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Old 11-07-2013, 11:40 PM #1
wendyjane wendyjane is offline
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Default Migrating left side tingling????

Hey everyone, I want to share my story here in hopes of getting advice, or perhaps relating to someone who has had a similar experience.

About 2 months ago was when my symptoms began. I started experiencing this tingling sensation in the left side of my chest, around my heart. It was very unsettling to say the least, and it would NOT go away. After about a week, I went to the urgent care because I was scared something was wrong. They did an EKG, chest x-ray and took some blood work and said everything was normal and it was probably just anxiety. I was relieved, but still a little concerned because the tingling wouldn't go away. It lasted for about 2 weeks before eventually, it stopped.

I really thought everything was okay after that...but a few days later I woke up and the back of my neck/shoulder was numb and tingly. I thought perhaps I had pinched a nerve or slept on it funny, so I disregarded it and it went away after about 2 days. However, the next few days afterwards my left arm started feeling *strange* or sort of sore, like I had strained it but I hadn't done anything to it. Eventually the left arm started to occasionally tingle.

This was followed by tingling sensations around my left temple for a couple of days. After a few days, I started getting this intense burning/tingling sensation in the back of my head that would last for several hours every day. It was really scary!

Then, some mornings I would wake up and my entire left side would be tingly! For a couple of days pretty much my entire left side would tingle non - stop.

(Let me clarify when I say "tingle" I just mean a mild tingling sensation - I was not experiencing complete numbness or loss of sensation, nor any weakness - I could still move around alright and was not in any pain.)

These symptoms would usually just be in one spot at a time though, like some days the back of my head would tingle, other days just my arm would be tingly, other days my left temple would tingle. Or I'd wake up and my left side would be tingly, but it would eventually go away after a couple of hours.

One day I woke up and my entire left side of my face was tingly!

Eventually I started to experience a few new symptoms - intense head pressure and neck discomfort/tightness. It comes and goes, just like the tingling. The head pressure feels like my head is about to burst open, sometimes it's so bad I need to go lay down in a dark room. Fortunately it isn't constant, but it's annoying and scary.

The neck tightness feels like someone is choking me, I felt it consistently for about 4 days, then after that it came and went.

Sometimes when I'm laying in bed at night, I also notice sharp random pains that migrate around my body.

The tingling sensations migrate around the left side of my body and come and go - but they are ONLY on the left side.

This has been going on for 2 months and it's very frustrating. I did see my primary care doctor a couple of times, but after doing tests and bloodwork (which came back normal) he concluded he had NO idea what was going on, and he is referring me to a neurologist.

The problem is I can't get into see a neurologist for 3-6 MONTHS! So I haven't been able to have a CAT scan/ MRI done, and I'm thinking the only way I can do that is if I walk into the ER ... but none of the doctors I've seen seem to think it's serious enough to warrant that.

Has anyone experienced anything similar??? I am so frustrated right now.
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Old 11-08-2013, 07:18 AM #2
glenntaj glenntaj is offline
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Default This sounds like it could be--

--either a central nervous demyelinating condition (such as MS or a related syndrome) or some thing that might involve upper cervical spinal compression of nerve roots or parts of the spinal cord. A compressive peripheral neuropathy such as thoracic outlet syndrome is also a possibility.

Is there any history of either in your past or family? Do you have any recent history of injury?

I'm not a doctor, of course, but the symptom pattern is ambiguous enough that it would be hard to tell if the symptoms are central nervous system vs. peripheral nervous system without imaging (and even that may not tell decisively), as the symptoms of central nervous system problems as opposed t peripheral ones can be exactly the same.

I would think that your physicians would want to get you MRI's of brain and spine quickly, even without being sent to a neurologist first; is there an insurance hold-up with that?
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Old 11-08-2013, 11:38 AM #3
wendyjane wendyjane is offline
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Originally Posted by glenntaj View Post
--either a central nervous demyelinating condition (such as MS or a related syndrome) or some thing that might involve upper cervical spinal compression of nerve roots or parts of the spinal cord. A compressive peripheral neuropathy such as thoracic outlet syndrome is also a possibility.

Is there any history of either in your past or family? Do you have any recent history of injury?

I'm not a doctor, of course, but the symptom pattern is ambiguous enough that it would be hard to tell if the symptoms are central nervous system vs. peripheral nervous system without imaging (and even that may not tell decisively), as the symptoms of central nervous system problems as opposed t peripheral ones can be exactly the same.

I would think that your physicians would want to get you MRI's of brain and spine quickly, even without being sent to a neurologist first; is there an insurance hold-up with that?
Hey, thanks for your reply!

The doctor didn't think it sounded anything like MS because my symptoms came and went, and moved around so much. He said in conditions like that, it would more likely affect one part of the body and stay there for awhile, not come and go every few hours or even every few days.

No, I have no family history (nor personal history) of anything related to this. I haven't had any injuries that would have caused something like this either.

I have researched so many conditions involving the nervous system and the problem is it doesn't really fit the pattern of like, anything. With peripheral neurophathy and other conditions it appears to affect parts such as the feet/lower legs and hands. But this is not really in my feet or hands at all - its my upper left arm, left leg and the left side of my face? And these sensations come and go so much - every day it seems like it's jumped to a different spot! Some days I feel no tingling at all.

I have a medicaid type coverage right now, so it's VERY limited. I don't have many options. I think my doctor just thinks it isn't serious enough to be concerned about, and the insurance won't cover an MRI/CAT, so he didn't even mention it as a possibility - just that I would have to wait several months to see a neurologist. :/
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Old 04-20-2014, 10:31 PM #4
ashleya ashleya is offline
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Default Same symptoms

Quote:
Originally Posted by wendyjane View Post
Hey, thanks for your reply!

The doctor didn't think it sounded anything like MS because my symptoms came and went, and moved around so much. He said in conditions like that, it would more likely affect one part of the body and stay there for awhile, not come and go every few hours or even every few days.

No, I have no family history (nor personal history) of anything related to this. I haven't had any injuries that would have caused something like this either.

I have researched so many conditions involving the nervous system and the problem is it doesn't really fit the pattern of like, anything. With peripheral neurophathy and other conditions it appears to affect parts such as the feet/lower legs and hands. But this is not really in my feet or hands at all - its my upper left arm, left leg and the left side of my face? And these sensations come and go so much - every day it seems like it's jumped to a different spot! Some days I feel no tingling at all.

I have a medicaid type coverage right now, so it's VERY limited. I don't have many options. I think my doctor just thinks it isn't serious enough to be concerned about, and the insurance won't cover an MRI/CAT, so he didn't even mention it as a possibility - just that I would have to wait several months to see a neurologist. :/
Hi Wendyjane,

I am having almost the EXACT same symptoms. I've had every test imaginable (and even adopted a gluten/ dairy free diet which seemed to help) but the migrating numbness (almost like an achy pain) will not go away. I've had it now for a little over two months. I've had an MRI, xrays and an EMG of my arm but everything comes back negative. Can I ask if you ever figured out the root cause?
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Old 04-20-2014, 11:55 PM #5
wendyjane wendyjane is offline
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Originally Posted by ashleya View Post
Hi Wendyjane,

I am having almost the EXACT same symptoms. I've had every test imaginable (and even adopted a gluten/ dairy free diet which seemed to help) but the migrating numbness (almost like an achy pain) will not go away. I've had it now for a little over two months. I've had an MRI, xrays and an EMG of my arm but everything comes back negative. Can I ask if you ever figured out the root cause?
Hey, sorry to hear you are suffering too. I have since had an MRI and some additional testing and it has all come back negative as well. The doctor's don't know what is wrong and it has now been over 8 months since my symptoms started.

However after the negative MRI, I saw a D.O. and he said my pelvis was out of alignment and that could be causing some of the symptoms. He did all this weird adjusting to my neck and back. It was sort of like a chiropractor but different.

I don't know if it was a coincidence or not, but ever since then I have been a lot better. I still do have the migrating tingling and aching but it isn't as severe...

I still feel like there's something wrong with my body though, so I have no idea what is going on...

It is so frustrating. I hope they figure out the cause for you!
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Old 06-09-2014, 05:02 PM #6
jonlyn jonlyn is offline
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Quote:
Originally Posted by wendyjane View Post
Hey, sorry to hear you are suffering too. I have since had an MRI and some additional testing and it has all come back negative as well. The doctor's don't know what is wrong and it has now been over 8 months since my symptoms started.

However after the negative MRI, I saw a D.O. and he said my pelvis was out of alignment and that could be causing some of the symptoms. He did all this weird adjusting to my neck and back. It was sort of like a chiropractor but different.

I don't know if it was a coincidence or not, but ever since then I have been a lot better. I still do have the migrating tingling and aching but it isn't as severe...

I still feel like there's something wrong with my body though, so I have no idea what is going on...

It is so frustrating. I hope they figure out the cause for you!
I had an MRI in August, 2013... symptoms like you are describing.. now the symptoms just get worse nearly everyday.. something new ... numbness tingling burning ... entire rt side... New MRI as of May 27, 2014 compressed spinal cord with torsion... NeuroSurgeon appt wednesday... DO NOT GIVE UP ... find out what it is !!! Good luck
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