Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 07-23-2009, 03:08 PM #1
GmaSue's Avatar
GmaSue GmaSue is offline
In Remembrance
 
Join Date: Dec 2008
Location: Iowa
Posts: 613
15 yr Member
GmaSue GmaSue is offline
In Remembrance
GmaSue's Avatar
 
Join Date: Dec 2008
Location: Iowa
Posts: 613
15 yr Member
Default Sounds causing extreme stress and pain

I always have this to some degree, but there are times it is simply horrendous. Lately, it has started amping up again, and I have been trying to figure out a new way to handle it or try to stop the progress towards unbearable pain. I have written a thread abt this before-but more from a technical angle. Now I am just wondering abt more general questions. How many of you with Fibro have this? What are some ways you have dealt with it? Have any of them worked?

It seems like if I know where the noise is coming from or have anticipated it-I can shrug off the pain easier. Any unexpected noise or talking can really start the electrical feeling and a sinking feeling in the pit of my stomach. I know from experience what will happen next if I can't get this turned around. I will be battling with thoughts centered on "I cannot endure this any longer."
__________________
~
.
~
~~~~~hua.org~~~~~
Hearts United for Animals
has lots of "magic pain pills"
just waiting to be adopted!
GmaSue is offline   Reply With QuoteReply With Quote

advertisement
Old 07-23-2009, 09:06 PM #2
Mere's Avatar
Mere Mere is offline
Member
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Mere Mere is offline
Member
Mere's Avatar
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Default

I think anytime an autonomic response to something such as sound or other stimuli can flare FMS. I find that in my own situation. I try to mentally suppress the adrenaline rush or, I will call it unnatural stimulus (response to a loud noise or stressful situation) when I feel it happening. Unfortunately, it is difficult to do but I have had some success in doing this.

Mere
Mere is offline   Reply With QuoteReply With Quote
Old 07-27-2009, 10:28 PM #3
DejaVu's Avatar
DejaVu DejaVu is offline
Senior Member
 
Join Date: Apr 2008
Posts: 1,521
15 yr Member
DejaVu DejaVu is offline
Senior Member
DejaVu's Avatar
 
Join Date: Apr 2008
Posts: 1,521
15 yr Member
Default

(((GmaSue)))

Oh, dear! That is the pits!!!
It is an amplification of sensory information...and really can be so incredibly distracting and also very painful!

I go through this, too. I would not wish it upon anyone!

I am a bit over stimulated right now, in fact. I need the air conditioners going, because the heat and humidity set off more neurological pain and other symptoms. Yet, eventually, the noise becomes so loud!
Once it gets that "loud," it can then also become distorted!

What to do?

I do several things, depending upon what my options are at the time.

I can find a way to calm my central nervous system. This can include deep breathing exercises, etc. I do try to eliminate as many noises as possible, especially ongoing background noises. (Not always possible.)
Sometimes, ear plugs help me; other times, not so much!

Sometimes I have to use a med to calm my CNS a bit.

I think, for me, timing of the intervention is everything!
The earlier I "catch it" the better!

I am tired just now, sweetie! I am going to have to think on this.
I will write again when my mind is clearer..and my AC is not buzzing through my head!!! LOL!

Can you get away from the noise? Or can you eliminate it?
Maybe you are asking about what to do when one cannot escape it in any way?

This is a great question! I, too, am very interested in any answers!

I hope you can sleep well tonight ((GmaSue!)))
DejaVu is offline   Reply With QuoteReply With Quote
Old 08-01-2009, 09:03 AM #4
tg1999 tg1999 is offline
Junior Member
 
Join Date: Apr 2007
Posts: 10
15 yr Member
tg1999 tg1999 is offline
Junior Member
 
Join Date: Apr 2007
Posts: 10
15 yr Member
Default

I am grateful for your post because I thought this was a side effect from my medication, not the fibro!

When this happens I'm usually quite tired and I'll leave the room or turn off the sound by any means possible.

Fascinating that this is yet another symptom of Fibro. I've had Fibro for many years and am not up-to-date on all the symptoms (denial I suppose) so, once again thank you for sharing this!

TG
tg1999 is offline   Reply With QuoteReply With Quote
Old 08-02-2009, 09:10 AM #5
Peter B Peter B is offline
Member
 
Join Date: Jan 2008
Location: Perth, Western Australia
Posts: 376
15 yr Member
Peter B Peter B is offline
Member
 
Join Date: Jan 2008
Location: Perth, Western Australia
Posts: 376
15 yr Member
Default

Check here for some tips on handling noise sensitivity. My daughter has it and wrote this article.
http://www.hfme.org/practicaltips.htm
__________________
See my mosaics
.

.
Peter B is offline   Reply With QuoteReply With Quote
Old 08-10-2009, 02:52 AM #6
Judy2's Avatar
Judy2 Judy2 is offline
Senior Member
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Default

Hey there Sue! We haven't chatted in some time and I'd much rather chat about dogs than pain!!! However, my little dog, Tasha tends to cause the stress and pain you mentioned with her sharp bark!! Since having the carpet taken up and ceramic tile and hardwood installed, everything echo's much worse than it used to. OWWWWWW!!!!!! I thought it was related to the MS, but apparently Fibro can be the culprit too. These neurological things are so much alike. I also find this problem happening when there are alot of people in the house talking at once. Guess I just have to leave the room for awhile before I turn into a "grump"!!! Good Luck!
__________________
_____________________________________________

.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
.
Judy2 is offline   Reply With QuoteReply With Quote
Old 08-10-2009, 10:17 PM #7
Peter B Peter B is offline
Member
 
Join Date: Jan 2008
Location: Perth, Western Australia
Posts: 376
15 yr Member
Peter B Peter B is offline
Member
 
Join Date: Jan 2008
Location: Perth, Western Australia
Posts: 376
15 yr Member
Default

There are many overlapping symptoms with FM, ME and one or two others I just can't recall.
Sound sensitivity is one.
You really have to leave the room when others are talking.
Try a set of the noise canceling headphones, and play some pleasant music to drown it all out.
You really have to remove yourself and/ or disguise the noise it it may make you very ill.
We have had to install double glazed windows, solid doors with sound proof seals, and carpets to my daughter's room to suppress noise.
Washing can only be done while she is asleep, dishwasher must be off when she is around, no taps running, no electrical equipment, no loud noise, no garden machinery etc.
We have moved to a semi-rural area to escape suburbia with its lawn mowers, whipper snippers, pool pumps and general noise.
__________________
See my mosaics
.

.
Peter B is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Guideline: Surgery may be considered for extreme face pain (Topix) NewsBot Trigeminal Neuralgia 1 08-22-2008 07:09 AM
Wondering what really is causing my pain Cindy56 Spinal Disorders & Back Pain 2 04-09-2008 06:01 PM
~ Is being Moderately Overweight causing me PAIN?? ~ Wiix General Health Conditions & Rare Disorders 16 08-11-2007 03:58 PM
Topamax Use for Nerve Pain is Causing Eye Problems GJZH Chronic Pain 6 12-23-2006 07:46 PM


All times are GMT -5. The time now is 02:28 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.