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could Occipital neuralgia, occular headache (cluster), and myoclonic seizures bereal?

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Old 05-19-2011, 12:09 PM   #1
Rachel Indiana Mom
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Join Date: May 2011
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Default could Occipital neuralgia, occular headache (cluster), and myoclonic seizures bereal?

Hi. I have been diagnosed with occipital neuralgia, occular headache/migraine (cluster), and juvenille onset epilepsy (just diagnosed 3 yrs ago at 30.) I feel like they're all related because I tend to have most or all of them and their symptoms at the same time. I have had limited success from nerve block injections (great at first then the positive results lasted less time with each session) and Depakote ER (the best.) When I had my first child I went off it and switched to Keppra which INCREASED the number of seizures, but lessended the intensity of each. My last pregnancy I went without meds and did, Okay... I was monitored closely and delivered c-section again due to the emergency complications from my first child. Although not trying for more children, my husband and I use natural planning for reasons of Faith; therefore Depakote is not an option. My neuralogist isn't happy and keeps pushing for an extended stay EEG which we can't afford. He seems unwilling to examine any possible link between all my neuro probs and unwilling to try any other course of treatment. I've had really bad reactions to Neurotin and Topamax. A bad reaction to Lyrica (I also have FMS.) I'm really hoping for some answers. This all makes me feel crazy. Has anyone else had these combined issues? Any suggestions for ideas to breach with my doctors regarding possible treatments or meds? I'm sorry for a typos... I'm using my PalmPre so my accuracy isn't great. Thanks in advance.
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