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SAPHO Syndorme

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Old 03-10-2010, 11:29 PM #1
ekel ekel is offline
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Default SAPHO Syndorme
Searching for a facility that is familiar with SAPHO Syndrome. If anyone has been diagnosed with SAPHO please let me know where you are being treated.
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Old 03-11-2010, 03:02 AM #2
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My niece has SAPHO and is suffering quite badly from some of it's symptoms at the moment.

She sees specialist after specialist, each for a different aspect of the disease, but unfortunately we live in Australia so I doubt that we can help you.

Let me know if you think of anything.
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