How do you get through your worst "most painful" and "most draining" days with Fibromyalgia?

I think things get worse when the pain gets so out of control, that I cannot rest well trying to sleep, like last night.

I almost feel like I have the flu today. It's UHHHHHHHHHHHHHHHH. Makes me want to scream!

Has anyone tried SAMe for fibro? I heard that it helps with the aches and pains and also helps with depression. With all the MS drugs I'm on I hate to add another drug to my arsenal

Thumper -- I wish I had the answer to your question, especially today! With all the rain, the pain is horrible. Nothing seems to help except just sitting still, staring off into space "vegging out". Sure wish they would come up with something safe for us to take having MS too. Here's hoping for more pain-free days!!!!

Hey Thumper and Judy! I know exactly what you both are saying. We have had rain since I got home from NC and yest I could hardly get out of bed. I had to wake my DH in the middle of the night to get me pain meds, as I couldn't get up and I hated waking him, b/c he had worked 12 hrs. But, I didn't have a choice, as the pain was unbearable.

I hate FM!! I hate FM!!! I see the musculoskeleral Dr on Thurs and I am going to beg her to help me. I do see a Rheumy for my FM, but I need another opinion on how to stablize this disease. I have not taken SamE, Thumps~ so would be curious to see if anyone has any knowledge of it. I'm at a point where I would try just about anything. I do take Tramadol, but it just takes the edge off. Lyrica is a no go for me as tried it a few yrs ago.

Just know that you are not suffering alone~ Did I mention I HATE FM????

Hope you *and the rest of us* get some relief soon. Take care.

Oh and my Fibro Fog has been raging lately and it kind of freaks me out.

hey all,

i have come to the conclusion that this recent flare i am in is caused by the tos...........they found that along the way to my ms dxs.

the pain was unreal. i wil be seeing a rhemy soon and hope to find soom answers, have skalaxon for which seems to help however he gave me lunesta and here i set with another sleepless night sigh how can you sleep in pain????????

I need to be in bed but I decided to see what you all were doing. I am feeling every bit of what you all are going though. I didn't sleep Tuesday and Wednesday night. Last night I got a few hours. But how restful are they. Everytime I sat down to watch tv with my honey I dozed off and then woke up in more pain...feels like my skin is on fire...flu is a great discription.....the weather has been windy and is brewing for about four days of rain. I have too much to do...dishes that are so bad that no one wants to do them...so they sit there and grow...

I'm going to try to get some rest...don't know how successfull I will be...

If I could just catch up.....

Don't they give antidepressants for FM anymore? I was diagnosed with it in the 80's and the antidepressants worked pretty well for me because I got good sleep. Now I'm on a combination of low dose prednisone, Trileptal and Lyrica and that works pretty well for me although at times of stress, I can feel my elbow trigger points getting pretty painful. I'm taking these drugs for PN, though.

Oh, and I'm on Flexiryl at bedtime and Vicodin as needed for this, too. The combination or all these things works well for me.

It seems Doctors today are quick to prescribe Lyrica and Cymbalta as the CURE for Fibro.. they are not.. If your one of the lucky ones, they do help.. I am not one of the lucky ones, I am one of the ones that have tolerance problems with medications (a fibro symptom) . Sleep is the one thing we need! more than anything else.

I am currently on imapramine a 45 year old medication, that along with flexeril helps me sleep 4-5 hours on a good night. much better than the 1-2 hours i use to get.

If you can get the sleep, and along with some mild pain medications you will feel better during the day.

Hope you feel better

Make sure you tell you doctors and pharmasist about the samE if you decide to try it. I've heard NOT to use that or St Johns Wart if you are on an antidepressant.

They do!!! All the time, and it anoys me no end. They keep telling me it is because of my Fibro that I feel the pain from my PN so bad, but that since I am on Lyrica nothing more can be done as Lyrica is the ONLY/BEST thing that works for Fibro. URG!

I tried Cymbalta when it first came out. A woman on another forum was in their trials and loved how it helped her.

Until I went off the Cymbalta, I hadn't realized just how much it was helping with the fibro. However, as an antidepressant, I thought it sucked. So, I ultimately quit it for that reason.