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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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05-13-2007, 08:12 AM | #1 | |||
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My neice that is only 5 months old right now, was just diagnosed with a form of dwarfism.I can't remember the exact medical name for it,but she's just so precious and tiny,and I'm scared for her. We know how a lot of society looks at the "Little People",and makes fun of them,thinks they belong in the circus,and things like that.I can't even imagine someone making fun of my neice,and how I'd react if I saw it.I'd probably end up putting them in the hospital! But I'm afraid for her both emotionally and medically,because her body won't grow to full size ,but her organs will,and it will cause her health problems.I don't get why she has to deal with this she's just a innocent little baby!
Does anybody else here have a friend or relative that is a small person like that,that is okay,and is living a good life,and is not being hurt so bad,just so my mind could be at ease a little about this?
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05-13-2007, 09:28 AM | #2 | ||
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(((((((((((((((((Justice))))))))))))))))).
I'm so sorry... Is it achondroplasia? That's the only form I know of, but I know there are others. At least it can give you a place to start in looking for info. I did know a girl in college who was immensely popular. She had some form of dwarfism (not sure which one), so this little one's life may not be so bad. I know what you mean, though. I was picked on mercilessly as a kid for my hydro, and as my son enters our local jr. high, I fear the same for him. Thank God for disability awareness! It's made bullying and ostracism uncool, so she'll likely be protected by most people. LIZARD |
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05-13-2007, 11:52 AM | #3 | ||
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Have you watched the popular TV show "Little People, Big World"? It is on the TLC channel and shows a family in which both parents have a form of dwarfism and they have 4 children, one who has it as well and he is a twin. It may give you a better more positive idea of what life can be like for a Little Person.
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05-14-2007, 05:45 AM | #4 | |||
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I've heard of the TV show about the little people,I've just never watched it,maybe I should!
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05-15-2007, 05:22 AM | #5 | |||
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What a trip,yesterday,right after I logged off,and shut down my laptop.I went to turn on the TV,and that show that you were telling me about,"Little People,Big World"was on,so I watched it for the first time,and it really helped me see,that they really aren't so helpless after all.People did stare,but it was on TV,so they were probably staring at all the camera's rolling! But it was such a touching show! Thanks for referring that to me,cause I wouldn't have just thought of it on my own!
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05-15-2007, 07:21 PM | #6 | |||
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I really enjoy that show. It helps to show people that just because your a little person you are still just a person like everyone else. They go through the same troubles with raising kids and I like how the parents encourage them that even though they are little they can do anything they put their mind to. Did you know that the dad spent most of his younger years in the hospital? That is why he makes his farm so much fun. I would like to meet them in person someday. ...Sue
OK I am rambled and didn't say what I wanted to say. Shows like that are such a learning tool for the young people today. They can see them on TV and hopefully not be afraid of them or make fun of them. That is another reason that I am for special needs kids to be in the regular school system. So that everyone can see that people are different and that is not a bad thing.
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. Everyone is born, but not everyone is born the same. Some will grow to be butchers, or bakers, or candlestick makers. Some will only be really good at making Jell-O salad. One way or another, though, every human being is unique, for better or for worse. - Narrator (From the movie Matilda) Last edited by snoozie; 05-15-2007 at 07:24 PM. Reason: more rambling from an idle mind |
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05-18-2007, 09:48 AM | #7 | |||
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I agree,and it was such a cute show to.I'll probably start watching it more,it was really touching watching how this family really helped eachother out,and stuck together as a family.It really helped me to not worry about my nieces condition so much,because I know that her mom,and dad,and big brother would be there for her as well!
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05-25-2007, 05:01 PM | #8 | ||
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Justice~
Does your neice live in the S.D. area? I am looking for a parent with a child with Achondroplasia. I recently found out one of my twins most likely will have this condition. It is basically dwarfism. I need some one in the San Diego area or a parent of a child with similar experience to email me advice about taking care of my soon coming baby. It isn't very common I guess. My doctor has not had a baby come in her office yet. I guess by reading on the net, little people are very similar to normal people but just have a short stature. They can have problems with lungs at infancy but it is rare. And there is different types of the disorder. My daughter just seem to have short limbs, arms, legs. Everything else appears to be normal. I will know more when she arrives. I went to college also with a couple of little people so it helped me decide I am definately having this baby. They can live a very normal life..challenging at times I am sure but there are alot more people out there worse off. If you can give me any info..I would appreciate it. I just recently found out about my daughters condition so I haven't talked to anyone else in the area yet, it would be good to hear from someone with answers. |
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05-26-2007, 08:00 AM | #9 | |||
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Actually the family is up here in Utah,that's why Utah is where I'm stuck,is because all my family is here,I'm the only one from San Diego! My family is the type that would freak if they knew I was discussing family issues with people online.I wish he was the type that would talk with you about it,but he was in tears just telling me.I'm sorry,I wish I could give you more,but you can look up Achondroaplasia online and see what it say's there,but so far my niece is 5 1/2 months old,and she's doing fine at her current age,if that even makes a difference at all,she has the same,I think where her arms,and legs,will stay smaller,but the rest will grow big,I'm not sure about her trunk area,you know chest and stomach part.And of course her head will grow
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