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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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05-20-2014, 10:30 AM | #11 | ||
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Junior Member
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Thanks so much Dr. Smith,
It's such a shame that there aren't any recent posts regarding this injury and procedure - am desperate to find someone who has had or is having the Eden-Lange Procedure!! Any help is greatly appreciated! I was informed today that I have a permanent disability with no chance of recovery - all from a "routine procedure"... Not good!!! If there is any chance you have any contacts that would be willing to give me a second opinion I would be so grateful - I have had a surgical repair with no success. I am in New South Wales, Australia! thank you so much for taking the time to reply to me even though this thread is relatively inactive [such a shame!!!]. Sarah [Princessmorticia] |
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05-20-2014, 11:17 AM | #12 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Quote:
I would ask in the Thoracic Outlet Syndrome forum, as that's where many of the threads discussing it were. Your lawyer would also be a better person to ask. Best wishes, Doc
__________________
Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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04-19-2015, 10:58 AM | #13 | ||
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Hi Sarah.
Send me an Add on to Leesey Salvatore on FB if you like and we can catch up. I have Accessory nerve Injury due to Malpractice and I took it all the way to the Supreme court in Sydney. I was the first successful client to win a case based on this type of injury to the extent it was awarded. I was in similar situation to you, 2 young boys, unrelenting pain. It completely took over my life. More than happy to talk with you. Regards Leese Quote:
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"Thanks for this!" says: | Cattle Dog (04-25-2015) |
10-15-2015, 12:19 PM | #14 | ||
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Newly Joined
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Anyone, who had this surgery? I could not find any reference at all. I am planning to undergo one unfortunately, due to my n. accessorius damage. I am 20 y old and still want to do sports etc... this damage makes a lot of things impossible for me.
How's your recovery? After months of the surgery is there any pain? How strong the muscles are? Is there any disadvantage? Sorry for my bad English and thank you very much for your help. |
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"Thanks for this!" says: | Lara (10-15-2015) |
10-15-2015, 02:53 PM | #15 | |||
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Legendary
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Hello and welcome to NeuroTalk,
You could try asking or reposting on the Thoracic Outlet Syndrome Forum or you could use the Forum Search Feature for specific keywords e.g. Eden Lange |
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09-17-2017, 08:27 PM | #16 | ||
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Im hoping to find someone in this post who has had a successful outcome. Finding others with an SAN injury seems impossible.
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10-20-2017, 01:46 AM | #17 | ||
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Hi my nerve was removed during a Cancer surgery it was unavoidable just trying to cope with it. I am/was a carpenter range of motion is not the bad part but the pain as a consequence of doing to much. 3 hours light activity then days to recover. Not using much for pain pills 60 Phone pills in 45 days average but to much inactivity I go stir crazy until I do anything then sit to recover. The US government says Disabilaty is ending yet I don’t know how to function 40 hours. I have steady pain then shooting pains the pills help with the steady but the sudden shooting pain I have no answer for. Has things improved other then learning to live with it.
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05-25-2019, 03:32 PM | #18 | ||
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I've been dealing with a very poor recovery from shoulder replacement surgery for nearly 3 years and only just learned last month that I had a SAN injury resulting in trapezius palsy that has been my main problem all this time. Just a complete failure to diagnose by the entire medical community, despite my continuous engagement and dedication to follow up care and all the various physical therapy protocols.
I am really hoping I can revive this thread and in particular I would like to make contact with you, mwm121999, if there's any chance you see this message. Quote:
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04-06-2021, 07:32 PM | #19 | ||
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Junior Member
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I have been researching and I believe this SAN is also my problem. I started with rotary cuff injury due to my right arm getting twisted up over my head with a foot on my back. I felt tearing the tearing occur. A few months later my neck really started bothering me more and more. Ended up having 4 damaged cervical disc right side of my neck which was not a huge surprise. Had C5-C7 fused. Still alot of shoulder , head and neck pain. Year later CT scan showing C5/C6 had failed. Had second surgery from back to redo C5/C6 using rods and screws. My shoulders were killing me after the surgery. I could hardly lift my arms. Started PT about six weeks later. Thought things were looking up then noticed that I could not lift/shrug my left shoulder well. The shoulder pain just keeps increasing and if it were not for the gabapentin and tylenol every couple of hours I wouldn't move. At this point I can't shrug my left shoulder at all. I although have not arm pain in both arms. Can't tilt head toward shoulders. I can't rotate head to right without pain very far. Rotating to left is now worse since the shoulder pain has increased more. The funny thing is I had no issues at all with my left shoulder prior to the last redo surgery. Now it doesn't lift and this shoulder is more painful than my right. It feels like I have a 1000 pounds sitting in my shoulders. It seems like the more I exercise the worse I get.
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