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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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#1 | ||
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New Member
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I am 26, and have a porencephalic cyst in place of my entire Right frontal lobe. I have horrible headaches daily. I have visual disturbances, disorientation, short term memory loss, and extreme photosensitivity as well.
I had a subarachnoid hematoma, and seized shortly after birth. Forceps used during delivery were thought to be the cause. I was on Phenobarbitol for six months. However, my cyst was only diagnosed last year. Does anyone else have this issue? I do not have any issues with mental delay or paralysis. I just want to know if anyone else has insight into treatment and/or prognosis. I feel like I am drowning, and no one knows how to save me. I am the mother of two girls. I want to be able to have a life with them. |
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#2 | ||
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New Member
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[QUOTE=gammillgirl07;663166]I am 26, and have a porencephalic cyst in place of my entire Right frontal lobe. I have horrible headaches daily. I have visual disturbances, disorientation, short term memory loss, and extreme photosensitivity as well.
I had a subarachnoid hematomia, and seized shortly after birth. Forceps used during delivery were thought to be the cause. I was on Phenobarbitol for six months. However, my cyst was only diagnosed last year. Does anyone else have this issue? I do not have any issues with mental delay or paralysis. I just want to know if anyone else has insight into treatment and/or prognosis. I feel like I am drowning, and no one knows how to save me. I am the mother of two girls. I want to be able to have a life with them... ![]() Always there will be an answer for us someday.... ![]() |
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#3 | |||
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Member
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Your symptoms sound very a like to traumatic brain injury because it is dealing with your frontal lobe.There is a forum for TBI on here.You might want to come there and post people are very helpful and can relate.
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__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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