General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


advertisement
Reply
 
Thread Tools Display Modes
Old 11-08-2013, 07:18 AM #1
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default This sounds like it could be--

--either a central nervous demyelinating condition (such as MS or a related syndrome) or some thing that might involve upper cervical spinal compression of nerve roots or parts of the spinal cord. A compressive peripheral neuropathy such as thoracic outlet syndrome is also a possibility.

Is there any history of either in your past or family? Do you have any recent history of injury?

I'm not a doctor, of course, but the symptom pattern is ambiguous enough that it would be hard to tell if the symptoms are central nervous system vs. peripheral nervous system without imaging (and even that may not tell decisively), as the symptoms of central nervous system problems as opposed t peripheral ones can be exactly the same.

I would think that your physicians would want to get you MRI's of brain and spine quickly, even without being sent to a neurologist first; is there an insurance hold-up with that?
glenntaj is offline   Reply With QuoteReply With Quote
Old 11-08-2013, 11:38 AM #2
wendyjane wendyjane is offline
Newly Joined
 
Join Date: Nov 2013
Posts: 4
10 yr Member
wendyjane wendyjane is offline
Newly Joined
 
Join Date: Nov 2013
Posts: 4
10 yr Member
Default

Quote:
Originally Posted by glenntaj View Post
--either a central nervous demyelinating condition (such as MS or a related syndrome) or some thing that might involve upper cervical spinal compression of nerve roots or parts of the spinal cord. A compressive peripheral neuropathy such as thoracic outlet syndrome is also a possibility.

Is there any history of either in your past or family? Do you have any recent history of injury?

I'm not a doctor, of course, but the symptom pattern is ambiguous enough that it would be hard to tell if the symptoms are central nervous system vs. peripheral nervous system without imaging (and even that may not tell decisively), as the symptoms of central nervous system problems as opposed t peripheral ones can be exactly the same.

I would think that your physicians would want to get you MRI's of brain and spine quickly, even without being sent to a neurologist first; is there an insurance hold-up with that?
Hey, thanks for your reply!

The doctor didn't think it sounded anything like MS because my symptoms came and went, and moved around so much. He said in conditions like that, it would more likely affect one part of the body and stay there for awhile, not come and go every few hours or even every few days.

No, I have no family history (nor personal history) of anything related to this. I haven't had any injuries that would have caused something like this either.

I have researched so many conditions involving the nervous system and the problem is it doesn't really fit the pattern of like, anything. With peripheral neurophathy and other conditions it appears to affect parts such as the feet/lower legs and hands. But this is not really in my feet or hands at all - its my upper left arm, left leg and the left side of my face? And these sensations come and go so much - every day it seems like it's jumped to a different spot! Some days I feel no tingling at all.

I have a medicaid type coverage right now, so it's VERY limited. I don't have many options. I think my doctor just thinks it isn't serious enough to be concerned about, and the insurance won't cover an MRI/CAT, so he didn't even mention it as a possibility - just that I would have to wait several months to see a neurologist. :/
wendyjane is offline   Reply With QuoteReply With Quote
Old 04-20-2014, 10:31 PM #3
ashleya ashleya is offline
Newly Joined
 
Join Date: Apr 2014
Posts: 1
10 yr Member
ashleya ashleya is offline
Newly Joined
 
Join Date: Apr 2014
Posts: 1
10 yr Member
Default Same symptoms

Quote:
Originally Posted by wendyjane View Post
Hey, thanks for your reply!

The doctor didn't think it sounded anything like MS because my symptoms came and went, and moved around so much. He said in conditions like that, it would more likely affect one part of the body and stay there for awhile, not come and go every few hours or even every few days.

No, I have no family history (nor personal history) of anything related to this. I haven't had any injuries that would have caused something like this either.

I have researched so many conditions involving the nervous system and the problem is it doesn't really fit the pattern of like, anything. With peripheral neurophathy and other conditions it appears to affect parts such as the feet/lower legs and hands. But this is not really in my feet or hands at all - its my upper left arm, left leg and the left side of my face? And these sensations come and go so much - every day it seems like it's jumped to a different spot! Some days I feel no tingling at all.

I have a medicaid type coverage right now, so it's VERY limited. I don't have many options. I think my doctor just thinks it isn't serious enough to be concerned about, and the insurance won't cover an MRI/CAT, so he didn't even mention it as a possibility - just that I would have to wait several months to see a neurologist. :/
Hi Wendyjane,

I am having almost the EXACT same symptoms. I've had every test imaginable (and even adopted a gluten/ dairy free diet which seemed to help) but the migrating numbness (almost like an achy pain) will not go away. I've had it now for a little over two months. I've had an MRI, xrays and an EMG of my arm but everything comes back negative. Can I ask if you ever figured out the root cause?
ashleya is offline   Reply With QuoteReply With Quote
Old 04-20-2014, 11:55 PM #4
wendyjane wendyjane is offline
Newly Joined
 
Join Date: Nov 2013
Posts: 4
10 yr Member
wendyjane wendyjane is offline
Newly Joined
 
Join Date: Nov 2013
Posts: 4
10 yr Member
Default

Quote:
Originally Posted by ashleya View Post
Hi Wendyjane,

I am having almost the EXACT same symptoms. I've had every test imaginable (and even adopted a gluten/ dairy free diet which seemed to help) but the migrating numbness (almost like an achy pain) will not go away. I've had it now for a little over two months. I've had an MRI, xrays and an EMG of my arm but everything comes back negative. Can I ask if you ever figured out the root cause?
Hey, sorry to hear you are suffering too. I have since had an MRI and some additional testing and it has all come back negative as well. The doctor's don't know what is wrong and it has now been over 8 months since my symptoms started.

However after the negative MRI, I saw a D.O. and he said my pelvis was out of alignment and that could be causing some of the symptoms. He did all this weird adjusting to my neck and back. It was sort of like a chiropractor but different.

I don't know if it was a coincidence or not, but ever since then I have been a lot better. I still do have the migrating tingling and aching but it isn't as severe...

I still feel like there's something wrong with my body though, so I have no idea what is going on...

It is so frustrating. I hope they figure out the cause for you!
wendyjane is offline   Reply With QuoteReply With Quote
Old 06-09-2014, 05:02 PM #5
jonlyn jonlyn is offline
Junior Member
 
Join Date: May 2013
Location: Arden, NC
Posts: 19
10 yr Member
jonlyn jonlyn is offline
Junior Member
 
Join Date: May 2013
Location: Arden, NC
Posts: 19
10 yr Member
Default

Quote:
Originally Posted by wendyjane View Post
Hey, sorry to hear you are suffering too. I have since had an MRI and some additional testing and it has all come back negative as well. The doctor's don't know what is wrong and it has now been over 8 months since my symptoms started.

However after the negative MRI, I saw a D.O. and he said my pelvis was out of alignment and that could be causing some of the symptoms. He did all this weird adjusting to my neck and back. It was sort of like a chiropractor but different.

I don't know if it was a coincidence or not, but ever since then I have been a lot better. I still do have the migrating tingling and aching but it isn't as severe...

I still feel like there's something wrong with my body though, so I have no idea what is going on...

It is so frustrating. I hope they figure out the cause for you!
I had an MRI in August, 2013... symptoms like you are describing.. now the symptoms just get worse nearly everyday.. something new ... numbness tingling burning ... entire rt side... New MRI as of May 27, 2014 compressed spinal cord with torsion... NeuroSurgeon appt wednesday... DO NOT GIVE UP ... find out what it is !!! Good luck
jonlyn is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Left Side Head Throbbing-above and in front of left ear. bmwzw Trigeminal Neuralgia 9 10-06-2012 02:37 AM
Tingling on left side Ebar822 General Health Conditions & Rare Disorders 0 08-25-2012 05:54 AM
Left side of head is throbbing and tingling bmwzw Trigeminal Neuralgia 6 02-20-2012 10:20 PM
tingling/buzzing in lower left trap Mikeyson3 Spinal Disorders & Back Pain 6 11-22-2009 10:13 PM
Tingling in Left Side of Body GiGi Thoracic Outlet Syndrome 3 03-07-2007 03:37 PM


All times are GMT -5. The time now is 12:09 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.