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Old 06-01-2013, 06:20 PM #1
sparks09 sparks09 is offline
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Default not understanding whats going on

I'm not very good with writing but here it goes.
I went to this site yesterday to tell about what the doctors say I have.
I'm 52 and they say I have conversion reaction disorder. I had some symptoms in the begining of Feb. I notice as soon as I closed my eyes that my legs started to twitch and than my head started to move up and down or side to side. I thuoght I was going crazy. So what I did was video tap myself at night. Sure enough my legs and head started doing there thing.
Went to do a stress test and as soon as the started the treadmill my whole body started to shake and I couldn't stop it. Was in the hospital to do all the test to check to see if anything was wrong with my brain. No I past all there test. So they sent me home after 3 days and still having problems.
The symptoms I went home with was convolstions at night, stattering, problems walking, and my balance is off. This has been going on for going on 6 mo. I can't work or drive. They told me that this will go away in a couple of weeks. Ha Ha Ha...
I have been seeing a counselor for 3 years. Now I have been seeing a psychiatrist for 15 min. for 3 mo., and now I'm seeing my secend neurologist on the 5th. And then there are the meds. take these they don't work. Than the take you off of them and try something else. Well they don't work either. o they say that there is nothing eles that they can give me to stop the shaking.
I would just want to know if there is anyone that has conversion reaction disorder that I could chat with.

Thank you
Kathy
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Old 06-07-2013, 06:04 AM #2
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Leesa Leesa is offline
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Leesa Leesa is offline
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Hi Kathy ~ Jeepers, you've been thru alot!

This has been going on alot longer than for "normal" conversion reaction disorder patients. Usually after hospitalization, they're better within 2 weeks! Some have it reappear in a year or so, but not all.

The usual "cause" of this disorder is stress. Seems like more people would have it, in this crazy world. Everyone *I* know is stressed to the max!!

The preferred treatment is physiotherapy, occupational therapy, and psychological therapy for depression, which of course everyone would have when dealing with this disorder!!! Especially you, since you've had it so long! Good grief, I'd surely be depressed! (well, I've been treated for depression for more than 40 years! LOL)

So -- I hope this helps a little. It seems like they're not doing any of this, so far. I hope they start! I wish you the very best, my friend. PLEASE keep me posted, will you? I REALLY do care!!! Let me know, ok? Hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



Often the test of courage is not to die, but to live..
.................................................. ...............Orestes
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