I too have antorid cyst on my brain stem it is the size of a baseball and the pressure and pain and the black outs and the ringing in my ears and now all the see in straight lines. i hate feeling this way so the nuro said i had to have surgey but i have to give him and anwser in 7days when i go back in and im sacred do they shave your hair off all the way. how long is the surgey going to be can someone tell that i just want my life back and play with my 5 year old boy and have my husband not needing to take care of me.

have been having migraines for past few yrs - getting worse and more frequent and lasting longer. Also have associated neurological features - numbness, tingling, and speech is difficult and a bit slurred.
Have over past month had days when i sleep abnormal amounts!

I had a scan MRI - which showed a "possible intradiploic arachnoid cyst".
Am waiting for a neurosurgery appointment now .

was very shocked at the results appointment and asked very little.

Please tell me what to expect?
would rather know what's likely and be pleasantly surprised??


Helen

left temporal lobe. very large ac that ruptured. he had craniotomy fenestration in july 2013. we just had a recheck and not much improvement since surgery altho he is feeling better.
the symptoms that got his diagnosis were severe headaches (mornings) with vomiting that got worse over a few weeks (from rupture until diagnosis & emergency surgery). but looking back i can now see the symptoms that he had that i never noticed because i thought i had a healthy unique child. so now im trying to learn all i can and understand what he experiences. he is still symptomatic. we are waiting to see if he will get a shunt at next recheck.
im his mother and i love him so much and it's scary. im glad to read about others who have this and can describe what they feel.
anyone with temporal lobe ac please i would like to communicate so i can understand my son

My son was diagnosed with an arachnoid cyst in his brain. 2 years ago when it was discovered I was told by his neurosurgeon that it is massive and was splitting both his temporal and frontal lobe. Yesterday he told me that there is no brain matter. That this part of the brain never developed. Instead there is a huge sac of CSF.

No brain? Is this true? I can't find a strait answer anywhere and I'm losing my mind.

My name is stanley, i'm 56 and four months ago i was diagnosed with a large or should huge arachnoid cyst 5.6cmx5.7cmx9.8cm on the cerebellum and the neurosurgeon said it not causing all my symptoms.and there's a lot of them.lost and don't know what to do. Life has change for the worst Stanleyr

Hi Stanley,
You are not alone. I am a fellow sufferer who is increasingly incredulous at ALL these Neuros who say that the large lumps pressing on our brains are causing none of the symptoms we present with. Maybe they just don't understand Arachnoid Cysts at all.
Still, if you would like to share your symptoms and your problems with a sympathetic group, perhaps that will be a first step in coming to terms with your condition.
Always here for you.

Dave.

Hi Stanley,

Welcome to the NeuroTalk Support Groups!

Welcome Stanleyr.

My symptom are Headaches 24/7 and sometimes so bad I'm throwing up.
The left side of my face is pins and needles.My arms and hands go numb and sometimes down my right leg.My neck is real stiff and sore. concentration and memory are gone and can't focus. Ringing in my ears.It feels like someone is pushing me on the back of my head.The whole left side of my head is pins and needles.
Thanks Stanley

My wife won't listen to me she does not believe me and won't help me with the doctors or research. she tells me to get a job and when i tell her i'm going help a friend with his boat she yells at me. talk about being lost