General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


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Old 05-19-2010, 12:21 PM #1
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Default Fahr's Disease

Hello Everyone,
I am looking for some answers for a friend. Her husband has been dx'd with Fahr's Disease. Does anyone know anything about it or know anyone who specializes in it.
Thanks,
hopeful
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Old 05-20-2010, 08:46 PM #2
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go to pubmed, use "fahr's disease"...there were about 180 listings...good luck
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Old 05-21-2010, 11:50 AM #3
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Quote:
Originally Posted by pabb View Post
go to pubmed, use "fahr's disease"...there were about 180 listings...good luck
Thank you!
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Old 06-11-2010, 10:45 AM #4
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Default Fahr's

Quote:
Originally Posted by hopeful View Post
Hello Everyone,
I am looking for some answers for a friend. Her husband has been dx'd with Fahr's Disease. Does anyone know anything about it or know anyone who specializes in it.
Thanks,
hopeful
He woud see a neurologist. Fortunately this progresses very slowly. I have had it for about 15 years. Good luck
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Old 07-12-2010, 05:54 AM #5
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Default Hypothroidism???

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He woud see a neurologist. Fortunately this progresses very slowly. I have had it for about 15 years. Good luck
Paula, do you have hypothyroidism as well? My wife had a CT done and it shows basal ganglionic calcifications, scared to death.

Last edited by Jim091866; 07-12-2010 at 05:56 AM. Reason: spelling
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Old 10-09-2010, 08:36 PM #6
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Default Fahrs

no, I don't have hypothroidyism.
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Old 10-10-2010, 02:28 AM #7
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All I know is that it involves calcification of the basal ganglia in the crania. It can involve dementia, seizures, movement disorders, etc. That's about all I know about it. From what I understand it CAN be hereditary.

I also got this from PubMed. I hope this helps. God bless. Hugs, Lee
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Old 01-12-2012, 11:51 AM #8
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Default Fahr's disease

My son has it, too. He is enrolled in a study in the Rare and Undiagnosed Diseases program at NIH, and they're looking for more participants, so anyone with Fahr's should really contact them to benefit all of us. I also found a lot of information at the website of the National Organization for Rare Diseases -- look under "Familial Idiopathic Basal Ganglia Calcification."
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Old 01-12-2012, 11:54 AM #9
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NIH links:

http://rarediseases.info.nih.gov/GAR...ification.aspx

http://rarediseases.info.nih.gov/Res...aspx?PageID=31
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Old 11-04-2013, 07:10 PM #10
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Default Fahr's Disease

I also have Fahr's. I'm 33 and have been experiencing symptoms for about 3 years. (Slight tremors in the hands, muscle stiffness, difficulty walking, twitches, involuntary curling of the toes, depression, some very minor short-term memory loss, dizziness, and feelings of numbness in the head)

So far it is progressing relatively slow. I was wondering how long before I start experiencing seizures and/or dementia, or does it vary from person to person?
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