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| General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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07-14-2012, 01:05 AM
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Hello,
I'm Tiffaney and have been dx with MS for 10 yrs/Fiberomyelia....I know, I didn't spell that right...but, its ok...one of those moments... I would like to know, a little information... I'm on Tysarbi...have been for over 7 yrs....Oh gosh, over the last couple of months, I've been going through alot...being anemia, and so, so tired...more so, than ever.. I had a bone marrow biopsy, done, last month, because, the oncologist, stated, my blood levels were up and down, red blood cells and to see actually, what's going on...so, he told me, I didn't have cancer, leukemia, or lupus....I was dx with Refractory Anemia/Early MDS (Myelodysplastic Syndrome) on Wednesday. I've been researching and all, since Wednesday....I'm just curious..does anyone else have this and does anyone live in Virginia, in which, I would like to change neurologist, like ASAP and a dr, who specializes in MDS. If anyone, watch ABC in the morning...anchor Robin Roberts, has this disease as well, short for MDS. I'm sorry, for venting and all.... Hugs, Tiffaney |
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