[sarah-emmett]

I was hoping sombody could help me. I'm a 26 year old female with endometriosis and a urachal cyst. I've been through hell(pardon my language) for the past 4 years. I've been through many doctors and very few have helped me in any way. They did a scope for my Endometriosis and found some on my left side. I've had this agonizing pain in my right side that shoots down my leg and groin area. I went to another specialist for a second opinion and he put me on Lupron. I askedhim what side effects to look out for and he simply told me that alli would get is hot flashes and some cramping the first couple shots. Well, this shot gave me memory loss, sleeping issues due to shallow breathing, BAD temper, personality change, suicidal thought, deep depression, and did i mention that my pain got so much worse. I only lasted 4 months on it and the doctor tried to give me an extra 2 shots on top of the original 6. I had been trying to tell these doctors(nt to mention my family doctor) about these serious side effects. They told me that it happens and to keep going with this shot. I almost killed myself one day because i felt like i was really dying. I've been off it for 5 months now and i am now afraid to get my period because of the severe pain i get. I've had to go to the emerg so many times because of the pain, they cant seem to rule out anything and they say i need to see a specialist. The only thing that take away my pain is morphine and i only had it once. They give me percocet and t3's that barely touch it, so i dont use them often. I haven't been able to work for about a year and a half, and sometimes i dont even want to get out of bed. I feel so lost and i blame Lupron for a big part. I've been through colonoscopy's and laporoscopy, ultra sounds, and even a ct scan. Have the time i can only wear sweat pants because of the pain. I now get headaches, and this right pain is just ridiculous. I need HELP from anybody that can relate or that could have information on getting help and possibly taking Lupron and this other doctor to court. My quality of life is right down and i'm only 26. I feel lost and am tired of these idiotic doctor's. PLEASE HELP. thanks for reading

[pabb]

Originally Posted by sarah-emmett

I was hoping sombody could help me. I'm a 26 year old female with endometriosis and a urachal cyst. I've been through hell(pardon my language) for the past 4 years. I've been through many doctors and very few have helped me in any way. They did a scope for my Endometriosis and found some on my left side. I've had this agonizing pain in my right side that shoots down my leg and groin area. I went to another specialist for a second opinion and he put me on Lupron. I askedhim what side effects to look out for and he simply told me that alli would get is hot flashes and some cramping the first couple shots. Well, this shot gave me memory loss, sleeping issues due to shallow breathing, BAD temper, personality change, suicidal thought, deep depression, and did i mention that my pain got so much worse. I only lasted 4 months on it and the doctor tried to give me an extra 2 shots on top of the original 6. I had been trying to tell these doctors(nt to mention my family doctor) about these serious side effects. They told me that it happens and to keep going with this shot. I almost killed myself one day because i felt like i was really dying. I've been off it for 5 months now and i am now afraid to get my period because of the severe pain i get. I've had to go to the emerg so many times because of the pain, they cant seem to rule out anything and they say i need to see a specialist. The only thing that take away my pain is morphine and i only had it once. They give me percocet and t3's that barely touch it, so i dont use them often. I haven't been able to work for about a year and a half, and sometimes i dont even want to get out of bed. I feel so lost and i blame Lupron for a big part. I've been through colonoscopy's and laporoscopy, ultra sounds, and even a ct scan. Have the time i can only wear sweat pants because of the pain. I now get headaches, and this right pain is just ridiculous. I need HELP from anybody that can relate or that could have information on getting help and possibly taking Lupron and this other doctor to court. My quality of life is right down and i'm only 26. I feel lost and am tired of these idiotic doctor's. PLEASE HELP. thanks for reading

1) have you had any one check out your back?
2) the highlighted are known side effects, unlikely you would get very far complaining about them (legally)
3) has the cyst been repained? if not why not?since this is a birth anomaly, are there any other anomolies that commonly co occur?

[michael178]

It sounds like you need a good family doctor who can guide you to a good specialist.

[tinglytoes]

Originally Posted by sarah-emmett

I was hoping sombody could help me. I'm a 26 year old female with endometriosis and a urachal cyst. I've been through hell(pardon my language) for the past 4 years. I've been through many doctors and very few have helped me in any way. They did a scope for my Endometriosis and found some on my left side. I've had this agonizing pain in my right side that shoots down my leg and groin area. I went to another specialist for a second opinion and he put me on Lupron. I askedhim what side effects to look out for and he simply told me that alli would get is hot flashes and some cramping the first couple shots. Well, this shot gave me memory loss, sleeping issues due to shallow breathing, BAD temper, personality change, suicidal thought, deep depression, and did i mention that my pain got so much worse. I only lasted 4 months on it and the doctor tried to give me an extra 2 shots on top of the original 6. I had been trying to tell these doctors(nt to mention my family doctor) about these serious side effects. They told me that it happens and to keep going with this shot. I almost killed myself one day because i felt like i was really dying. I've been off it for 5 months now and i am now afraid to get my period because of the severe pain i get. I've had to go to the emerg so many times because of the pain, they cant seem to rule out anything and they say i need to see a specialist. The only thing that take away my pain is morphine and i only had it once. They give me percocet and t3's that barely touch it, so i dont use them often. I haven't been able to work for about a year and a half, and sometimes i dont even want to get out of bed. I feel so lost and i blame Lupron for a big part. I've been through colonoscopy's and laporoscopy, ultra sounds, and even a ct scan. Have the time i can only wear sweat pants because of the pain. I now get headaches, and this right pain is just ridiculous. I need HELP from anybody that can relate or that could have information on getting help and possibly taking Lupron and this other doctor to court. My quality of life is right down and i'm only 26. I feel lost and am tired of these idiotic doctor's. PLEASE HELP. thanks for reading

Hi there, occasionally I check in to those who are desperate for help and attempt to offer at the very least, a kind of empathy and compassionate witness to the emotional and psychological suffering, which goes along with the physical symptoms.

Your story sounds absolutely overwhelming in the place you are in at this moment. I hope that you will not give in to the despair. It is certainly warranted when at 26, you see your life going downhill in quality. Please do not give up, please do reach out to others in any way you can to help prop yourself up and find the resources to keep going.

If there is any chance to see a specialist in women's health I would seek one out no matter what the apparent obstacles. I would also suggest the possibility of seeing this dark journey as a process of learning how to care deeply enough about your own suffering, (and innocent body), to find that specialist and empower your Self to get the relief you deserve. If the body is screaming to be heard, it does have a message. Symptoms often lesson when we get in touch with this voice.

Sometimes the body cries out for support, to be heard, where our minds are not able to go. Not always of course. The despair can be lessened with journaling or sharing with a therapist or wise friend. I hope that you will consider your mind a co-factor in the healing equation and seek empathetic support. Please do avoid making any decisions based on pain or hormone driven fears and thoughts.

This can often be the most challenging part of the journey for sure. If there is anything I can offer along these lines please let me know. I am home-bound for the most part and have been through my own 20 year journey of struggles with the mind/body issues. It is possible to find peace in the midst of the struggle. Hang in there.

On the side of tx options, I have survived mostly due to acupuncture/ Chinese herbs. I know that for me this combination has Trudey been a life saver. Especially for female issues. I also chose to have a partial hysterectomy in 2000. That took care of the worst of my symptoms. I am not sorry I finally did this. My uterus was five month size by then. The scar tissue was the worst issue to correct at the time, from the condition itself. Don't remember the name of it now.

I am wishing better times ahead and much compassion for your journey. Things will improve, nothing stays the same forever. Best Wishes TT