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Old 05-09-2010, 08:55 AM #1
Fexor Fexor is offline
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Default Need help on a diagnosis

Hi all

For awhile now I have been trying to figure out what is going on with me - I hope somebody here can help.
I am just going to give you a run down on some symptoms I have being having and I would like for you to give me what first comes to mind - I do not care if its something bad I just want to know whats going on.

I am 19 years old and for the past year or so I have being having frequent tics or twitches, the tics have varied but the most common one is my head jerking to the right and sometimes my shoulders jumping in combination, or just my shoulders jumping. I get this weird tingly sort of feeling down my neck as this happens.

I remember having similar sorts of tics when I was a kid but not so often..
These tics seem to vary, sometimes it can happen constantly while other times only a few times a day.
It seems to maybe be weather affected as well, by the cold?
I was also having these in my legs during night in bed, one of my legs would randomly jump up off the bed.. that has not happened in a long time though.

I was also having facial tics, and I still do get it randomly every now and then, it got so bad once that it was happening constantly, every two seconds or so.. The whole right side of my face would rise nd my right eyelid would close, in combination with my head jerking to the right every couple seconds.

I also get this severe, brief stabbing pain in my face, usually near the eyebrow or forehead every now and then. I also get these pains across random locations on my body, its a very, very brief sharp pain, it feels like it could be a nerve or something?
The other day I had these sharp pains hit me all over my body all at once.

When I lift my heels up off the ground when sitting down, my legs move up and down extremely rapidly, it's uncontrollable.

I got severe tinnititus, it makes it hard to sleep at night. I have also experienced what they call "pulsatile tinnititus"

My hands tremble.

Sometimes I have veins in my wrist nd leg that look like they are trying to jump out of my skin, I can feel it and its visible.

I have had moments of chest pain, once lasting for two weeks or so, I have not had chest pain for quite a long time now though(8 months or so?)

I have started exercising recently when I exercise, I get these severe headaches. I think these are just exertion headaches though? just throwing that in there in case it can be linked to anything

I have noticed recently my fist will clench up really tightly without me noticing it, but when I do notice it I can unclench it.

My hearing is really sensetive.

Oh and there has being two moments where I have all of a sudden gotten this vibration sort of feeling (I truly cannot describe it) in my head, its a really intense feeling and everything goes all dizzy nd its as if im about to lose conciousnes nd then 5 seconds later its gone..

I know there is heaps more but I am tired and must get some sleep.
Any help on this would well and truly be appreciated, thank you
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Old 05-10-2010, 10:45 PM #2
5280Katie 5280Katie is offline
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Default A doctor/neurologist is your best bet

Please consider seeing a Neurologist as soon as you can. It might be something simple to treat, but no matter what it is, don't give it any extra time until a Neurologist goes over your symptoms.

I was lucky - my symptoms that quickly involved my entire body turned out to be Essential Tremors, now completely controlled through medication. However, I heard things like brain tumor to epileptic seizures to MS when episodes were seen by GPs. Thank heavens for the one who immediately named the neurologist I should see, even offering to make my appt!

Many folks here coukd probably think of many different things. But you need a Dr who can diagnose you with testing involved. And, he can then get you on any treatmebt you might need. Sincerely, the best of luck to you.
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Old 05-15-2010, 08:00 PM #3
Lisa in Ohio Lisa in Ohio is offline
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Hi! How is your blood pressure? HBP can cause all kinds of weird things and chest pain, tics and head-aches. This might be an easy place to start. Monitor it several times a day and when you are symptomatic. Just and idea..... Lisa
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Old 05-19-2010, 08:17 AM #4
Fexor Fexor is offline
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Default

katie - I have seen a neurologist and they gave me a referal to have an MIR scan, that was 8+ months ago though.. i have not had much money to do it.
Yeah I'm hoping it's not MS, I have looked into the symptoms and it seems similar.. and I did the Babinski's, Hoffman's, Chaddock's tests just then and I tested positive to all does that mean it is likely?

Lisa - thanks for the advice, I had a docter check my blood pressure awhile ago when it was happening but she noticed nothing unusual. could HBP cause very visible veins in the chest area? I sometimes get that.
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Old 05-20-2010, 10:46 PM #5
5280Katie 5280Katie is offline
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Fexor, I am so sorry that I have nothing more to offer than suggestions. I had never heard of Babinski's, Hoffman's, or Chaddock's. I did a quick check and all seem to have some degree of spinal cord involvment in causation. Internal spinal cord damage I know about. I'm personally going through treatments to heal it some from my recent life-threatening illness.You need some kind of definitive testing, such as the recommended MRI.

At your age, is there any possibility that you can get on any insurance that your parents might have? Does your state have any type of medical assistance program? My state, Colorado, has one although our current Governor has made it very hard to find. Be persistant. Does your neurologist, who wrote the MRI orders, know of a local medical assistance group? Sometimes specialists. like radiologists, donate services to the community. Do you qualify for any ethnicity (don't know how else to describe this) programs? For example, some of our Native American/First Nations have programs that help with non-routine (like MRI) procedures.

The best I can suggest is to get a current blood test for all of your thyroid, protein, and vitamin levels. This is more than the routine blood test, I believe. Vitamin B's, particularly B12, can cause many problem. Complete thyroid testing (not just T3/T4). Many other organs depend on thyroid outputs - both too much or too little thyroid output are dangerous. Of course, the regular sodium test. And protein level. I always remember Drs saying somerhing about around 4 as normal; I was below 1 when I had problems. All this costs a bit more than a routine blood panel, but far less than an MRI. It's a good start.

At any rate, I truly wished I could suggest better. You still have my best wishes and hopes. Katie
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Old 05-23-2010, 02:05 PM #6
panda98 panda98 is offline
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it seems to me that you might need to see a neurologist. i have some of the same symptoms my neurologist has seen in me. let me know how it goes.
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Old 05-27-2010, 11:16 AM #7
Fexor Fexor is offline
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Katie - I am sorry to hear about your illness, all the best to you.

I am from Australia so I beleive many things are covered by medicare.

A thyroid problem I have been concerned about - my auntie has some disease that causes an over active thyroid, not sure if it is hereditory.

I beleive I have found the problem anyways, in the last few days my hands especially my left hand has become much more stiff and my other limbs have been stiff for awhile now as well but even more so now.

My walk is also becoming very..weird, and I have noticed my right arm is barely swinging.
I have also slowed down a lot, I use to speed walk everywhere.

& at the same time these symptoms worsened my left arm has started going into spasms, and my left hand will flap back and forth rapidly.

Considering the asymmetrical nature of all my symptoms & the distinct way I am walking + reduced arm swing I have concluded that it is either parkinsons or celiac. Either that or I am a hypochondriac. My grandfather had parkinsons. I do not understand how I could get it this young though? that's why im thinking celiac.

Although every symptom and nearly every secondry symptom of parkinsons I have so im not so sure, and my mental state started deterioating long before and in the exact way they described plus the tremors 2-3 years before as they described so im not so sure.

I have booked an appointment with a neurologist - I will let you know how it goes panda.

Thanks for your help to all of you
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Old 06-01-2010, 07:39 PM #8
dahlek dahlek is offline
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Default Also? Check with the neuro you see about...

seeing an Endocrinologist! They deal with thyroid issues and other of the endocrine glands see the attached site:
http://www.endocrineweb.com/
The whole endo system IS complex and it does affect neuro issues?
So both docs should work together to find your problems, especially at such a young age.

And, obviously? SOMETHING IS GOING ON! Just never lose faith that someone CAN find the cause or a treatment to help you!
I suspect that you will be subjected to a full battery of tests! Mostly blood tests for starters - LOTS OF BLOOD being drawn..so before you see the doc the first time? Drink lots of water the day before and time the day of so you don't have to interrupt your meeting w/the doc to 'go'. Later mite come MRI's, sonograms and other tests? Most of these are not invasive, but are used to 'eliminate' a heap of possible problems.
For now? Keep your cool, have faith in your self that something's not rite and stick to your guns! Please keep us up to date on how you're doing? Just don't write SCARED on your Tee-Shirt when you go in! Rather think that TOUGH is on it and go from there! 's - j
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Old 06-03-2010, 09:11 AM #9
Fexor Fexor is offline
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Please ignore my previous post, i had been drinking and I jumped to silly conclusions.

Does this sound like ms -
I have also been getting tingling/numb feelings in my hands/feet, and just today it started in my face..

But what is bothering me more so is my walking, it got really, really bad today. I was walking around for about an hour and all of a sudden my walking got a lot worse, as I walked further my walking became increasingly difficult. I could not straighten my legs, it was as if I was leaning forward on my right step? im not sure.
It was very obvious to everyone around me, each step was so difficult and my knees were really hurting. my steps were small and slow. I have also been getting ankle pain for awhile now as well.
does that sound like the problems someone with ms would have?
about half an hour before I was getting the attacks of sudden pain in my face/neck/upper body that I mentioned before.

with rest it gets better but after a little bit of walking it progressively gets worse again..

what is this? whats going on with me.. it's all progressing so fast.. does ms progress this rapidly? mind you I have been showing symptoms for a year and half or so but I just got all these new symptoms out of no where..

I have also just recently started having full body tremors, it started happening again around the time my legs got really bad today.. I always have a tremor in my hands and twitching of the thumb/pinky at times as well

Every symptom I get, I google nd it always has ms as a cause.. I want to know what is going on but I have to wait until the 18th for the neurologist.

Does anyone have any input on this?


Thank you for your support dahlek, that website you supplied is very useful. I have a lot of symptoms of a hyperactive thyroid but that would not cause the problems with my walking etc would it? Maybe it is two seperate problems? but the symptoms seem to be interlinked with worsening.. not all but some,so im not sure. I will get it checked to be sure.

And yes I am doing my best at keeping it togethor I will keep you informed.

thanks again..
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Old 06-03-2010, 09:32 AM #10
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Hi

I hope you dont mind me mentioning this, but based on your previous post I noted you said you had been drinking............

If you use a lot of alcohol, you may want to consider whether that is perhaps what is causing at least some of your symptoms.

I am not saying this *is* the cause of your symptoms, but just suggesting it as a possible area to investigate further if you know that your alcohol use is more than moderate
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