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Multifocal Motor Neuropathy

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Old 08-16-2011, 09:41 AM #1
ChrisSabin ChrisSabin is offline
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ChrisSabin ChrisSabin is offline
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Default Multifocal Motor Neuropathy
Hi,
Does anybody know anything about using Imuran in addition to IVIG as treatment for MMN/CB ? I had been treated successfully with IVIG for 14 years until last spring when I started to get adverse reaction. Now it seems it has just lost its effectiveness so my neurologist wants to add an immuno -suppressant. CellCepte was tried but side effects were too many for my liking.
Thanks.
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Old 11-09-2011, 12:27 PM #2
shopkid shopkid is offline
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Default Multifocal Motor Neuropathy
Quote:
Originally Posted by ChrisSabin View Post
Hi,
Does anybody know anything about using Imuran in addition to IVIG as treatment for MMN/CB ? I had been treated successfully with IVIG for 14 years until last spring when I started to get adverse reaction. Now it seems it has just lost its effectiveness so my neurologist wants to add an immuno -suppressant. CellCepte was tried but side effects were too many for my liking.
Thanks.
I have just been dx with MMN (not for sure it is MMN but we shall see) but I know I have had problems for yrs...What symptoms do you have... My neuro says mainly is just weakness in the muscles....I am not convinced the neuro is right about the dx..Going for a third opinon at Mayo... Waiting for an approval from my insurance for IVIG.. Have you tried IVIG and how much did it help you..Nancy
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Old 11-10-2011, 05:02 AM #3
bny806 bny806 is offline
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I hope someone can answer you here, I am also curious what your symptoms were? I am in limbo land for diagnosis - possible CIPD they are thinking, but i have some swallowing/speech issues too, which makes me nervous
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