[Taffym]

Hi...I'm new be kind
Reposting here thanks to user 'hopeless' for the advice :-)
I have had tremors that started in my hands years ago. They are worse now and pretty much all over my body when tired or cold or I've exercised. I started getting pain in my legs last year. I've had many sprained ankles and have a lot of weakness and pain in my ankles. I get a lot of pins and needles and bubbling sensations in my thighs and feet.
I was recently told I had meralgia. I'm in the middle of tests with neurologist. Too many red blood cells. Frequent UTIs.
However I'm not due back for a few weeks.
More recently I've lost all feeling in my lower back. I don't know when I need the toilet anymore. I can't feel it. Constipation becomes diarrhoea.
I'm struggling to climb one flight of stairs.
I'm exhausted.
I'm single but in my last relationship I admit I faked everything as I couldn't feel anything.
I've scoured forums and the Internet but can't find anyone with meralgia who has lost control and feeling of their lower back and abdomin.
Does this sound in any way familiar too anyone and if so can you tell me about it.
Consultant in two weeks and this time I want to go prepared with questions and not be left thinking I forgot to say xyz etc
Thanks x

[Kitty]

Hi Taffy,

You might want to also post a new thread in the New Members Introduction forum. I think more people might see that and offer helpful advice. Here is the New Members Intro thread: http://neurotalk.psychcentral.com/forum88.html

[mrsD]

Meralgia only affects one nerve.... in the thigh. The lateral sensory
femoral nerve. All the rest would be something else.

You need to see a good orthopedic doctor and/or neurologist.
Have MRIs etc to see if you have damage. Have nerve conduction tests, etc.

It sounds complex, so far by your descriptions.

Are you diabetic? Do you have adequate B12 levels? Those problems can lead to nerve damage.

[Hopeless]

Hi Taffy,

After reading your post last night, I attempted to research your symptoms. The only thing I came across that resembled them involved the pudendal nerve. I also read a post tonight from someone that has that nerve impairment. Maybe we should get the two of you to connect and exchange information. Let me go back and find it and I will let you know who to contact. Be back shortly.

[Hopeless]

Hi Taffy,

I am back. The post I referred to is on the Peripheral Neuropathy forum, title of thread is Lidoderm patch placement for pudenal neuralgia, by BLUEBERRY.

You could click on the name BLUEBERRY and send a private message or just post a reply on the thread. Hope you can find some help. I have no idea of what your correct diagnosis would be but there seemed to be some similarity to your symptoms.