileptal and Lyrica and that works pretty well for me although at times of stress, I can feel my elbow trigger points getting pretty painful. I'm taking these drugs for PN, though.
Oh, and I'm on Flexiryl at bedtime and Vicodin as needed for this, too. The combination or all these things works well for me. |
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07-28-2009, 06:21 PM | #7 | ||
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Junior Member
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Quote:
I was just wondering... do you have tos and fibromyalgia? or just tos? |
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"Thanks for this!" says: | tamiloo (07-29-2009) |
07-29-2009, 04:07 PM | #8 | ||
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Legendary
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Back again, I've added magnesium too my medications. And I take cinnamon on a irregular bases. I need to make sure I take it more correctly I think.
I'm getting ready to switch from cymbalta to a different medicine, but not sure which one. The pain medicine office didn't give me the samples. So I have to go back for them. But if it doesn't work back to cymbalta I go. I am guessing from the sound of it its the savella. I'm a little nervous from what others have said, but it makes sense what my doctor said. So we will see. Donna |
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"Thanks for this!" says: | tamiloo (04-20-2010) |
07-02-2009, 09:21 PM | #9 | ||
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Member
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a friend of mine does cardio,,she say;s it lessens the pain,,,bobber
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07-02-2009, 10:57 PM | #10 | |||
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I wish I could move around enough to do cardio
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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