[skcher98]

So I started on this forum a while ago with vertigo, falling etc. etc. Been dealing with tremors and other annoying neurological symptoms for months ongoing and never ending. My neurologist thinks its Parkinson's. Sends me for a datscan comes back ok. He's stumped and floored because of all these symptoms.

Put me on topomax. No real effect. Symptoms worsen. Puts me on sinimet when he sees me next because I'm shaking so bad. Sinimet works until I get to a dosage that makes me sick. Brings me in. I'm worse of course off any meds. Puts me on Neupro. Works great!!!!

In the meantime my movement disorder appt finally comes. I go yesterday. He sees all these symptoms tells his student all the signs show cognitive and neurological issues. Pretty much ignores half the stuff I try to tell him and then comes back with we're testing you for Wilson's disease but the tremors are probably caused by childhood issues you need to confront. Being tested for Wilson's and he's recommending therapy and a closer relationship with God.

Help!!!!!! I realize stress worsens things but why doesn't it ever stop? Why when I'm laying on a beach do I still twitch and shake and stutter and fall? Do frustrated right now I can't even breathe. I'm one of the most optimistic people in the world and open to a fault. I just don't take that as a diagnosis at all.

I'm find going to a therapist. I'm just not at all convinced that's a cure. Anyone can relate to the it's all in your head diagnosis?

Ps yes I am B12 deficient and being treated. I know there's a lot of people who ask.

[Totvwp]

I feel your frustration. The Doctors have no idea what is happening to me. They say I should seek counselling. I am up beat and hopeful. Sure I'll see someone. Yet don't think it will help. I have had episodes of spasms on only the right side of my body. Arm or leg either have a twitch, or an all out shake. My right eye vision will from time to time get blurry. Also, I will have periods where I cannot focus my thoughts. This all started about 5 weeks ago. I had what I thought was a cut on my leg. I treated it, and covered it. Then went to a picnic. The cut on my leg began to feel like needles stabbing me. I uncovered it, and the bandage tore my skin off. Short story as it is ugly - Flies liked it a lot. Next day, I had a huge rash-like patch on my leg. MD said it was Shingles. That is clearing up fine. Still Tender. Yet the other symptoms began about a week later. Drs. ask if the flies were real. ?? Like I was seeing things! Test after test - All fine. I hope you get answers, as I also seek them. Seem they won't listen. All I get from them is silence.