Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 09-17-2010, 07:04 AM #31
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Another factoid.... ribose is not found in foods so we cannot get it that way. It does comprise riboflavin (vitamin B2) but we consume small amounts of that also.

Ribose is made from other things inside us, and if this fails, then we can't make adenosine, which is essential for energy production in the body. Like many things we find failing as we age that become genetic failures, ribose is getting much more attention these days.
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Old 09-17-2010, 06:23 PM #32
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Mrs. D, thank you so much for jumping in! If the ribose helps with energy levels, it's definitely worth a try. Right now with my huge pay cut, anything looks to expensive to me. But I'll check it out. I'll look at your links and see if you've said anything about the best place to buy the ribose. Thank you!
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Old 09-20-2010, 07:58 PM #33
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Default I too..

I also have RSD in my left foot up to my knee. I was also dx with the fibro mounster. The Savella cost me $50 for 30 and i have ins. its just new they say. I think it might have been helping but i didnt take it long enough.

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Originally Posted by chelerae View Post
I was diagnosed with RSD/CRPS over a year ago and was diagnosed with fibro. a couple months ago.
I take 3600 mg of neurontin
60 mg of baclofen
600 mg lyrica
400 mg celebrex
10/325 hydrochodone when needed
I was taking 120 mg of cymbalta but at my last visit to the pain doctor I told them about my fibro. diagnosis and they decided that I could try Savella for pain but that I had to get off my cymbalta. My pain has been getting worse and my SCS isn't working as well as it used to, so I think that is why they want to try something new. I haven't heard or read about anyone trying this med. and hoping to find some insights into it.
Apparently it is used as an anti depressant in Europe and is only approved for fibro. pain in the States.
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Old 02-07-2011, 10:50 AM #34
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Default Savella for fibro pain anyone????

Hi, I can't add much yet. I was on it for a month. my pain clinic prescribed it for fibromyalgia. I swear it helped the first day. The second day I had a week long pain episode that was the most severe I've had. I think it's because of all the poking and rough treatement from my nurse practitioner at the pain clinic to see if I had fibro. She set it off. They have so far given me samples because it is so expensive. My primary Dr. wanted me to change to Cymbalta
because she could get cymbalta samples. I've been on Cymbaqlta a week but after reading all the horor stories of people trying to get off it, I'm going to request going back on Savella. No horor stories yet. It isn't old enough. I did have strong side effects. The nausea and some mental stuff. Glad that's gone. After I'm back on it, I'll check back to this forum. Good luck with yours.
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Old 03-09-2011, 06:18 PM #35
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Quote:
Originally Posted by chelerae View Post
I was diagnosed with RSD/CRPS over a year ago and was diagnosed with fibro. a couple months ago.
I take 3600 mg of neurontin
60 mg of baclofen
600 mg lyrica
400 mg celebrex
10/325 hydrochodone when needed
I was taking 120 mg of cymbalta but at my last visit to the pain doctor I told them about my fibro. diagnosis and they decided that I could try Savella for pain but that I had to get off my cymbalta. My pain has been getting worse and my SCS isn't working as well as it used to, so I think that is why they want to try something new. I haven't heard or read about anyone trying this med. and hoping to find some insights into it.
Apparently it is used as an anti depressant in Europe and is only approved for fibro. pain in the States.
I have been using Savella for prob 6 months or so, It has helped some. I looked into Lyrica and Savella and chose Savella because there seemed to be less side effects and what not, I only take 50 mg twice a day. When the weather changes Im in pain, when things are steady outside I have not experienced as much pain. I would recommend it. There is a website for it
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Old 03-10-2011, 01:16 PM #36
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Quote:
Originally Posted by Dawnall View Post
I have been on Savella since July for my fibromyalgia. The only difficulties I had were each time he increased the dosage, I would have a couple of days of increased symptoms. I'm now on full dosage and my fibro is so much better and I've not experience any marked issues with side affects.
What is the full dosage available on Savella
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