General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


advertisement
Reply
 
Thread Tools Display Modes
Old 12-04-2011, 02:00 PM #1
zackw419 zackw419 is offline
Junior Member
 
Join Date: Jun 2011
Posts: 9
10 yr Member
zackw419 zackw419 is offline
Junior Member
 
Join Date: Jun 2011
Posts: 9
10 yr Member
Default Hemihypertrophy/long thoracic(?) nerve damage

Since about 6th grade I've felt like one of my legs was a tiny bit longer than the other...but it wasn't SUPER noticable.

in 7th or 8th grade I realized one side of my head/face was bigger and shaped differently than the other....not very noticable either.

Now I am 19 years old and from 16- I have noticed my body becoming less symetrical and more imbalances. 16 years old...no pain just noticed something was different. 17: becoming obvious...18-19: My left leg is now noticably bigger than the right...to the point where if you were looking for more than 10 secs at my legs youd probably be able to tell but its still not OBVIOUS to anyone else but me...atleast thats what I think

The left side of my body is healthy and feels great but the right side has gotten weaker...I have developed a kind of mild numbness it parts of my right side...from arm to leg. I feel like there is some vein going from my neck to my foot that is affected....because I get this weird pain in my achiles heel...sometimes my hip... and near my right shoulder that feels more like it has to do with nerves than OUCH type of pain...its a weakening type of pain but its not always there....sometimes the right side of my back gets a 'tingly' feeling. and I feel like when I use my back the only side I am aware of is the left...my right side isn't completly numb but to a degree its almost like its not being used which causes pain.

I lifted weights while I had this problem and my right side just WOULD NOT match up to my left no matter how hard I tried and thats how I found out about this issue really.

Sometimes I feel like the right side of my body is dying....its kind of an intuitive feeling...I can stile play basketball and lift weights and all that (which I dont because I feel like I need to rest all the time) I can walk normal and am still more athletically heatheir than your average person I would say...but Im a bit afraid of losing mobility...I am not afraid of death..I am afraid of living with a big dissablility.

ALL in ALL:

Left side noticably bigger than right from my head to my private parts (I am male) to my feet.

Slight numbness/weakness in right side of body

Pain in the achiles heal shoulder and hip on occassion.

back pain

tingly feeling on right side of body ocassionally

just an overall feeling of imbalance.

Now, I am posting here to get as much advice I can for free...my issue right now is I CAN AFFORD A DOCTOR...I can afford a checkup thats about it but right now I am in Costa rica and I will have to drive 8 hrs to san jose to get a checkup and that costs alot.

My main questions:

What are the Do nots? what should I avoid at all costs?

What can I do that doesn't involve going to a doctor that can help? (I love yoga and practice about 3 times a week or less due to this issue getting worse. I have lower back pain due to lifting weights and pulling my back (with a leg discrepancy) Also my right knee feels very weak and vulnerable while doing yoga..it easily hyper extends.

How serious are the issues Im having and if I do not go to a doctor what are the risks?

How can I get financal help with this problem? I need as much financial help as available.

Thanks for taking your time to read this.

P.S. I have alot of trouble sitting now because of the size difference of my hips. I have to lie on my bed regularly and I find standing easier than sitting. what should I do about this?
zackw419 is offline   Reply With QuoteReply With Quote

advertisement
Old 01-20-2012, 03:47 PM #2
zackw419 zackw419 is offline
Junior Member
 
Join Date: Jun 2011
Posts: 9
10 yr Member
zackw419 zackw419 is offline
Junior Member
 
Join Date: Jun 2011
Posts: 9
10 yr Member
Default

please move this thread to the correct category if it is not currently in the right category, thanks.
zackw419 is offline   Reply With QuoteReply With Quote
Old 01-20-2012, 09:56 PM #3
Abbie's Avatar
Abbie Abbie is offline
Elder
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Abbie Abbie is offline
Elder
Abbie's Avatar
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Default

Hello Zack...

I'm not really sure where else this post belongs.

I did a little research on the internet and found a couple of sites that may be of interest and may help you.
HemiSupport - Hemihypertrophy/Hemihyperplasia
http://www.hemisupport.com/

Healthline - Hemihypertrothy/Hemihyperplasia
http://www.healthline.com/galecontent/hemihypertrophy-hemihyperplasia-1
I see that you have found your way to our TOS forum. Please feel free to roam around and join in anywhere.

I'm sorry I couldn't be of more help to you.

Abbie
__________________
My avatar pic is my beautiful
niece Ashley!

.
Rest in Peace
3/8/90 ~~ 4/2/12
Abbie is offline   Reply With QuoteReply With Quote
Old 02-06-2012, 05:15 PM #4
zackw419 zackw419 is offline
Junior Member
 
Join Date: Jun 2011
Posts: 9
10 yr Member
zackw419 zackw419 is offline
Junior Member
 
Join Date: Jun 2011
Posts: 9
10 yr Member
Default

It's ok. Thank you.
zackw419 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Long Thoracic Nerve injury...will it heal? Scottyb825 General Health Conditions & Rare Disorders 12 07-15-2015 09:29 PM
Nerve does anyone know how long it takes a nerve to regrowing hurting Peripheral Neuropathy 23 12-29-2011 09:51 AM
Looking for help with my husband's Long Thoracic Nerve Palsy bkal New Member Introductions 2 03-04-2011 01:29 AM
Long Thoracic Nerve Palsy diagnosis redwinged New Member Introductions 3 07-19-2010 05:16 PM
thoracic vertebrae damage at 4,5 11 & 12 roybean88 Thoracic Outlet Syndrome 3 04-03-2009 07:58 PM


All times are GMT -5. The time now is 11:08 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.