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| General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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09-18-2012, 08:08 AM
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Junior Member
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Hello I'm trying to see who all out there have porphyria. I kinda feel like I'm the only one though I know I'm not. if anyone has any tips on how to reduce the swelling or anything would be great.
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09-21-2012, 05:13 PM
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Junior Member
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It's a rare condition, I was tested for it and came back negative, but I had symptoms exactly like it.
I had the non-cutanious symptoms. There is always a "trigger", once you find it and avoid it, it will be a big (but not complete) relief. My trigger was eating any bread made from wheat flour (despite being tested negative for wheat, gluten allergies and also negative for celiacs). |
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Porphyria
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