General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.

 
 
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Old 03-16-2008, 04:07 AM #1
gretel gretel is offline
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Join Date: Mar 2008
Posts: 2
15 yr Member
gretel gretel is offline
New Member
 
Join Date: Mar 2008
Posts: 2
15 yr Member
Default maxopapillary ependymoma

Hi there,
I am wondering if anyone has any treatment / cure suggestions for the above condition. I have tried everything I can think of over the past 20 years, including surgery, radiotherapy and every kind of natural therapy, herbs, acupunture, faith healing, meditation, osteopathy, nutrition etc. I am walking with a limp (more severe these past 4 months) and take drugs daily to manage the pain. I work full-time, and have my own business, and am studying also, so plenty to keep me distracted! Anyway, I recently heard of Cyberknife in the states, but my neurosurgeon tells me it's as dangerous as further surgery would be for me (tumour in the spinal canal from cauda equina to L5 including complete compression of S1 nerve root) so now on the hunt for other options! I look forward to hearing from anyone who may have concrete advice.
Many thanks,
G
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