Nice to meet you too Doody :) Thanks for the links, I have a copy of the letters already, but others do not! I wish I could say I am one of a kind but unfortunately I am not.. I know of a few other guys with fibro.

There used to be a male veterinarian who posted here and at another board who had fibro and fixed it with going gluten free, and removing casein and later soy from his diet.

If anyone is interested, PM me and I will give you his website.

well ... have been on the lyrica for over a month now ... really am not sure what i am suppose to be getting in the way of benefits ... i am always over doing it, what with the job, the house, the kids, and frank ... frank says i am sleeping better so i guess that is good ... and so far no weight gain ... no weight loss either .... my hips seem to be my largest problem as they are always in really bad pain ...frank gives me one of his pain pills when it gets really bad and i am in tears ... guess i am going to have to ask doctor for pain medication

Well It's good to hear that you are tolerating the Lyrica ok, your doctor will probably up the dose, some people don't get relief until 300 - 450 max a day.

Sleeping is a great benefit, My doc has put me on low dose Cymbalta to see if I tolerate it, if so he will double the dose in two weeks.

Having some pain meds on hand is not a bad idea either

Stay well, and take it a little slower :)

Hi Deb.
If you have still not obtained any pain meds, I would suggest you ask the Dr. for Tramadol (Ultram). It is my savior. I take 2(50 mg. each) tablets 4 times a day. I have been on so many meds for Fibro, including many narcotics in high doses and none have helped me as much as Tramadol. It also helps with the lack of energy and is gentler than Provigil.

Also, just last month I had my Dr. check my Vit D level after I read on this forum about how Mayo Clinic did a study which showed low levels of it can increase muscle pain a lot. My level was extremely low and I am now taking D3 Cholecalciferol 2000 IU/day and will have my blood retested soon.

:hug:Sending you big big hugs and hope, Sue:hug:

Hi, my diagnosis was hard to get. And its been a thing that after having
neurotin added to my already cymbalta. I had less problems.

I'm starting to have more, but I know I have to watch how much zanaflex
and neurotin I'm taking I wasn't getting enough in a day. I guess feeling
better I feel down a little.

Donna

Tramadol does work wonders, but be careful- you are being carefully watched by the pharmacy when on this drug and your doctor is getting a report about how often you fill it... I found this out when I had no other help for my pain which was suddenly steadily increasing and my pain doctor started ignoring me for weeks... so I started taking an extra half pill every so often... and when I tried to refill early i got in big trouble- no more pills for me- I had to go through full withdrawal for several days and at my appointment with my neuro he told me he got reports about how many pills I get and how often I refill and how many I am taking. And as a result I was not allowed any more, which made life a lot harder, and still does as I know if I had something to keep the pain at bay when I wanted to do something, or go to sleep on a bad day I could have had something- but can't anymore. Just knowing it is out there and I am being shut out from the help is very hard.

Tamiloo

ITs the same way for me with the medicines my pain doctor prescribes.
I have to call and get a refill. I've had trouble getting through to the
office so I had to take myself down one pill on the one medicine
so I can stretch it long enough. But its worth it to get to my appointment.

Its just this last month that its been necessary, but I can sure feel it.

Donna

Hello
 

I think Tramadol is very helpful, as well as Cymbalta. I hope you feel better soon.:)