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Anyone have porphyria?

 
 
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Old 02-07-2012, 08:53 PM #1
IceSkate IceSkate is offline
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Join Date: Oct 2011
Posts: 27
10 yr Member
IceSkate IceSkate is offline
Junior Member
 
Join Date: Oct 2011
Posts: 27
10 yr Member
Default Anyone have porphyria?
Porphyria

-Anyone on here have porphyria? My doctor is testing me for it after having a year of stomach pain, about 6 months of blurred vision, autonomic problems (lightheadedness, POTS), and 2 and a half months of ageusia (inability to taste) and whole body numbness.

It doesn't really seem like porphyria to me because in porphyria doesn't the stomach pain come and go rather than lasting a year?

-If not porphyria, then I have to get an MRI... hope it's nothing worse.

Right now I feel 100% better, which is really weird.
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