I have a daughter who has done this twisting thing since she was 5 months old.

This happens daily and she is now 8 1/2 yrs old. She twists her upper body to the right and her legs to the left and presses her left hand into her right groin. She goes through worse episodes where she can do this up to 6hrs/day (not straight) and when she is in a good cycle it's probably around 10 minutes.

Initially drs thought it was seizures (she goes tense and red in the face). There is pain involved with this too. If I pick up on a bad cycle quickly, I can reduce the severity by giving her tylenol right away and keeping on top of it. She has had high levels of calcium in her blood and urine (no kidney stones) but they aren't high enough that they are worried about it.

She is not on the growth chart for her age. I'm not sure if this is related. She's not a good eater and had a severe sleep disorder as a baby. She is on track developmentally and very bright. A tic has been ruled out as has autism/aspergers.
Just wondering if anyone has heard of anything like this. No specialist we have seen has ever seen anything like this.