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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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#1 | ||
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New Member
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Hi..
I am hoping there might be someone out there who can give me some ideas, feedback etc. I have had some symptoms that have been affecting me for over the last year. I am not sure when they started per sea but they have all been affecting me on and off for the since Jan of 2005, some before. Obviously, I am not looking for a diagnosis but some ideas about where I should start looking. I am not good at logging stuff or going to doctors but everytime things start getting worse again, I think again that I have to find Ok symptoms. Some might be totally unrelated. Some might be just because I am tired. In isolation I can figure out some reason maybe for each but not together. I have no idea anymore: ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() I think that's the mainly it. I don't know what's going on. It's not that I think I am seriously ill or something but I don't know what is happening? Could this be do to a sleeping disorder? Or maybe all due to stress? I am concerned though if I should be driving if this continues to progress. Just so you know: I have been seeing my doctor- for most of the time, he has been insisting that its depression. I have never felt that I was depressed but eventually went to see a consellor in case I was just simply in denial. Saw a counsellor and she said no to depression but possible Post Traumatic Stress Disorder at one point but then came up with nothing by the time I stopped our sessions. I finally got through to my Doctor that it wasn't depression and he referred me to a Neurologist. The Neurologist said that she believes everything that I am experiencing is just a manefestation of my migraines and that we may never know why because no one really understands yet about the migraine brain. I have had a CT scan and a EEG to which I think were clean because I never heard back from the Neurologist. I need to fax her with updates though and I haven't been doing that (my bad- I just keep on forgetting!). I am supposed to be keeping a log and I forget to do that too the majority of the time. So most of this is my fault. I just seem to be only able to do one thing at a time right now and thats my career. Everything else seems to fall to the wayside. Brief history: Had seizures as a kid. Put on phenobarbitrol (sp?). Taken off around age 8. Migraines started. Still have them though not as bad as when I was a kid. Coma when 13 from encephalitus (viral) but fully recovered. Otherwise no other complaints other than some tiredness after age of 25. So if you have other idea or just think that I am a hypochondriac, please feel free to let me know. thanks |
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#2 | ||
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Member
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These two are important for you to learn about because most docs and medical references are years to decades behind:
Thyroid and B12 deficiency (usually due to malabsorption) rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out. . |
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#3 | |||
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Co-Administrator
Community Support Team
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one good thing about these forums is they can be your log of sorts too.
so if you post any new symptoms or any changes to this same thread -over time you will have something to show your doctors. Is there any other symptoms or odd things you have noticed? I didn't catch if you are male or female? may or may not matter. so early 30s I don't think it's all depression or that you are a hypochondriac. I would get in touch with the neuro and follow up with that- unless nothing was conclusive. a family friend just had a doc call him about tests done 6 months ago- doc had the results buried on his desk! so call and follow up with that doc just to be sure. I suggest another doc or 2 for other opinions and maybe a good chiropractor? esp for the nerve related stuff - have you ever been in a auto accident, sports injury, falls, hits or such? some info links- Chiropractic care info- a good one can help with many symptoms: http://www.upcspine.com/self.htm http://www.uppercervical.org/subpag...b/about_faq.php http://www.spineuniverse.com/index.html http://www.coloradochiropractic.org/.../glossary.html Anatomy links http://www.gwc.maricopa.edu/home_pag...rial_Small.htm http://www.meddean.luc.edu/lumen/Med...em/learnit.htm http://mywebpages.comcast.net/wnor/homepage.htm http://catalog.nucleusinc.com/genera...=&TL =512&A=2 these links are kind of informative but unusual conditions don't get covered much- they might help to narrow it down for you- http://www.wrongdiagnosis.com/ http://myelectronicmd.com/
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#4 | ||
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Member
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Quote:
Good luck! LIZARD ![]() |
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#5 | ||
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New Member
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Yes I have been in a car accident. I didn't bang my head or anything though- my little jeep just took a roll down an embankment after I lost control on some black ice. The vehicle was a write off however though the cab?? was intact. I did start experiencing some intermittent lower back pain after but I considered that to be unrelated. I did get xrays at the time and they saw nothing (though that leads me to a diff question see below.) It was after the night sweats started but most of the other stuff started or got worse after it (which was why the counsellor thought maybe PMSD at first.) But the night sweats may be unrelated to the other symptoms. I'm looking through all the links. BTW I'm a girl. Thank you!
I also checked out the Arnold-Chiari information. I am going to ask for a MRI- which is harder to get in Canada (BC specifically- Thats where I am.) But after looking at the symptoms for this, I realized that I have one more that I didn't mention before (ringing in the ears, mainly because I thought it was normal) that would also make me want to get this one ruled out. Thank you for that!! I have been tested many times for the thyroid and B12. So I know I do not think it is that but I am going to ask him to check the B12 again specifically just in case. Unfortunately. I have forced my doc to give me so many blood tests in the past year lol that I am worried that I am going to start looking like a druggie soon! kidding of course. Thanks for your help! Now another question came out of this though- after the accident, they noticed on my back xrays a 'shadow' on my hip bone. They made me get a couple other xrays to confirm it. They didn't feel that it was necessary to do more however- my doctor had tried to explain it to me but I can't remember quite what he said. Likely a calcium buildup for something like that. I do remember that he said it was only an issue if my health was bad and since he considered me to be in good health, he was not concerned by it. Any idea why I would have that? I don't think it would be related so maybe I should be starting a new thread but if anyone knows about that sort of stuff I would love to have more info. Thanks again for all your help. Its appreciated. Last edited by TryingtoFigure; 01-04-2007 at 10:34 AM. |
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#6 | ||
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Senior Member (jccglutenfree)
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Take a look at the symptoms I had when B12 deficient. I had many of the same symptoms, and it took 3-5 years and 8 specialists before one thought to test my B12 level, and thankfully he was one of the few who realized low "normal" B12 levels can cause problems.
http://jccglutenfree.googlepages.com...ciencysymptoms Here are a couple of good articles: eMedicine link on vitamin B12 associated neurological diseases: AAFP on Vitamin B12 Deficiency Hope this helps! Cara
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#7 | |||
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Senior Member
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You should certainly look into getting a MRI/MRA with contrast (and make sure the doctor gives them things to focus on (ie: the reason). Also, get a second opinion. Keep us updated.
*Hugs*
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